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O.N.

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O.N. Rookie
O.N.
Posted

Hi everyone,

I am still in process of testing for celiac. My blood test was done after I was gluten free for almost two month and the result was negative. Now it is very difficult to say if there were antibodies on the first place. It is also may be too late for biopsy

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ravenwoodglass Mentor
ravenwoodglass
Posted

Allergy testing is for 'true' allergies which some of us can of course have along with intolerances. Allergies are a histamine reaction, intolerances are an antibody reaction, from what I understand. Intolerances thus would not be picked up on allergy testing.

O.N. Rookie
O.N.
Posted
  • Author

Thank you, Ravenwoodglass,

It is very sad that the test will not help me to figure out what food intolences I have. After going gluten free my guts are still very sensitive. I have negative reaction to food regularly, and I don't even know what exectly I can't tolerate. Thanks god it is not as bad as reaction for gluten.

What I find interesting is that gluten intolerance can be tested (blood test), lactose intolerance can be tested (breath test), but intolerance for other foods can't be tested. If there is a body reaction for some particular food, why this reaction can't be measured?

WheatChef Apprentice
WheatChef
Posted

Thank you, Ravenwoodglass,

It is very sad that the test will not help me to figure out what food intolences I have. After going gluten free my guts are still very sensitive. I have negative reaction to food regularly, and I don't even know what exectly I can't tolerate. Thanks god it is not as bad as reaction for gluten.

What I find interesting is that gluten intolerance can be tested (blood test), lactose intolerance can be tested (breath test), but intolerance for other foods can't be tested. If there is a body reaction for some particular food, why this reaction can't be measured?

Actually, many food intolerances can be tested for. There exist additional tests for your immune systems non IgE (those are allergies) response to many different types of foods, these are either tested for in an IgA or IgG response just like with gluten. Lactose intolerance isn't specifically an immune system response like gluten or casein intolerances are, it's simply a low amount of a required digestive enzyme.

Basically it's:

Does a food cause a negative response in the body?

>No: not a problem. end.

>Yes: Does is the problem linked specifically to the ImmunoGlobulin-E class antibodies system?

>>Yes: It's an allergy

>>No: It's an intolerance.

O.N. Rookie
O.N.
Posted
  • Author

Wow, it sound really complicated. I am looking for an easy way to find out what causes my gut pain/ bloating but it seems as it is very difficult :blink: . I don't know if I would be tested for any food intolerances. When I went gluten-free 4 months ago, everything seemed so great and easy; my symptoms seemed to be fixed. And now I know that other foods also put me in pain/bloating and I don't know what. It doesn't feel that my gut is healing; it is at the same "sensitive" stage. I try to eat only "staple" foods.

Don't know what else I can do...

ravenwoodglass Mentor
ravenwoodglass
Posted

Wow, it sound really complicated. I am looking for an easy way to find out what causes my gut pain/ bloating but it seems as it is very difficult :blink: . I don't know if I would be tested for any food intolerances. When I went gluten-free 4 months ago, everything seemed so great and easy; my symptoms seemed to be fixed. And now I know that other foods also put me in pain/bloating and I don't know what. It doesn't feel that my gut is healing; it is at the same "sensitive" stage. I try to eat only "staple" foods.

Don't know what else I can do...

Have you seen an allergist? You may want to give a few a call and see if they deal with intolerances. They can guide you through an elimination diet and may be able to help with the testing. Not all allergists deal with intolerances so ask the nurse when you call to make an appointment.

O.N. Rookie
O.N.
Posted
  • Author

I will be waiting for my allergy test result, maybe it will show something. I am also waiting for the celiac genetic test. It will be back next week. I hope that if I get Q2 or Q8 in my test result my GI will give me some recommendations on my diet. But if I have gluten intolerance/sensitivity instead of celiac I don't expect to get help from my GI :( .

I am in the process of changing my physician and maybe a new doctor will help me with my diet. I am having an appointment on June 6.

I am trying to eat only

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      Iron loss and potential celiac.

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      Yes, it does. And joint pain is another celiac symptom that is now well-recognized. 
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      Iron loss and potential celiac.

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      Iron loss and potential celiac.

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