Wolicki
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About Me
Dx through positive blood tests June 2009 after 10 years of wrong diagnosis, including Lupus, adrenal insufficiency.
9 year old son with ADHD diagnosed October 2009 through positive blood tests.
12 year old son with ADHD negative blood test, but low B12 and Ferritin.
The entire family is now gluten free.
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Mathaba reacted to a post in a topic:
How To Gain Weight
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blueshabooMoon reacted to a post in a topic:
Occasionally Feel Like I'm Going To Fall Over?
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That happened to my older son, who was gluten free to keep the rest of us safe. After 6 months off gluten, he was getting violently ill with gluten. His blood tests were negative, so we are assuming he is gluten intolerant.
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I found it to be very unsatisfying, very much like a frozen protein shake. I did not have any gluteny issues with it, just thought the taste was bleh.
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Yes, thank God after about 4 months gluten free
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B12
Wolicki replied to frustratedandtired's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It is rare to have a false positive blood test. Especially with low nutrient levels. I think you can safely call yourself Celiac. The biopsy is pretty simple and you won't remember it. They give you an amnesiac to take care of that. You go to sleep, you wake up. You might have a bit of a sore throat. There are like 35 ft of intestines, and docs take... -
High quality protein, and generous servings of peanut butter! Peanut butter has like 200cal in 2 tbsp. That's how my son got to a normal weight....lots of PB.
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I used to scratch until I bled- seriously, I had bruises shaped like scratches. It was so bad, especially on my thighs and torso. It's mostly gone away since going gluten free, but it took a couple of months. My doc says its normal with Celiac. He suggested coating myself with Eucerin Calming Cream while still wet after showering, then drying off. It...
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I have a friend who is 80+ with Celiac. She calls it Celiac Sprue, because that's what they called in back in the old days. Most current docs don't know diddly about Celiac, so I am fairly sure they didn't know much about it way back when. Lots of undiagnosed old folks, is my guess.
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Occasionally Feel Like I'm Going To Fall Over?
Wolicki replied to amberlynn's topic in Coping with Celiac Disease
I am not certain, but this sounds a bit like gluten ataxia. Put that in the search engine on the site. There are lots of posts on it. I guess it is pretty common to develop neuro issues after going gluten-free. I did, with neuropathy. I never had it before I started the diet. Doesn't make sense to me, but many others have noticed the same thing. -
I was recently FINALLY diagnosed with Celiacs. I was suffering from malnutrution, and was very, very thin. Not too long after I started the gluten-free diet, I got "refeeding edema" and gained 25 pounds overnight. It's been 6 weeks and it hasn't resolved itself. My doctors are stumped and say "give it time." Did anyone else have this experience? If so...