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Trying To Determine Celiac


wow89

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wow89 Rookie

Hi - thankful I found like souls! I am inthe midst of tryign to prove that I have gluten issues. The other doctors I went to are locked in on the adrenal hormone issues (I have a lot of stress and high cortisol) I'm 39 and going through a lot in my life however, I was fine one day and then ate a sandwich and my pulse went up at least 40 bpms, I have anxiety, low b 12, diarrhea, IBS symptoms, belly growls, my heartbeat is really pronounced, weak, fatigued and did I mention always having digestive issues. I've felt like this before 10 yrs ago after I was sick and majorly stressed with a stomach virus, it took me years to feel better and took nexium, probiotic and digestive enzymes but never tested for gluten and didn't cut out bread. After feeling better for a few years now back in the same boat, I was sick w/ stomach virus and got really stressed panicky, etc... now I have cut back on gluten for about two/three weeks but still having some of the issues not as bad. My questions are: do I see a gastroenterologist and an endocrinologist, can any doctor test for gluten via stool and scope; does ths sound like celiac; and do I really have to keep eating gluten until I'm tested?... I just don't know where to start but I feel like I've probably had this for years and years and lived on sugar and bread and caffience for years. Any thoughts and advice is appreciated.


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Dixiebell Contributor

Welcome wow89!

Yes, you need to keep eating gluten until all of your testing is done.

Your primary care Dr should be able to run these tests:

TTG Igg AND Iga

Antigliadin Igg AND Iga

Endomysial Antibodies

Total Iga Serum

Deamidated Gliadin Peptide IgA and IgG (this is a newer test)

wow89 Rookie

Thank you!!!

wow89 Rookie

Just wondering, do you have more symptoms when you are stressed??

Thanks!!

Dixiebell Contributor

I think maybe I had a 'nervous stomach' where if I got mad or upset I would sometimes get D. I went gluten-free because of my son who was having stomach and stool problems along with headaches and some skin issues. Our tests were negative, but after reading so much here I decided that we would go gluten-free to see if it helped. It did. I had depression, anxiety, low vit D, headaches and body/bone aches. All gone. With the history of bowel trouble and other auto-immune diseases in my family, I figured it couldn't hurt to try it. I am sure glad we did.

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      Does my iron loss sound like celiac to you?
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      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint pain before you began experimenting with a low gluten diet. Anything else?
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