Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Could I Have Celiac? Help Please!

Lucyam

Recommended Posts

Lucyam Newbie
Lucyam
Posted

Hi, I'm new here! I will tell my background and maybe someone has some insight as to what is going on with me. I feel like a hypochondriac... but I know something is not right.

I am a 28 year old mother of 2. Ever since I had my daughter (a year ago) my body has been off. I have had 2 ct scans done, an ultrasound, and blood work. My iron levels were at 18 about 3 months ago. I have been taking SloFe iron pills everyday since. I started off taking 2, now take 1 bc I thought they made me feel strange. Take a women's multi- vitamin daily. Lots of ibuprofen. I was also put on Wellbutrin and xanax at night for anxiety. Ever since giving birth, I have been extremely constipated (resulting in 2 ct scans). Both showed everything was normal, but I was just "full of s**t." :) I have terrible stomach pains, mainly on my right side, and they go into my leg. I have to take Miralax daily just to have a bm at all. I still never have a "good, normal" bm. I feel very tired, and have a sick feeling constantly... Like I have a virus. I can't sleep w/o taking the xanax. My hands shake all the time, and I just feel off. I have short-term memory lapses, and I feel so out of it! My husband gets frustrated bc I'm always sick and don't seem to be paying attention. I don't have that big of an appetite really and have lost lots of weight since having my daughter w/o exercising (about 65 lbs... now 120. I am 5'2 and have always been small framed, except when pregnant!) I have heart palpitations and chest pains everyday. I've had an echo for this and my heart was fine!

My Dr. thought all of this was due to being anemic and having anxiety from being a busy stay at home mom with 0 energy. (Who has energy with 2 kids under the age a 2 anyways?) LOL! I was told my tummy issues are just IBS/ chronic constipation. I don't feel any different after taking iron supplements, and haven't had bloodwork done since. I just think there is something else wrong. I'm so tired of feeling like this and tired of thinking I might have cancer or something? It's exhausting worrying all the time what is wrong with me? I'm young and should have more energy... I want to run like I used to and be able to keep up with my kids.

I'm seeing a pa today, and I'm asking about Celiac. Any thoughts on anything I'm experiencing would be great. I feel so alone, as everyone around me thinks I'm a hypochondriac. :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Dixiebell Contributor
Dixiebell
Posted

Hi and welcome! You are not a hypochondriac. You know that you do not feel well. Hopefully you are getting the celiac panels done today. Most Dr.s don't know much about celiac disease so you can try to find one that does or if your Dr. would be willing to learn with you. Also get your vitamin levels checked. If they are low, that can make you feel bad too. Just remember to keep eating gluten until all of the tests you want to have are done. Even if they are negative, you can still trial a gluten-free diet and see if it helps you. Oh, get your vitamin D checked.

Honestly, I have been feeling like a new woman. I don't have to take anti-depressants any longer and my energy is slowly starting to come back. I take V-D, B-Complex, and Fish Oil everyday and eat as balanced as I can. I have been gluten-free since the end of May. Something else, I used to have these random 'stomach attacks'(I won't go into the gorey details) in the middle of the night, haven't had one since I went gluten-free. That going away was wonderful!

Please keep us posted.

ravenwoodglass Mentor
ravenwoodglass
Posted

It is not uncommon for a woman to have celiac triggered by childbirth. Do ask your doctor to do a celiac panel and if that is positive if you choose to get a scope done. After all your tests are done then give the diet a good strict try. False negatives are not uncommon but your body will know the answer. Do not go gluten free or gluten light until the tests are done though.

Scoobysnackn Newbie
Scoobysnackn
Posted

You don't sound like a hypochondriac to me! Go back to your PCP and

ask about having liver enzymes tested. Your symptoms point to a probable

medication metabolization problem. I was hospitalized recently for NASH (non-alcoholic

steatohepatitis). Means liver isn't metabolizing meds right and you may be

sensitive to medications, as I am. Here's a rundown of the symptoms I was

having:

brain fog

forgetfulness

tired

weak

abdominal pain (constant and colicky)

unexplained itchiness

headaches

shaking

no motivation

Hi, I'm new here! I will tell my background and maybe someone has some insight as to what is going on with me. I feel like a hypochondriac... but I know something is not right.

