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sandsurfgirl

Celiac Vs. Gluten Intolerance, Vs. Wheat Intolerance

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Is it possible to have just a wheat intolerance but be okay with other glutens and wheat's cousins like spelt? I know I don't have wheat allergy according to testing, so they called it intolerance due to my symptoms after ingesting wheat. Althought my mother in law is an allergist and she says "If it makes you sick you're allergic. I don't care what the test says."

I don't feel sick if I eat spelt though, however maybe all of my other things like unexplained fatigue, chronic sinus infections, GERD are due to the gluten in the spelt and just don't present themselves in typical gastro symptoms. I switched to spelt bread years ago and haven't had any intense gastro issues from it, but I still am always sort of just well... sick. I've also been eating gluten in things and not worrying about a little bit of wheat starch or whatever as an ingredient.

I am still waiting for test results so maybe I'm getting ahead of myself asking these questions, but after years of being misdiagnosed and suffering I'm not waiting for doctors to tell me anything anymore. I'm exploring on my own to find what works and gets me healed.

Also, what is the difference between celiac and gluten intolerance, because they sound like the same thing to me?

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Good info on Celiac vs. Gluten Intolerance: http://www.gluten.net/publications.php (under "Getting Started")

At this point, in general, very little is known about Non-Celiac Gluten Sensitivity. Research is just beginning to get underway.

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Good info on Celiac vs. Gluten Intolerance: http://www.gluten.net/publications.php (under "Getting Started")

At this point, in general, very little is known about Non-Celiac Gluten Sensitivity. Research is just beginning to get underway.

Thank you. That explains it perfectly, well as perfectly as it can be explained since the knowledge isn't exactly vast. LOL

From what I'm reading, many of the gluten sources are wheat related so even if it's a wheat intolerance, I'll be on a gluten free diet in general. So much to learn and think about. I know it's one of these because when I eat whole wheat I feel like I'm going to die. I can't breathe and the stomache pains are so bad I'm curled up on the floor, yet negative to allergy testing. I gave up whole wheat over 20 years ago. I was being debilitated by my symptoms, yet the docs said there was nothing wrong with me and I was only 19 years old. An acupuncturist said wheat allergy, so I cut it out and got better. But then I was told to go ahead and have moderate amounts of white flour and well that's not working. But white flour sometimes I get a little nauseous, sometimes nothing, sometimes very sick if I eat a lot of it or too many days in a row. Barley and Rye I hardly eat so I've never paid attention to those. Spelt has been an alternative for me for a few years now, but I suspect that it's making me sick too, just not as blatantly as regular old wheat does. I have too many unexplained symptoms and illnesses for a woman my age and with my healthy habits and lifestyle.

The latest attack I had that ended me up in the ER was after eating a ton of white flour wheat in the form of pizza, cake and other foods at a birthday party. Since the ER doc has celiac he knew about it and sent me this direction. Who would think an ER trip would end up being a blessing? LOL

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