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Calling All Experts - Need Help On Test Results

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Looking for answers Contributor
Looking for answers
Posted

Hi, I've been on these boards for years, but have always just assumed that I was severly gluten sensitive and didn't have Celiac. The reason being is that I had a biopsy done years ago (after ging gluten-free for months) and it came back negative.

Well, I was talking to my doctor the other day and he pushed to retest me. I told him it wasn't necessary that I didn't have the genes (enterolab) and that I was strickly following a gluten-free diet so the results would come back negative anyways. Well, he won that argument and I was SHOCKED when I got the following email:

"The results do suggest Celiac. The TTG IGA would be elevated if you eating foods that stimulate the immune system, but would be negative with a gluten free diet. The tTG IgG indicates that your body has been stimulated in the past. So, since you are on a gluten free diet, we expect the IgA to be negative."

Here are the actual results:

TTG Antibody, IGA <3 (Reference range negative <5)

Endomysial Antibody (IGA) - haven't received results yet

Endomysial Antibody (Titer) - haven't received results yet

Immuoglobulin A TTG Antibody, IGG 381 (positive >10)

Any help here would be greatly appreciated. Can IGG be elevated for other reasons?

Thanks!

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ravenwoodglass Mentor
ravenwoodglass
Posted

If you are still having symptoms I would wonder if gluten is sneaking in somewhere.

The TTG is pretty sensitive according to the NIH here is as link

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Looking for answers Contributor
Looking for answers
Posted
  • Author

Thank you, I was hoping you'd answer...your always knowledgable. I did mis-post something so I'm going to repost now that I understand the results better.

Thanks!

ravenwoodglass Mentor
ravenwoodglass
Posted

Thank you, I was hoping you'd answer...your always knowledgable. I did mis-post something so I'm going to repost now that I understand the results better.

Thanks!

Here is another link. It seems that test is useful especially for folks with low total IGA. I really don't know if it could be associated with anything else as I can only find links for that test to do with celiac but one article did say it can take a long time for the numbers to go down.

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      Iron loss and potential celiac.

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      Yes, it does. And joint pain is another celiac symptom that is now well-recognized. 
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      Iron loss and potential celiac.

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      Does my iron loss sound like celiac to you?
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