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Should I Be Tested For Celiac?


smillfam

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smillfam Newbie

Recently I have had a loss of weight, even though I am eating more.

I have a lot of the symptoms of Celiac including

- Amenorrhea

- Abdominal cramps, gas and bloating

- Hard, "ball-like" stool that is light brown and constipation

- Stunted growth

- Flatulence

- Gastrointestinal symptoms

- Fatigue

- Discolored "spotted" teeth

- Chronic indigestion

- Chronic bloating

- Sores on the corner of mouth

- Irritability

and some others

Should I be tested? Has anyone every had any pervious experience with these symptoms?

Thanks!


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MarySteckel Newbie

Hi! I was told by many, they thought I had Celiac Disease. I did not listen. I have been so ill lately, I looked up the symptoms of Celiac Disease, finally. I have every symptom, plus two autoimmune diseases listed. I have decided to go on a gluten free diet for 4 weeks to see if my symptoms improve. It has been 10 days now. I can tell you, some of the symptoms have improved. I will talk to my physician when I go in to see him in January. I hope this helps you.

jessicalw28 Apprentice

Your symptoms sound a lot like mine. I have not been diagnosed yet, but I have had bloodwork and an endoscopy done. The blood work came back negative, but there is a high rate of false negatives. I'm waiting on the results from the endoscopy and biopsy. I would recommend getting those tests done. Just be sure you don't go on the gluten free diet before the tests. It may throw off your results if you begin to heal.

It's interesting to find someone else that has the spots on their teeth. I have had spots on my top two front teeth for a long time that are whiter than the rest of my teeth. I was self concious of them when I was a teenager and tried whitening products, only to find that it just made them even more noticeable. I have asked several different dentists and they all told me different reasons for the spots. One told me it was too much flouride and another told me that my mother must have had a fever when she was pregnant. I was surprised to find out through my research that it could be related to celiac.

Good luck in your search for the cause of your problems!

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      Does my iron loss sound like celiac to you?
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      Being as how you are largely asymptomatic, I would certainly advise undertaking a gluten challenge in order to get formal testing for celiac disease. We have many forum participants who become violently ill when they undertake a gluten challenge and they therefore can't carry through with it. That doesn't seem to be the case with you. The reason I think it is important for you to get tested is that many or most people who don't have a formal diagnosis find it difficult to be consistent with the gluten-free diet. They find ways to rationalize that their symptoms are due to something other than celiac disease . . . especially when it becomes socially limiting.  The other factor here is by being inconsistent with the gluten free diet, assuming you do have celiac disease, you are likely causing slow, incremental damage to your gut, even though you are largely asymptomatic. It can take years for that damage to get to the point where it results in spinoff health problems. Concerning genetic testing, it can't be used for diagnosis, at least not definitively. Somewhere between 30 and 40% of the general population will have one or both of the two genes known to be associated with the development of active celiac disease. Yet, only about 1% of the general population will develop active celiac disease. But the genetic testing can be used as a rule out for celiac disease if you don't have either gene. But even so, that doesn't eliminate the possibility of having NCGS (Non Celiac Gluten Sensitivity).
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      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint pain before you began experimenting with a low gluten diet. Anything else?
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