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Skylark

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Skylark last won the day on July 13 2012

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About Skylark

  • Rank
    Glutenologist

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  • Gender
    Female
  • Interests
    Biochemistry
  • Location
    California

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  1. The home tests are better for finding celiac than for ruling it out. TTG tests are 80% accurate. There is still a 20% chance that you are celiac so no, you shouldn't assume you are intolerant.
  2. Your kids' response to the diet means a LOT more than fecal IgA. It's not a terribly reliable test, though a result of 144 is certainly interesting. Little kids don't always have a strong immune response so the older's test results might...
  3. Skylark

    My Family Can't Eat Gluten Free

    It has happened to other board members so don't give up hope. Just get well and set the best example you can.
  4. As I said above, "not detectable" assumes the test for gluten works reliably on soy sauce. It doesn't. Eat at your own risk.
  5. Skylark

    My Family Can't Eat Gluten Free

    Sorry to hear that. It must be frustrating, especially the reacting. Maybe this will be easier to take on when you are feeling better. Has your doctor spoken to your husband? Maybe he'll believe better if he hears it first-hand?
  6. Oh gosh, that sounds terrible! Most of the celiac tests look for autoimmunity so it seems to me that your immune suppressants might mask celiac disease. Celiac can really mess with calcium absorption and cause osteoporosis. It's also a risk...
  7. Welcome to the board! tTG IgA is a test for a kind of autoimmunity that's almost always caused by celiac and yours is quite high. Be sure to give the gluten-free diet a good strict try no matter what the endoscopy results are. Sometimes...
  8. Some naturally fermented soy sauce gets broken down by the cultures to where the gluten is below detection limits. Problem is, the tests don't work right on broken-down gluten so you can't really know whether the soy sauce is safe. Since...
  9. Skylark

    My Family Can't Eat Gluten Free

    It took my mom a few years to watch me get well and then take the plunge herself. She denied feeling better on the diet for a good six months but got sick every single time she ate wheat and finally accepted that she needed to be gluten...
  10. In this study the challenge was with wheat, not pure gluten, so using the phrase "gluten sensitivity" would be incorrect. Top-level researchers use very precise language to try to describe exactly what they observe, not what they might...
  11. I went to a 100% gluten-free restaurant in Asheville. It took me about ten minutes to decide what to order because I'm so used to not having any choices. Food was excellent and the restaurant was plenty busy. They're using local, sustainable...
  12. Yeah, the jury is still out. I had a really strong response to eggs on an IgG test so I have to eliminate/challenge to be sure. Thing is, I tend to feel really awful on Monday and I usually make omelets or bake on the weekends. I also...
  13. Thanks! I can do guar gum, psyllium, and chia. I forgot you can sub chia for eggs. I'm going to play with flax too. Cow dairy is iffy, sometimes I react sometimes not. I seem to be back to tolerating goats milk so might be able to find...
  14. There is no such research. It's an urban legend that has cropped up on the internet recently. I have looked up all the supposed scientific references and they say that coffee allergies and reactions are actually quite rare. Coffee...
  15. In Nature! Sweet! That's an impressive study too.
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