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Son In Process Of Begin Diagnosed..

TerriB

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TerriB Newbie
TerriB
Posted

I'm sitting here wanting to cry for my child. One of the tests for Gluten intolerance came back slightly positive. The pediatrician wants us to see the GI doctor. I already had it scheduled for beginning of June. I checked with the GI office and they said not to change his diet. So I'm not but he is in so much pain. He has always had pain I just didn't know how to treat it. We've tried antacids previcid and others as well as probiotics. I'm going to do the probiotics again cause that helped some. He's starting to realize that that really is the problem too. A cookie hurt him for hours. 1/2 a cinnamon roll was horrible. I'm feeling like such a bad parent for giving him something I know will hurt him. No one should have to feel like this. I hope the biopsy is scheduled quickly. I can't do this too him for much longer.

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sb2178 Enthusiast
sb2178
Posted

I'm sitting here wanting to cry for my child. One of the tests for Gluten intolerance came back slightly positive. The pediatrician wants us to see the GI doctor. I already had it scheduled for beginning of June. I checked with the GI office and they said not to change his diet. So I'm not but he is in so much pain. He has always had pain I just didn't know how to treat it. We've tried antacids previcid and others as well as probiotics. I'm going to do the probiotics again cause that helped some. He's starting to realize that that really is the problem too. A cookie hurt him for hours. 1/2 a cinnamon roll was horrible. I'm feeling like such a bad parent for giving him something I know will hurt him. No one should have to feel like this. I hope the biopsy is scheduled quickly. I can't do this too him for much longer.

Maybe add in digestive enzymes if he's old enough to swallow them? They cut down on my pain while I was still eating gluten. But, possibly just because it helped with lactose issues.

mommida Enthusiast
mommida
Posted

The only thing you can do is try and get the appointment moved up. (Which is very hard working with a specialist that can take 3 months to get an appointment with.)

The patient has to keep eating gluten to be tested for Celiac, EE or other eosinophilic gastro issues. The endoscopy WITH BIOPSY can be used to rule out a few different disorders that have nothing to do with gluten, but present with the same symptoms. Your pediatric gastro should discuss this with you further.

Hang in there! This is one of the hardest positions to be in. Been there before. ;)

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