I am a 28 year old mother of 2. Ever since I had my daughter (a year ago) my body has been off. I have had 2 ct scans done, an ultrasound, and blood work. My iron levels were at 18 about 3 months ago. I have been taking SloFe iron pills everyday since. I started off taking 2, now take 1 bc I thought they made me feel strange. Take a women's multi- vitamin daily. Lots of ibuprofen. I was also put on Wellbutrin and xanax at night for anxiety. Ever since giving birth, I have been extremely constipated (resulting in 2 ct scans). Both showed everything was normal, but I was just "full of s**t." :) I have terrible stomach pains, mainly on my right side, and they go into my leg. I have to take Miralax daily just to have a bm at all. I still never have a "good, normal" bm. I feel very tired, and have a sick feeling constantly... Like I have a virus. I can't sleep w/o taking the xanax. My hands shake all the time, and I just feel off. I have short-term memory lapses, and I feel so out of it! My husband gets frustrated bc I'm always sick and don't seem to be paying attention. I don't have that big of an appetite really and have lost lots of weight since having my daughter w/o exercising (about 65 lbs... now 120. I am 5'2 and have always been small framed, except when pregnant!) I have heart palpitations and chest pains everyday. I've had an echo for this and my heart was fine!

My Dr. thought all of this was due to being anemic and having anxiety from being a busy stay at home mom with 0 energy. (Who has energy with 2 kids under the age a 2 anyways?) LOL! I was told my tummy issues are just IBS/ chronic constipation. I don't feel any different after taking iron supplements, and haven't had bloodwork done since. I just think there is something else wrong. I'm so tired of feeling like this and tired of thinking I might have cancer or something? It's exhausting worrying all the time what is wrong with me? I'm young and should have more energy... I want to run like I used to and be able to keep up with my kids.

I'm seeing a pa today, and I'm asking about Celiac. Any thoughts on anything I'm experiencing would be great. I feel so alone, as everyone around me thinks I'm a hypochondriac.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Iron loss and potential celiac.

      Yes, it does. And joint pain is another celiac symptom that is now well-recognized.
    2. ThomasA55
      - ThomasA55 replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Iron loss and potential celiac.

      Does my iron loss sound like celiac to you?
    3. trents
      - trents replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Iron loss and potential celiac.

      Being as how you are largely asymptomatic, I would certainly advise undertaking a gluten challenge in order to get formal testing for celiac disease. We have many forum participants who become violently ill when they undertake a gluten challenge and they therefore can't carry through with it. That doesn't seem to be the case with you. The reason I think it...
    4. ThomasA55
      - ThomasA55 replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Iron loss and potential celiac.

    5. trents
      - trents replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Iron loss and potential celiac.

      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,086
    • Most Online (within 30 mins)
      10,442
    Joseph01
    Newest Member
    Joseph01
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Iron loss and potential celiac.

      By trents · Posted

      Yes, it does. And joint pain is another celiac symptom that is now well-recognized. 
    • ThomasA55
      Iron loss and potential celiac.

      By ThomasA55 · Posted

      Does my iron loss sound like celiac to you?
    • trents
      Iron loss and potential celiac.

      By trents · Posted

      Being as how you are largely asymptomatic, I would certainly advise undertaking a gluten challenge in order to get formal testing for celiac disease. We have many forum participants who become violently ill when they undertake a gluten challenge and they therefore can't carry through with it. That doesn't seem to be the case with you. The reason I think it is important for you to get tested is that many or most people who don't have a formal diagnosis find it difficult to be consistent with the gluten-free diet. They find ways to rationalize that their symptoms are due to something other than celiac disease . . . especially when it becomes socially limiting.  The other factor here is by being inconsistent with the gluten free diet, assuming you do have celiac disease, you are likely causing slow, incremental damage to your gut, even though you are largely asymptomatic. It can take years for that damage to get to the point where it results in spinoff health problems. Concerning genetic testing, it can't be used for diagnosis, at least not definitively. Somewhere between 30 and 40% of the general population will have one or both of the two genes known to be associated with the development of active celiac disease. Yet, only about 1% of the general population will develop active celiac disease. But the genetic testing can be used as a rule out for celiac disease if you don't have either gene. But even so, that doesn't eliminate the possibility of having NCGS (Non Celiac Gluten Sensitivity).
    • ThomasA55
      Iron loss and potential celiac.

      By ThomasA55 · Posted

    • trents
      Iron loss and potential celiac.

      By trents · Posted

      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint pain before you began experimenting with a low gluten diet. Anything else?
×
×
  • Create New...