Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Kidney Problems?


scuzy

Recommended Posts

scuzy Rookie

Hello,

I have self diagnosed myself with Celiac Disease back in August. I have been feeling sooooo much better since I have been gluten free. It took me about two years to figure out that I had Celiac Disease and am wondering what kind of damage could I have done to my body within those two years of horrible symptoms.

Before I went gluten free I would get these really sharp pains in my lower right back (the doc says the kidneys). I noticed that when I went gluten free they almost went away. I also noticed if I were to get one of those painful episodes it was always around if I got glutened by something. So since I don't have health insurance I never went to the doctor for it. I finally went the other day because I had a really really really ext... painful episode for about 5 hours. The doctor felt around and said that he felt a mass on my right kidney and he also found blood in my urine. I had a CT scan today and the doctor called me to tell me he was stumped. Everything came back fine, there was nothing abnormal about the scan, he has no idea what is wrong with me. I mentioned to him I believe I have Celiac Disease so he said that it could be causing pain and that when my insurance starts next month to go to a Gastroenterologist. So my question to everyone is... Does anyone know if Celiac can cause kidney problems? And how would the doctor figure it out if I am gluten free? I would hope he wouldn't have to gluten me to figure it out...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

I have the same issues with the kidneys that you describe. As long as I stay away from gluten I am pain and bleeding free. Can't say it will be the same for you. If you want a diagnosis of celiac from the GI you need to go back on gluten for a couple of months. If you just can't stand the pain of that then keep in mind we don't need a doctors permission to be gluten free.

scuzy Rookie

I have the same issues with the kidneys that you describe. As long as I stay away from gluten I am pain and bleeding free. Can't say it will be the same for you. If you want a diagnosis of celiac from the GI you need to go back on gluten for a couple of months. If you just can't stand the pain of that then keep in mind we don't need a doctors permission to be gluten free.

True. But is it possible that the gluten has damaged them somehow? And that it could have caused some other medical condition that we should know about? I mean kidneys are very important. :)

ravenwoodglass Mentor

True. But is it possible that the gluten has damaged them somehow? And that it could have caused some other medical condition that we should know about? I mean kidneys are very important. :)

If you are continueing to have pain and blood in your urine and possible problems with your kidney that are concerning you then it might be a good idea to see a nephrologist. They specialize in kidney issues. If your symptoms have been relieved with the diet then IMHO it would be counterproductive to gluten yourself for the 2 or 3 months it would take to see a GI and possibly end up still with a false negative on celiac testing.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,904
    • Most Online (within 30 mins)
      7,748

    Lizsan
    Newest Member
    Lizsan
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Shining My Light
      @trents I’m pretty sure what I’m left with when separating celiac to other causes is my 10% being a virus. The one I had about 3 weeks before taking this TTG test. Everything I’ve read says type 1 diabetes, rheumatoid arthritis, hepatitis and some viruses are what could cause the elevation. The other blood tests I had I can compare things against.  I’m going to give your article a thorough read. My support in my circle is very small at the moment.  @knitty kitty I think before EGD I would like to do the DNA test. I’m going to start keeping a better journal also.  I’ve read a crazy amount of these “articles” - these two I’ve not seen. Some articles spell celiac differently. Thank you for sharing! I’m gonna dive into those.   I started seeing the functional medicine doctors from fluctuations in my hormones and major anxiety. Recently I realize it’s mostly health anxiety also so this is more challenging to depict real from imaginary thus all the research and the back and forth. I know anxiety to be a common symptom in perimenopause. I’ve fought it my whole life however. Likely due to lots of different trauma but seeing her was my last ditch effort to try something to avoid SSRIs, HRT, etc. She told me not to blame everything on my hormones when there could be an underlying problem, so she ran some tests to see if anything stood out. The TGG tests stood out.  I do find it very interesting now that I think about it that I don’t desire bread, pasta and pizza. Sometimes yes, but mostly no. I guess I didn’t give that much thought. Also didn’t realize that those foods do contain more gluten than the tortillas and cake/baked goods. About 3 months ago I started ordering meal kits to make dinner easier. I went back over the menus that I picked. I have probably had bread and pasta a hand full of times over the last couple months prior to having that blood test. We used to get pizza every Friday and stopped doing that also. I’m all fairness about 2 months leading up to these blood tests I had less gluten containing foods than I thought.    I’ve been praying for wisdom. Thankful to find some counsel from people who I believe have dove harder into this than most doctors have. Thanks for all the advice. It’s appreciated more than you know. 💕
    • Alibu
      @knitty kitty My whole family has migraines and I started getting them at age 19, so I'm not sure mine are related to gluten, although I do feel like obviously the more inflamed my whole system is, the more likely I am to suffer from more of these things.
    • knitty kitty
      @Alibu, Just wanted to add... Migraines can be caused by thiamine insufficiency.  I used to have them, regularly, but haven't since supplementing with thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and Magnesium Threonate.  These forms get into the brain easily and really improve migraines.  I do still get Ophthalmic migraines which are triggered by computer screens.  It's permanent damage from nutritional deficiencies.  An Erythrocyte Transketolace test is a more accurate test for sufficient thiamine. Keep us posted on your progress!
    • Alibu
      @knitty kitty Thank you for those, I will definitely bring them up!  I did send a message to my doctor basically asking what they think so I'll go from there.  He may very well just decide that this was enough to diagnose celiac, but I have no clue what his thoughts are right now.  I also asked for a second opinion on the pathology.
    • knitty kitty
      @HilaryM, Are you eating a diet high in carbohydrates?  You might find a Paleo diet easier on your digestive system.  A Paleo diet can promote changes in  intestinal flora, effectively starving out SIBO bacteria.   Be wary of gluten free processed foods.  Many are not enriched or fortified with vitamins and minerals lost in processing like gluten containing foods are.  Talk to your doctor and nutritionist about supplementing with vitamins and minerals while healing.  Vitamins are organic compounds that the body cannot make and so must get from the diet.   Supplementing ensures our bodies get a fair chance to absorb the essential nutrients it needs.  
×
×
  • Create New...