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Gluten Free Vs Gluten Light


bincongo

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bincongo Contributor

I am not sure what to tell my sister. I am a new Celiac so she agreed to have the gene testing done and turned up positive for the gene. She already has two autoimmune diseases, one of them being Hashimotos. Now she says she doesn't want to take any blood tests to determine if she is Celiac, she just wants to go light on the gluten. I have told her with Celiac you can't just go half way. She may have a few Celiac symptoms but nothing that really bothers her. I had few symptoms also. If she feels better not taking in as much gluten does that even do any good as far as healing the intestines. She says with her other autoimmune disease (Sjogren's) she has a chance of cancer anyway so what difference does it make. I am just not sure what to say next.


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burdee Enthusiast

I am not sure what to tell my sister. I am a new Celiac so she agreed to have the gene testing done and turned up positive for the gene. She already has two autoimmune diseases, one of them being Hashimotos. Now she says she doesn't want to take any blood tests to determine if she is Celiac, she just wants to go light on the gluten. I have told her with Celiac you can't just go half way. She may have a few Celiac symptoms but nothing that really bothers her. I had few symptoms also. If she feels better not taking in as much gluten does that even do any good as far as healing the intestines. She says with her other autoimmune disease (Sjogren's) she has a chance of cancer anyway so what difference does it make. I am just not sure what to say next.

Tell your sis that Hashimoto's thyroiditis and Sjogren's are highly correlated (and possibly caused by) gluten intolerance. Gluten antibodies can attack any part of the body. In celiac disease gluten antibodies attack the intestines. However, many experts suspect that gluten antibodies attack the thyroid gland, nerves, joints, pancreas, etc. for Hashimoto's, MS, RA, Type 1 Diabetes, etc. I know several people from my local celiac support group whose RA and Hashimoto's symptoms were decreased and damage was controlled by abstaining from gluten.

Even if your sis does not have celiac disease (the intestinal manifestation of gluten intolerance), she can prevent further damage from her other 2 autoimmune disorders (Hashi and Sjogren's). I also have hypothyroiditis and mild Sjogren's symptoms. However, abstaining from gluten almost eliminated my Sjogren's symptoms. My hypothyroiditis is controlled by a low dose thyroid supplement. Without constant gluten antibody damage, I won't need to continually increase my thyroid supplement to counteract Hashimoto's autoimmune damage, because I stopped consuming gluten over 5 years ago.

GFinDC Veteran

Hmm, tell her to search on "celiac associated condition" or "celiac related condition", and read the links. Mild symptoms can turn into severe symptoms over time. And sometimes that happens suddenly. She is playing with fire if she ignores the symptoms her body is presenting. Her other auto-immune conditions could get worse or better depending on her diet. A little bit does matter because it is an auto-immune condition. People with no auto-immune systems live in bubbles because they can't naturally fight off germs. The least little exposure to a microscopic, invisible germ can kill them. For people with normal immune systems the least little exposure kicks off an automatic attack by the immune system to kill the invading germs. The same little microscopic germ kills one person while another goes off ignoring it. But that is because the immune system doesn't care if it is a small little germ or not, it attacks aggressively to defend the body. If it didn't we would all be in a world of hurt. Gluten light is not going to convince the immune system to ignore a threat to the body. The immune system is there for a reason, and it's not to ignore threats. That's like saying a small amount of plague won't hurt someone.

Looking for answers Contributor

I was diagnosed with Sjogren's Syndrome and told that I need to be "scanned" for lymphoma every six months...a bunch a crap in my opionion. It scared the daylights out of me, put me into a deep depression, and I had a midlife crises at 28! Fast forward a few years later: I don't believe in "diseases." I believe in imbalances. My imbalances were caused by my immune system's reaction to gluten, so I stopped consuming it. Sjogren's Syndrome has never progressed and neither has my thyroid issues. In fact, I feel better today than ever in my life. Please see if she'll consider reading "Dangerous Grains." The book put it all in perspective for me.

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    • trents
      Yes, it does. And joint pain is another celiac symptom that is now well-recognized. 
    • ThomasA55
      Does my iron loss sound like celiac to you?
    • trents
      Being as how you are largely asymptomatic, I would certainly advise undertaking a gluten challenge in order to get formal testing for celiac disease. We have many forum participants who become violently ill when they undertake a gluten challenge and they therefore can't carry through with it. That doesn't seem to be the case with you. The reason I think it is important for you to get tested is that many or most people who don't have a formal diagnosis find it difficult to be consistent with the gluten-free diet. They find ways to rationalize that their symptoms are due to something other than celiac disease . . . especially when it becomes socially limiting.  The other factor here is by being inconsistent with the gluten free diet, assuming you do have celiac disease, you are likely causing slow, incremental damage to your gut, even though you are largely asymptomatic. It can take years for that damage to get to the point where it results in spinoff health problems. Concerning genetic testing, it can't be used for diagnosis, at least not definitively. Somewhere between 30 and 40% of the general population will have one or both of the two genes known to be associated with the development of active celiac disease. Yet, only about 1% of the general population will develop active celiac disease. But the genetic testing can be used as a rule out for celiac disease if you don't have either gene. But even so, that doesn't eliminate the possibility of having NCGS (Non Celiac Gluten Sensitivity).
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    • trents
      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint pain before you began experimenting with a low gluten diet. Anything else?
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