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Wolicki

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Wolicki last won the day on January 15 2011

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About Wolicki

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  • Gender
    Female
  • Location
    Orange County, CA

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    jwolicki

About Me

Dx through positive blood tests June 2009 after 10 years of wrong diagnosis, including Lupus, adrenal insufficiency.

9 year old son with ADHD diagnosed October 2009 through positive blood tests.

12 year old son with ADHD negative blood test, but low B12 and Ferritin.

The entire family is now gluten free.

  1. I don't think you need xantham gum. I don't have a bag in front of me, but I think it's a baking powder thing. I've made them from scratch with no xantham, just baking soda. I never use milk, just water. For the eggs, why not try chia? You soak chia seeds in water and it turns into gel. I think...
  2. The meetups always get cancelled. I get the notices and then I get the cancellations. That's why we formed our own!
  3. That happened to my older son, who was gluten free to keep the rest of us safe. After 6 months off gluten, he was getting violently ill with gluten. His blood tests were negative, so we are assuming he is gluten intolerant.
  4. I found it to be very unsatisfying, very much like a frozen protein shake. I did not have any gluteny issues with it, just thought the taste was bleh.
  5. 'Before going gluten free, as I got sicker and sicker, I was on Xanax 4 times a day. That went away within days
  6. It is rare to have a false positive blood test. Especially with low nutrient levels. I think you can safely call yourself Celiac. The biopsy is pretty simple and you won't remember it. They give you an amnesiac to take care of that. You go to sleep, you wake up. You might have a bit of a sore...
  7. Welcome! There's lots of us here in OC. Some great places to eat, too. If you haven't already checked out the front page of this site, check the safe foods list. It's very helpful. Janie
  8. High quality protein, and generous servings of peanut butter! Peanut butter has like 200cal in 2 tbsp. That's how my son got to a normal weight....lots of PB.
  9. I used to scratch until I bled- seriously, I had bruises shaped like scratches. It was so bad, especially on my thighs and torso. It's mostly gone away since going gluten free, but it took a couple of months. My doc says its normal with Celiac. He suggested coating myself with Eucerin Calming...
  10. Whole Foods Jamboree has a nice bakery case with several gluten-free and vegan options. I will be getting their carrot cake next week for a party. If it's any good, I will let you know!
  11. we haven't, but thanks for the tip! I will grab some for my son
  12. digisage, I had the same problem when I went gluten free. I was never bloated a day in my life until I started the diet. I found that I had developed numerous secondary intolerances while I was healing. I am still healing, but it is soooo much better. I've been off gluten for 6 months, and rarely...
  13. I have a friend who is 80+ with Celiac. She calls it Celiac Sprue, because that's what they called in back in the old days. Most current docs don't know diddly about Celiac, so I am fairly sure they didn't know much about it way back when. Lots of undiagnosed old folks, is my guess.
  14. Two things: Your B12 level is technically normal, but I had the buzzing at 570. Try some sublingual B12, 2000 mcg per day, taken at bedtime. Also, the twitching can come from iron deficiency. Have you had your ferritin checked? I've been on b12 and iron for 3 months, and it's gotten much better...