Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Am I?

Massy76

Recommended Posts

Massy76 Newbie
Massy76
Posted

Hi,

i have been suffering with digestive problems for a number of years now and i am starting to wonder if i am celiac! I get heartburn, stomach pain, bloating, flatulance all the time, burping a lot, sometimes constipated for days other days i have the runs, always fatigued, cant concentrate, tingling in feet and hands, and i have recently devoloped a rash on my neck and upper chest that is sometimes itchy. Somedays symptoms are worse than other but pretty much constant. I have had a blood test for celiac but was negative and i am due to have my 3rd endoscopy in a few weeks. Doctors say it is either anxiety or have hitial hernia/ulcer. Celiac runs in my family, sister and mother have it and aunties and uncles. I do not have any weight loss and my weight pretty much stays the same. Does this sound familiar to anyone? I am thinking of trying a gluton free diet but obviously this is very difficult!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


AlysounRI Contributor
AlysounRI
Posted

Anxiety!!

Bah!!!

Calling you anxious is a polite way of calling you "emotional".

Grrrrrrrrrrr.

If celiac runs in your family, as it appears it does, then you are a prime candidate for it. Have they found any damage in all those endoscopies? Are they even looking for it? It seems like you are a prime candidate for it.

I hope you can get a good doctor sorted out if you don't like your doctor. Esp. if they are calling you anxious.

~Allison

sb2178 Enthusiast
sb2178
Posted

Hi,

i have been suffering with digestive problems for a number of years now and i am starting to wonder if i am celiac! I get heartburn, stomach pain, bloating, flatulance all the time, burping a lot, sometimes constipated for days other days i have the runs, always fatigued, cant concentrate, tingling in feet and hands, and i have recently devoloped a rash on my neck and upper chest that is sometimes itchy. Somedays symptoms are worse than other but pretty much constant. I have had a blood test for celiac but was negative and i am due to have my 3rd endoscopy in a few weeks. Doctors say it is either anxiety or have hitial hernia/ulcer. Celiac runs in my family, sister and mother have it and aunties and uncles. I do not have any weight loss and my weight pretty much stays the same. Does this sound familiar to anyone? I am thinking of trying a gluton free diet but obviously this is very difficult!

I think you can get the rash biopsied too, not just your intestines during the endo. Ask about it, maybe easier than anything else. Good luck!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Iron loss and potential celiac.

      Yes, it does. And joint pain is another celiac symptom that is now well-recognized.
    2. ThomasA55
      - ThomasA55 replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Iron loss and potential celiac.

      Does my iron loss sound like celiac to you?
    3. trents
      - trents replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Iron loss and potential celiac.

      Being as how you are largely asymptomatic, I would certainly advise undertaking a gluten challenge in order to get formal testing for celiac disease. We have many forum participants who become violently ill when they undertake a gluten challenge and they therefore can't carry through with it. That doesn't seem to be the case with you. The reason I think it...
    4. ThomasA55
      - ThomasA55 replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Iron loss and potential celiac.

    5. trents
      - trents replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Iron loss and potential celiac.

      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,086
    • Most Online (within 30 mins)
      10,442
    Joseph01
    Newest Member
    Joseph01
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Iron loss and potential celiac.

      By trents · Posted

      Yes, it does. And joint pain is another celiac symptom that is now well-recognized. 
    • ThomasA55
      Iron loss and potential celiac.

      By ThomasA55 · Posted

      Does my iron loss sound like celiac to you?
    • trents
      Iron loss and potential celiac.

      By trents · Posted

      Being as how you are largely asymptomatic, I would certainly advise undertaking a gluten challenge in order to get formal testing for celiac disease. We have many forum participants who become violently ill when they undertake a gluten challenge and they therefore can't carry through with it. That doesn't seem to be the case with you. The reason I think it is important for you to get tested is that many or most people who don't have a formal diagnosis find it difficult to be consistent with the gluten-free diet. They find ways to rationalize that their symptoms are due to something other than celiac disease . . . especially when it becomes socially limiting.  The other factor here is by being inconsistent with the gluten free diet, assuming you do have celiac disease, you are likely causing slow, incremental damage to your gut, even though you are largely asymptomatic. It can take years for that damage to get to the point where it results in spinoff health problems. Concerning genetic testing, it can't be used for diagnosis, at least not definitively. Somewhere between 30 and 40% of the general population will have one or both of the two genes known to be associated with the development of active celiac disease. Yet, only about 1% of the general population will develop active celiac disease. But the genetic testing can be used as a rule out for celiac disease if you don't have either gene. But even so, that doesn't eliminate the possibility of having NCGS (Non Celiac Gluten Sensitivity).
    • ThomasA55
      Iron loss and potential celiac.

      By ThomasA55 · Posted

    • trents
      Iron loss and potential celiac.

      By trents · Posted

      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint pain before you began experimenting with a low gluten diet. Anything else?
×
×
  • Create New...