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gardenergal

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gardenergal Newbie

I am not sure where to even begin.....In 2004 started having joint pain. Flare-ups in one joint at a time that would come then go and show up somewhere else. It was always very painful and I never knew when or where it would hit.

Started seeing my doc in 2005 and she never came up with anything other than my inflammation was through the roof. Sent me to a Rheumatologist end of 2005 put me on anti-inflammatories and prednisone and said he thought I had Sjogrens. Inflammation came down ALOT but never went away and at best was 3x what it should have been.

After moving back to AZ and seeing a new Rheumatologist....still no answers, thought it was some type of arthritis - still having flare-ups (had to have the right knee drained twice!) and now new medication - methotrexate. Did nothing. My pain and flare-ups never made sense...so I started keeping track of what I ate. Also....even time I had bread my mouth broke out with ulcers. Had the celiac test done, was told I had to eat wheat products in order for it to show anything, but everytime I did - mouth ulcers.....so I did not eat anymore.

I went gluten free back mid-April......my blood work in May was FINALLY in the normal range for inflammation! I have not had any flare-ups in any joints and no more mouth ulcers. I also have more energy.

I also cannot eat beef or pork....20+ years now because I got SO sick......so yeah...I am feeling VERY restricted on my food intake these days! :-) LOL

Well, just wanted to share.........thanks!


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kareng Grand Master

You might find that after being gluten free and healing, you can eat things that made you sick before.

gardenergal Newbie

You might find that after being gluten free and healing, you can eat things that made you sick before.

Yeah, I keep thinking about trying some beef.....maybe the grass fed beef..... Everytime I think about it I remember the hospital visits and the intense pain when it all started! I can laugh about it all now though....seems the older I get nothing surprises me much anymore! LOL

We will see......maybe it is time to try again.

Thanks for the info!

mushroom Proficient

Yeah, I keep thinking about trying some beef.....maybe the grass fed beef.....

That;s what I do, only grass-fed; corn-fed beef destroys me :(

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    • trents
      Yes, it does. And joint pain is another celiac symptom that is now well-recognized. 
    • ThomasA55
      Does my iron loss sound like celiac to you?
    • trents
      Being as how you are largely asymptomatic, I would certainly advise undertaking a gluten challenge in order to get formal testing for celiac disease. We have many forum participants who become violently ill when they undertake a gluten challenge and they therefore can't carry through with it. That doesn't seem to be the case with you. The reason I think it is important for you to get tested is that many or most people who don't have a formal diagnosis find it difficult to be consistent with the gluten-free diet. They find ways to rationalize that their symptoms are due to something other than celiac disease . . . especially when it becomes socially limiting.  The other factor here is by being inconsistent with the gluten free diet, assuming you do have celiac disease, you are likely causing slow, incremental damage to your gut, even though you are largely asymptomatic. It can take years for that damage to get to the point where it results in spinoff health problems. Concerning genetic testing, it can't be used for diagnosis, at least not definitively. Somewhere between 30 and 40% of the general population will have one or both of the two genes known to be associated with the development of active celiac disease. Yet, only about 1% of the general population will develop active celiac disease. But the genetic testing can be used as a rule out for celiac disease if you don't have either gene. But even so, that doesn't eliminate the possibility of having NCGS (Non Celiac Gluten Sensitivity).
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    • trents
      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint pain before you began experimenting with a low gluten diet. Anything else?
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