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Confused With Home Self Test

realmaverick

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realmaverick Apprentice
realmaverick
Posted

Hey guys,

In short, I'm a 30 year old guy from the UK, who's suffered with fatigue for roughly 18 years. I've not had even an hour of feeling "awake" since I was about 12. I'm always tired regardless of sleep pattern, my diet (not tried gluten free yet), exercise levels etc. For the same amount of time I've had sore eyes, particularly sensitive to florescent lights. Also brain fog, problems sleeping, anxiety, acid reflux and other life long issues.

Though it's always been a problem, I was fearful to go to the Dr, incase I was told I was dying. But enough is enough!

I made an appointment with my Dr, with high hopes. He ran some blood tests for low Iron and hypothyroidism and give me 10mg of celexa to take each day for anxiety. He didn't want to test for celiacs for some reason. The results come back negative for Hypothyroidisn. Iron was low but I wasn't anaemic. Rather than run more tests, my Dr said he just wanted me to continue taking the celexa and see how I go. I felt pretty devastated as I know something isn't right inside me. I proceeded to explain other symptoms but ended up feeling like a hypochondriac.

I've always used Google to search for my symptoms and of course, it's like trying to find a needle in a haystack. My symptoms match so many diseases, it's overwhelming. Anyhow, feeling really anxious and eager I wanted to find out what's wrong with me. No way was I going to hit a dead end, just because my Dr is "happy and doesn't feel any further tests are required at this point".

I've always suspected Celiacs, as has my mum, who suffers most of the same symptoms as myself. So I bought a home test kit called "biocard celiacs test" for

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ravenwoodglass Mentor
ravenwoodglass
Posted

It does appear to be a positive test since the maker states that any line no matter how faint is positive.

Hopefully your doctor will at least do a blood test on you. If he doesn't agree to test you could try a different doctor or you could give the diet a good strict try. Do not go gluten free or gluten light until all your testing is done.

Skylark Collaborator
Skylark
Posted

It is definitely positive. Approach your doctor for celiac, and I hope you have figured out the "mystery" that is making you ill!

nora-n Rookie
nora-n
Posted

There was someone on the norwegian forum with the same question.

They contacted the manufacturer, and they said it definitely was positive.

The celiac expert Matti M

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  • Recent Activity

    1. trents
      - trents replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Iron loss and potential celiac.

      Yes, it does. And joint pain is another celiac symptom that is now well-recognized.
    2. ThomasA55
      - ThomasA55 replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Iron loss and potential celiac.

      Does my iron loss sound like celiac to you?
    3. trents
      - trents replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Iron loss and potential celiac.

      Being as how you are largely asymptomatic, I would certainly advise undertaking a gluten challenge in order to get formal testing for celiac disease. We have many forum participants who become violently ill when they undertake a gluten challenge and they therefore can't carry through with it. That doesn't seem to be the case with you. The reason I think it...
    4. ThomasA55
      - ThomasA55 replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Iron loss and potential celiac.

    5. trents
      - trents replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Iron loss and potential celiac.

      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint...
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  • Posts

    • trents
      Iron loss and potential celiac.

      By trents · Posted

      Yes, it does. And joint pain is another celiac symptom that is now well-recognized. 
    • ThomasA55
      Iron loss and potential celiac.

      By ThomasA55 · Posted

      Does my iron loss sound like celiac to you?
    • trents
      Iron loss and potential celiac.

      By trents · Posted

      Being as how you are largely asymptomatic, I would certainly advise undertaking a gluten challenge in order to get formal testing for celiac disease. We have many forum participants who become violently ill when they undertake a gluten challenge and they therefore can't carry through with it. That doesn't seem to be the case with you. The reason I think it is important for you to get tested is that many or most people who don't have a formal diagnosis find it difficult to be consistent with the gluten-free diet. They find ways to rationalize that their symptoms are due to something other than celiac disease . . . especially when it becomes socially limiting.  The other factor here is by being inconsistent with the gluten free diet, assuming you do have celiac disease, you are likely causing slow, incremental damage to your gut, even though you are largely asymptomatic. It can take years for that damage to get to the point where it results in spinoff health problems. Concerning genetic testing, it can't be used for diagnosis, at least not definitively. Somewhere between 30 and 40% of the general population will have one or both of the two genes known to be associated with the development of active celiac disease. Yet, only about 1% of the general population will develop active celiac disease. But the genetic testing can be used as a rule out for celiac disease if you don't have either gene. But even so, that doesn't eliminate the possibility of having NCGS (Non Celiac Gluten Sensitivity).
    • ThomasA55
      Iron loss and potential celiac.

      By ThomasA55 · Posted

    • trents
      Iron loss and potential celiac.

      By trents · Posted

      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint pain before you began experimenting with a low gluten diet. Anything else?
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