Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Help Celiac.com:
    eNewsletter
    Donate

Going Through All The Testing..,


Scphotomom

Recommended Posts

Scphotomom Newbie

I am 31 years old and I'm not really sure how long I have been having bowel issues. I know at least since I was 25 or 26 I have had episodes where I would cramp with unbelievable pain and have diarrhea. I've also had years of feeling a gnawing in the pit of my stomach that I wasn't sure if it was hunger pain or digestion. I was also diagnosed with type 1 diabetes when i was 9 years old and hypothyroidism when i was 23.

About four months ago I had a baby and five days after his birth began having bloody stools accompanied with rotating bouts of constipation and diarrhea.

I had a catscan done and it showed an enlarged liver, spleen and a thickened rectal lining.

Little more history, about 6 months ago my mom began presenting with constipation, lethargy, hives, nauseousness and upon examination an enlarged liver. Doctors decided hers was viral and put her on prednisone and a laxative to control symptoms.

I see a doctor who tells me I have ulcerative colitis and NASH, just by looking at my chart. He dismissed any correlation between mine and my moms symptoms. Told me my issue was I was just obese with a bad diet. Im actually pretty health concious when it comes to food, just consume more calories than I burn off so I dont see how diet caused this.

Saw a second doctor last week who is running a liver enzyme test as well as checking my stool sample. Will do a colonoscopy based on the results of those test

My cousins girlfriend said she had been watching my symptoms on Facebook and said she has celiacs disease and a lot of the things I talk about remind her of that. She sent me a list of symptoms, associated diseases and complications

I had almost all of them and some of the associated diseases.

Tingling in my hands and feet

unexplained Anemia

Bone and joint pain

Infertility

Fatigue

Depression

Anxiety

Diarrhea

Bloating

Gas

Migraines

Just to name a few

Can celiacs cause ulcerative colitis? Would it cause the gnawing in my stomach? Liver spleen issues?

Sadly, my four month old breastfed son seems to be effected the same way by the things I eat.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



soupmonger Newbie

Little more history, about 6 months ago my mom began presenting with constipation, lethargy, hives, nauseousness and upon examination an enlarged liver. Doctors decided hers was viral and put her on prednisone and a laxative to control symptoms.

I see a doctor who tells me I have ulcerative colitis and NASH, just by looking at my chart. He dismissed any correlation between mine and my moms symptoms. Told me my issue was I was just obese with a bad diet. Im actually pretty health concious when it comes to food, just consume more calories than I burn off so I dont see how diet caused this.

Do you by any chance share a home with your mother? It occurred to me that it might be something environmental... Chemicals, toxic mold or something of that nature perhaps. Maybe even something in the fridge that has been contaminated with bacteria or household cleaners. I have no medical training whatsoever though, it's just an idea. In either case it is not surprising that your baby is affected, as many chemicals and even antibodies pass from breast milk to the baby. If it IS an allergy, your baby might still get sick from it even if he is not allergic himself... but I think that puts him at higher risk for developing an allergy, if I am not mistaken.

Anyway I hope you get some answers quickly so you and your family can start feeling better and be safe.

Link to comment
Share on other sites
  • 3 weeks later...
Scphotomom Newbie

No, we do not live together and very seldom see each other.

I was seen by a new doctor who took a fecal sample and did more blood work. He said I do have a fatty liver. But the stomach problems, not so sure whats causing them. He is going to do a colonoscopy as well as the test that goes through the top and checks for Celiacs

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Help Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to djmu's topic in Related Issues & Disorders
      5

      Peripheral Neuropathy

    2. - Tlbaked13 replied to djmu's topic in Related Issues & Disorders
      5

      Peripheral Neuropathy

    3. - trents replied to djmu's topic in Related Issues & Disorders
      5

      Peripheral Neuropathy

    4. - shadycharacter replied to Linedancegal's topic in Introduce Yourself / Share Stuff
      5

      25 year biopsy confirmed/ate pizza with no ill effects?

    5. - Tlbaked13 replied to djmu's topic in Related Issues & Disorders
      5

      Peripheral Neuropathy


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,467
    • Most Online (within 30 mins)
      7,748

    MorticiaCat
    Newest Member
    MorticiaCat
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Hi Tibaked If you are diagnosed with coeliac disease, you may find that all sorts of symptoms will be alleviated by a gluten free diet.  GERD and lactose intolerance can be greatly reduced if not eliminated once the gluten-free diet is adopted.  However, if you want to be tested and officially diagnosed you will need to have been consuming gluten until your blood test/endoscopy.   Although I don't have the same sensations you describe before my diagnosis, I frequently woke up with numb arms and numb fingers.  I could feel pins and needles in my extremities.  Weirdest of all, the sensation that drops of cold water, like rain, were falling on me, even though the sun was shining or I was indoors. It took time but things got much better after after following a gluten free diet for a while. Of course,  some neuropathy is caused by malnutrition, common in coeliacs when first diagnosed,  so make sure the doctor checks your vitamin (particularly B12) and iron levels. Cristiana
    • Tlbaked13
      Not officially diagnosed yet I goto the doctor a week from today but I'm 110% that will be the diagnosis I honestly can't believe my doctors/health care team hasn't put it together before I mean I'm basically the live and walking definition straight from the book haha I don't think I've ever been so sure on anything before I'm just reqly concerned for this diet I will be living on or diets I guess due to type 1 diabetes, gastroparesis, gerd, celiac disease, and lactose intolerance...what is left? A sand salad with a side of rain water?!? I definitely see a tough future
    • trents
      Welcome to the forum, @Tlbaked13! Have you been officially diagnosed with celiac disease? It is well-known that celiac disease can result in peripheral neuropathy but so can diabetes. 
    • shadycharacter
      Lactic acid bacteria start to develop as soon as flour and water are mixed, so I assumed that in a yeast dough with long proofing time there could be some effect of fermentation and gluten break down. 
    • Tlbaked13
      I am COMPLETELY new to this celiac disease however I have had the same feelings and then some with my feet for years now and been diagnosed with peripheral neuropathy myself but they blamed and attempted to treat due from my type 1 diabetes and none of the treatment has helped at all so far so possible from celiac disease? Just sharing MY thoughts on this I've had zero confirmation 
×
×
  • Create New...