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Order Of Reaction Symptoms?

Cheryl-C

By Cheryl-C
in Coping with Celiac Disease

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Cheryl-C Enthusiast
Cheryl-C
Posted

So I got glutened last night. Boo. The last time I got glutened, it started with D and stomach cramps, and then the sinus migraine/ear pain followed by the headache and generally-low energy and moodiness.

Last night, it started with the ear pain first, then the headache and energy/mood issues, and then a sore stomach with no D.

What gives? Is it normal for your symptoms to jump around like that? Could they change order every time I get hit?

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jodi2010 Rookie
jodi2010
Posted

So I got glutened last night. Boo. The last time I got glutened, it started with D and stomach cramps, and then the sinus migraine/ear pain followed by the headache and generally-low energy and moodiness.

Last night, it started with the ear pain first, then the headache and energy/mood issues, and then a sore stomach with no D.

What gives? Is it normal for your symptoms to jump around like that? Could they change order every time I get hit?

It is different for me everytime. Mostly though it involves the bad headache bloating and bad joint pain and edema in my lower legs and "d", but its always different and changing up on me...and i get so cranky i can't stand myself. and the time it takes me to get back to a good place usually is differnt. I think it depends on how much got ingested and what kind of reaction i had to what. For instance if i happen to accidently ingest soy i pretty much will sleep for the day, it just wipes me out.If its wheat then i have all the above symptoms sometimes more sometimes less. I think there are so many different effects on our bodies that really multiple symptoms in any order can occur. I hope you are feeling better soon and get back in a "good" place:)

i-geek Rookie
i-geek
Posted

Mine always used to involve a nasty migraine (sometimes with delayed onset of several hours) with 2-3 days of C (plus bloating and cramping) followed by a couple days of D. I took a bad hit a couple of weeks ago- usually my hits are CC but I think this one was accidental full-on ingestion, as I was in a foreign country and there was a major language barrier. It wasn't food poisoning as it hit too quickly, plus my husband and I were sharing dishes and he was fine. That one brought on a milder immediate headache accompanied with dry heaving, plus I was up all night with D (to the point where i was wondering what I would do if I had to deal with a Japanese emergency room). I was absolutely exhausted and unwell for a couple of days after that and had GI problems for about a week, but the headache went quickly and I never had C.

So yes, symptoms can jump around.

Cheryl-C Enthusiast
Cheryl-C
Posted
  • Author

Thank you both for the input. I'm still really new to all of this, and every time something seems different, I get confused. I guess I should be focusing less on the order of the symptoms and more on the symptoms themselves.

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      Very good pizzeria with small dining room in back of the restaurant. The owner's daughter has celiac & they have gluten free pizza & a gluten free menu. Some items from the regular menu can be made gluten free also. They have a lunch menu which we ordered from & my chicken with spinach & mozzarella over gluten-free penne was delicious. They also have Tuesday night pasta specials & Thursday night chicken pasta specials. We plan on going back for dinner soon.
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      @Aretaeus Cappadocia and @Russ H thank you both for your helpful advice and information. I haven't seen a GI in years. They never helped me aside from my inital diagnosis. All other help has come from my own research, which is why I came here. I will be even more careful in the future. 
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      By Aretaeus Cappadocia · Posted

      @nancydrewandtheceliacclue, you are welcome. After looking at this thread again, I would like to suggest that some of the other comments from @Russ H are worth following up on. The bird-bread may or may not be contributing to what you are experiencing, but it seems unlikely to be the whole story. If you have access to decent healthcare, I would write down your experiences and questions in outline form and bring this to your Dr. I suggest writing it down so you don't get distracted from telling the Dr everything you want to say while you have their attention.
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