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I'm Not Sure What Is Wrong With Me


Not2sure

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Not2sure Rookie

I am a 50 year old Type 1 diabetic who recently had a colonoscopy done. No previous symptoms, but my aunt died of colon cancer, so when I turned 50 I thought it was time to have one done. Found I had a diverticulum, Doctor said to come back in 10 years. However, ever since the cleaning out I've had irregular bowel movements, including oily stool. No other symptoms except frequent BM's, oily stool and loss of weight. I am only 94lbs now, so I can't afford to loose weight. I went back the colonoscopy doctor after having these symptoms since late March. They asked for testing on my stool, which I haven't heard back on yet. I don't go to a primary till the end of June, so I did a little on line research and have been experimenting with the possibility of celiac disease. No pain, no nausea. When I read a little about it I thought I would try eliminating wheat from my diet and low and behold it cleared up for 4 days. So I immediately thought that's what it is. However, now I'm starting back with the oily stool and diarrhea. So, I'm lost for what it might be. I just think it's strange that I had no symptoms before the colonoscopy and now my bowel is horribly messed up. I think I eat pretty healthy. Any suggestions or similarities?


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    • trents
      Yes, it does. And joint pain is another celiac symptom that is now well-recognized. 
    • ThomasA55
      Does my iron loss sound like celiac to you?
    • trents
      Being as how you are largely asymptomatic, I would certainly advise undertaking a gluten challenge in order to get formal testing for celiac disease. We have many forum participants who become violently ill when they undertake a gluten challenge and they therefore can't carry through with it. That doesn't seem to be the case with you. The reason I think it is important for you to get tested is that many or most people who don't have a formal diagnosis find it difficult to be consistent with the gluten-free diet. They find ways to rationalize that their symptoms are due to something other than celiac disease . . . especially when it becomes socially limiting.  The other factor here is by being inconsistent with the gluten free diet, assuming you do have celiac disease, you are likely causing slow, incremental damage to your gut, even though you are largely asymptomatic. It can take years for that damage to get to the point where it results in spinoff health problems. Concerning genetic testing, it can't be used for diagnosis, at least not definitively. Somewhere between 30 and 40% of the general population will have one or both of the two genes known to be associated with the development of active celiac disease. Yet, only about 1% of the general population will develop active celiac disease. But the genetic testing can be used as a rule out for celiac disease if you don't have either gene. But even so, that doesn't eliminate the possibility of having NCGS (Non Celiac Gluten Sensitivity).
    • ThomasA55
    • trents
      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint pain before you began experimenting with a low gluten diet. Anything else?
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