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Frustrated :(

curlingfan

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curlingfan Newbie
curlingfan
Posted

So I never got the official diagnosis, but I have a bunch of symptoms (low vitamin b12, d, and iron), joint aches, brain fog, slight nausea, fatigue, etc. So 2 months ago I just stopped eating it on a random day. Well right now, two months later, I feel a lot better I think. Unfortunately, my hair is still falling out, but I'm hopeful.

But the main problem is, I had near diareah for a few months now (and before that whenever I took vit. d for some reason). Not to be gross but it smelled like dirareah and was ALMOST soft enough to be diareah, but it wasn't completely. I thought it started to change back to solid brown poop last week, but I realized that I just ate a lot of dairy that week, so I think that might have been why it wasnt the diareah style. The last few days I'm back to the gross almost-diareah poop. Am I allergic to soy maybe? Do I need to just wait longer on the gluten-free diet? This is so frustrating :(

Any help is greatly appreciated!

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missy'smom Collaborator
missy'smom
Posted

gluten-free cleared things up quite a bit, dairy-free helps too(I have clear lifelong issues with dairy) but I was still having urgent, loose stools most mornings, and GI distress the nights before even after 2 years gluten-free. The thing that helped mostly solve my problem was being allergy tested for foods and eliminating all that I tested positive to-quite a few. Soy was on the list as were several other top allergens and many others that I would not have suspected. I re-introduced eggplant this week, after avoiding it for several months and got D, who would have guessed?

Wolicki Enthusiast
Wolicki
Posted

I had the same problem with nightshades. That intolerance took the longest to go away. Giving up tomoatoes was WAY worse than giving up gluten. AFter about 6 months nightshades were once again ok. My only lingering issue is broccoli. I have decided that I just don't like it enough to eat it again and not feel well. I don't care if it's good for you :P

Wolicki Enthusiast
Wolicki
Posted

So I never got the official diagnosis, but I have a bunch of symptoms (low vitamin b12, d, and iron), joint aches, brain fog, slight nausea, fatigue, etc. So 2 months ago I just stopped eating it on a random day. Well right now, two months later, I feel a lot better I think. Unfortunately, my hair is still falling out, but I'm hopeful.

But the main problem is, I had near diareah for a few months now (and before that whenever I took vit. d for some reason). Not to be gross but it smelled like dirareah and was ALMOST soft enough to be diareah, but it wasn't completely. I thought it started to change back to solid brown poop last week, but I realized that I just ate a lot of dairy that week, so I think that might have been why it wasnt the diareah style. The last few days I'm back to the gross almost-diareah poop. Am I allergic to soy maybe? Do I need to just wait longer on the gluten-free diet? This is so frustrating :(

Any help is greatly appreciated!

Do you by chance get heartburn? The reason I ask is that I ended up with LOW stomach acid, thinking it was too much. One of the side effects, for me, of low stomach acid was soft unformed stools. Once I was diligent about taking HCL with every meal and enzymes after, bms are totally normal.

curlingfan Newbie
curlingfan
Posted
  • Author

Do you by chance get heartburn? The reason I ask is that I ended up with LOW stomach acid, thinking it was too much. One of the side effects, for me, of low stomach acid was soft unformed stools. Once I was diligent about taking HCL with every meal and enzymes after, bms are totally normal.

Don't think I've ever had heartburn.

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    • trents
      Iron loss and potential celiac.

      By trents · Posted

      Yes, it does. And joint pain is another celiac symptom that is now well-recognized. 
    • ThomasA55
      Iron loss and potential celiac.

      By ThomasA55 · Posted

      Does my iron loss sound like celiac to you?
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      Iron loss and potential celiac.

      By trents · Posted

      Being as how you are largely asymptomatic, I would certainly advise undertaking a gluten challenge in order to get formal testing for celiac disease. We have many forum participants who become violently ill when they undertake a gluten challenge and they therefore can't carry through with it. That doesn't seem to be the case with you. The reason I think it is important for you to get tested is that many or most people who don't have a formal diagnosis find it difficult to be consistent with the gluten-free diet. They find ways to rationalize that their symptoms are due to something other than celiac disease . . . especially when it becomes socially limiting.  The other factor here is by being inconsistent with the gluten free diet, assuming you do have celiac disease, you are likely causing slow, incremental damage to your gut, even though you are largely asymptomatic. It can take years for that damage to get to the point where it results in spinoff health problems. Concerning genetic testing, it can't be used for diagnosis, at least not definitively. Somewhere between 30 and 40% of the general population will have one or both of the two genes known to be associated with the development of active celiac disease. Yet, only about 1% of the general population will develop active celiac disease. But the genetic testing can be used as a rule out for celiac disease if you don't have either gene. But even so, that doesn't eliminate the possibility of having NCGS (Non Celiac Gluten Sensitivity).
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      Iron loss and potential celiac.

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      Iron loss and potential celiac.

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