Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Back On Gluten For Testing... Now Worse! Help!


KimKF

Recommended Posts

KimKF Apprentice

As suggested by all, my daughter went back on Gluten (she went off for 2 days and was told to stay on it) to comply with further testing and YOW! Stomach hurts so much she's in tears, as she had some Boston Market chicken and triscuits (better gluten choices?). It didn't hurt this much before she stopped the gluten, just diarrhea! So, she see keeps this up until the GI doctor (who she sees tomorrow) sends her in for further testing?

How long do Celiac Panels and Stool samples take for results (taken 4 days ago), not that they will show anything? My daughter felt that as long as she could eat foods with gluten at this point, she would have her favorites. Big mistake? Better gluten choices, perhaps?

What do I tell her? Thanks to those who are patient enough to read my rantings. Just a concerned Mom!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skylark Collaborator

Give her a big hug tonight and whatever medicine you usually use to help her feel better. Tomorrow tell your GI exactly what's going on, how she's suffering, and that you really want to take her gluten-free even though she hasn't had a biopsy. Maybe he can schedule the biopsy quickly if he wants to do one.

And yeah, Triscuits on a sensitive stomach might be rough. That's a lot of fiber. White bread or Saltines?

ravenwoodglass Mentor

If she can take Pepto Bismal Liquid give her some that may help. Please do tell the doctor about this when you see him. I used cream of wheat and triscuits for my challenge and yes the challenge reaction was severe. I am sorry she is feeling so bad. You have to decide when you see the doctor whether continueing the challenge should be done or not. There are times when doctors will diagnose based on the reaction to the challenge and the relief of symptoms on the diet. That said although a diagnosis is sometimes desired there are many who are 'self diagnosed' by their severe reactions to gluten. You don't need a doctors permission to be gluten free but it is helpful when it comes to going to school.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Iron loss and potential celiac.

    2. - ThomasA55 replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Iron loss and potential celiac.

    3. - trents replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Iron loss and potential celiac.

    4. - trents replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Iron loss and potential celiac.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,086
    • Most Online (within 30 mins)
      10,442

    Joseph01
    Newest Member
    Joseph01
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Yes, it does. And joint pain is another celiac symptom that is now well-recognized. 
    • ThomasA55
      Does my iron loss sound like celiac to you?
    • trents
      Being as how you are largely asymptomatic, I would certainly advise undertaking a gluten challenge in order to get formal testing for celiac disease. We have many forum participants who become violently ill when they undertake a gluten challenge and they therefore can't carry through with it. That doesn't seem to be the case with you. The reason I think it is important for you to get tested is that many or most people who don't have a formal diagnosis find it difficult to be consistent with the gluten-free diet. They find ways to rationalize that their symptoms are due to something other than celiac disease . . . especially when it becomes socially limiting.  The other factor here is by being inconsistent with the gluten free diet, assuming you do have celiac disease, you are likely causing slow, incremental damage to your gut, even though you are largely asymptomatic. It can take years for that damage to get to the point where it results in spinoff health problems. Concerning genetic testing, it can't be used for diagnosis, at least not definitively. Somewhere between 30 and 40% of the general population will have one or both of the two genes known to be associated with the development of active celiac disease. Yet, only about 1% of the general population will develop active celiac disease. But the genetic testing can be used as a rule out for celiac disease if you don't have either gene. But even so, that doesn't eliminate the possibility of having NCGS (Non Celiac Gluten Sensitivity).
    • ThomasA55
    • trents
      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint pain before you began experimenting with a low gluten diet. Anything else?
×
×
  • Create New...