Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Going Through All The Testing..,


Scphotomom

Recommended Posts

Scphotomom Newbie

I am 31 years old and I'm not really sure how long I have been having bowel issues. I know at least since I was 25 or 26 I have had episodes where I would cramp with unbelievable pain and have diarrhea. I've also had years of feeling a gnawing in the pit of my stomach that I wasn't sure if it was hunger pain or digestion. I was also diagnosed with type 1 diabetes when i was 9 years old and hypothyroidism when i was 23.

About four months ago I had a baby and five days after his birth began having bloody stools accompanied with rotating bouts of constipation and diarrhea.

I had a catscan done and it showed an enlarged liver, spleen and a thickened rectal lining.

Little more history, about 6 months ago my mom began presenting with constipation, lethargy, hives, nauseousness and upon examination an enlarged liver. Doctors decided hers was viral and put her on prednisone and a laxative to control symptoms.

I see a doctor who tells me I have ulcerative colitis and NASH, just by looking at my chart. He dismissed any correlation between mine and my moms symptoms. Told me my issue was I was just obese with a bad diet. Im actually pretty health concious when it comes to food, just consume more calories than I burn off so I dont see how diet caused this.

Saw a second doctor last week who is running a liver enzyme test as well as checking my stool sample. Will do a colonoscopy based on the results of those test

My cousins girlfriend said she had been watching my symptoms on Facebook and said she has celiacs disease and a lot of the things I talk about remind her of that. She sent me a list of symptoms, associated diseases and complications

I had almost all of them and some of the associated diseases.

Tingling in my hands and feet

unexplained Anemia

Bone and joint pain

Infertility

Fatigue

Depression

Anxiety

Diarrhea

Bloating

Gas

Migraines

Just to name a few

Can celiacs cause ulcerative colitis? Would it cause the gnawing in my stomach? Liver spleen issues?

Sadly, my four month old breastfed son seems to be effected the same way by the things I eat.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



soupmonger Newbie

Little more history, about 6 months ago my mom began presenting with constipation, lethargy, hives, nauseousness and upon examination an enlarged liver. Doctors decided hers was viral and put her on prednisone and a laxative to control symptoms.

I see a doctor who tells me I have ulcerative colitis and NASH, just by looking at my chart. He dismissed any correlation between mine and my moms symptoms. Told me my issue was I was just obese with a bad diet. Im actually pretty health concious when it comes to food, just consume more calories than I burn off so I dont see how diet caused this.

Do you by any chance share a home with your mother? It occurred to me that it might be something environmental... Chemicals, toxic mold or something of that nature perhaps. Maybe even something in the fridge that has been contaminated with bacteria or household cleaners. I have no medical training whatsoever though, it's just an idea. In either case it is not surprising that your baby is affected, as many chemicals and even antibodies pass from breast milk to the baby. If it IS an allergy, your baby might still get sick from it even if he is not allergic himself... but I think that puts him at higher risk for developing an allergy, if I am not mistaken.

Anyway I hope you get some answers quickly so you and your family can start feeling better and be safe.

  • 3 weeks later...
Scphotomom Newbie

No, we do not live together and very seldom see each other.

I was seen by a new doctor who took a fecal sample and did more blood work. He said I do have a fatty liver. But the stomach problems, not so sure whats causing them. He is going to do a colonoscopy as well as the test that goes through the top and checks for Celiacs

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Iron loss and potential celiac.

    2. - Joseph01 replied to bethmon's topic in Gluten-Free Foods, Products, Shopping & Medications
      14

      We Keep Getting Glutened With Vegetable Oil

    3. - ThomasA55 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Iron loss and potential celiac.

    4. - Aretaeus Cappadocia replied to Aretaeus Cappadocia's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Edy's and Dreyer's ice cream

    5. - knitty kitty replied to Aretaeus Cappadocia's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Edy's and Dreyer's ice cream

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,086
    • Most Online (within 30 mins)
      10,442

    Joseph01
    Newest Member
    Joseph01
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint pain before you began experimenting with a low gluten diet. Anything else?
    • Joseph01
      This is way past due for your post.  I have Celiac and have been recovering for more than a year.  Doing well.  Used Essential oil to day to fry some chicken.  Read the label all good.  Then ate some chicken.  Here comes the gluten reaction.  I haven't had a gluten reaction since year.  I am angry.   I have been so careful with this crap and don't wan't any set backs!!!!! Good luck to you with your post.   Celiac is HELL!
    • ThomasA55
      Hey everyone. I'm a young adult who had very high iron in 2024. 64% saturation 160 ferritin. In 2025 I had far lower iron. 26% saturation and 130 ferritin. I know this is still in range but it seems to be a large drop. That combined with the fact that I developed some intermittent joint pain between the two years makes me wonder if I could be celiac. My dietary intake of iron was pretty steady (mostly in the form of red meat). I did carnivore (therby eliminating gluten) for a bit after the second test and felt improvements in my joints and digestion. I still consume gluten occasionally socially, for religious reasons, and through cross contamination/food sharing. For these reasons, I would need to know if I had it, because although my lifestyle is low gluten its not at the strict level it should be if it turned out I was celiac. I will get a gene test first and hope I don't have DQ2.5,DQ2.2, or DQ8, but if I had any combination of those do you guys think I need proper screening through a gluten challenge / blood test? Other context. From 2024-2025, my b12 stayed about the same in the mid 600s folate went up slightly, but I heard it takes longer for celiac to affect the absorption of these. ANA negative, CRP low, ESR low.  I don't know how much noise exists around the saturation and ferritin, but it caught my eye and Celiac seemed like a possibility. I'm under no illusion that it is probable that I have celiac, only that it may be worth screening given my overall profile.   
    • Aretaeus Cappadocia
      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
×
×
  • Create New...