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Need To Re-Gluten My 2Yo For Panel - Please Guide Me


Gardening

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Gardening Apprentice

Hi everyone!

I ordered Enterolab tests for myself and my two girls.

Briefly,

Me: mid-thirties, fibromyalgia, hypoglycemia, brain fog, occasional "bug crawling" sensation, lots of other little things

4.5 year old: Sensory Processing Disorder, repeat ear infections, even after tubes and adnoid removal, behavioral issues, pale skin and tongue, recently tested as having severe vitamin and mineral deficiencies, high chlosterol in stool sample, low bile acids, and no lactobaccilus at all, despite consuming yogurt regularly.

2.5 year old: slowed growth since she was 6 months old, showing signs of sensory issues, frequnt bms (just saw ped today about it in fact)

So, 4.5 year old and I received similar results: elevated fecal AGA IGA. Her score was 22, mine was 14. Everything else was normal.

I have 0201 and 0603. She has 0201 and 0202.

So then I open my little one's results:

A) Gluten Sensitivity Stool and Gene Panel Complete *Best test/best value

Fecal Anti-gliadin IgA 118 Units (Normal Range is less than 10 Units)

Fecal Anti-tissue Transglutaminase IgA 26 Units (Normal Range is less than 10 Units)

Quantitative Microscopic Fecal Fat Score Less than 300 Units (Normal Range is less than 300 Units)

Fecal Anti-casein (cow


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Skylark Collaborator

Yes, she needs to go to a GI. I wish Enterolab tested for anti-endomysial antibodies rather than just anti-TTG. Anti-TTG can show up in all the inflammatory bowel diseases, like microscopic colitis and Crohn's, while fecal anti-EMA is specific for celiac. She does have a pretty high anti-gliadin IgA and DQ2 which is more suggestive of celiac.

Most docs say four slices of bread a day for an adult. I'd guess two slices worth for her? That's probably about what my young nephew gets gluten-wise, as he eats part of a waffle with breakfast, half a sandwich or some maccaroni and cheese for lunch, and often chicken nuggets, pot stickers, or pizza at dinner. I hope it doesn't make her sick though. It's a little scary to feed a little kid who is having problems all that gluten. :unsure:

Gardening Apprentice

Skylark,

Thank you so much! For how long, do you think? She's been "gluten-lite" for 4-5 weeks now.

ravenwoodglass Mentor

Skylark,

Thank you so much! For how long, do you think? She's been "gluten-lite" for 4-5 weeks now.

I would advise for 2 to 3 months. If she shows severe effects from the challenge IMHO it should be stopped. I would contact her GI or ped and have her seen before you start the challenge, tell them of the results you have seen on the gluten-free diet and then contact them quickly if she has severe symptoms when she does the challenge. Do keep in mind that false negative on blood and biopsy are even more common in children than they are in adults. The truest test is how she does on a strict gluten free diet.

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    • trents
      Yes, it does. And joint pain is another celiac symptom that is now well-recognized. 
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      Does my iron loss sound like celiac to you?
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      Being as how you are largely asymptomatic, I would certainly advise undertaking a gluten challenge in order to get formal testing for celiac disease. We have many forum participants who become violently ill when they undertake a gluten challenge and they therefore can't carry through with it. That doesn't seem to be the case with you. The reason I think it is important for you to get tested is that many or most people who don't have a formal diagnosis find it difficult to be consistent with the gluten-free diet. They find ways to rationalize that their symptoms are due to something other than celiac disease . . . especially when it becomes socially limiting.  The other factor here is by being inconsistent with the gluten free diet, assuming you do have celiac disease, you are likely causing slow, incremental damage to your gut, even though you are largely asymptomatic. It can take years for that damage to get to the point where it results in spinoff health problems. Concerning genetic testing, it can't be used for diagnosis, at least not definitively. Somewhere between 30 and 40% of the general population will have one or both of the two genes known to be associated with the development of active celiac disease. Yet, only about 1% of the general population will develop active celiac disease. But the genetic testing can be used as a rule out for celiac disease if you don't have either gene. But even so, that doesn't eliminate the possibility of having NCGS (Non Celiac Gluten Sensitivity).
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    • trents
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