Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Graves Disease


KaitiUSA

Recommended Posts

KaitiUSA Enthusiast

For those of you that know I was dignosed with Graves Disease(hyperthyroid) in March of this year because my levels were slightly off. It has been off since before I was diagnosed with celiac. Anyway, it was in beginning stages so I did not need treatment until levels increased.

Well I went in this month for a checkup to see where levels were and levels went back to completely normal. This surprised us all but obviously the gluten free diet allowed in not to get worse before (as it was off before I was diagnosed and then stabalized when I got on the diet)and now helped get the levels back to normal.

My doctor is still convinced that I have Graves Disease in beginning stages and she thinks that it will show dramatically in one of my blood tests sooner or later so they will check it every 3 months or so.

For now, I will just be happy not having to take drugs...I do think I have a minor thyroid issue still because I do have a few minor symptoms but way better then before I will say.

I just wanted to share that the diet can make a difference in other disorders that may have been caused by celiac. :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest nini

YAY!!!!! So happy for you Kaiti!!!!!

SueC Explorer

Hi Kaiti,

That is very good news!! I treat alot of people with Graves Disease. I work in Nuclear Medicine and we do alot of the diagnosing (along with the bloodwork) and radioactive Iodine thearapies for Graves. It is never good to have it but it is treatable for those who do. I am glad your levels normalized and hopefully they will stay that way. Just keep a close eye on your TSH. If it starts to drop you may want to have a thyroid scan and uptake done.

Sue

Guest mlwaller

Congrats!! That is fabulous. My mother had her thyroid removed years ago after struggling with graves disease, I wish we would have found out sooner that we had celiac and she could have seen the effect it might have had. My sister was also just dx'd with graves this spring, after giving birth. I have finally convinced her to get a blood test for celiac disease after sharing articles from this board about the connection. I will tell her about your update! Hope everything stays good for ya! Best wishes,

KaitiUSA Enthusiast
Hi Kaiti,

That is very good news!! I treat alot of people with Graves Disease. I work in Nuclear Medicine and we do alot of the diagnosing (along with the bloodwork) and radioactive Iodine thearapies for Graves. It is never good to have it but it is treatable for those who do. I am glad your levels normalized and hopefully they will stay that way. Just keep a close eye on your TSH. If it starts to drop you may want to have a thyroid scan and uptake done.

Sue

<{POST_SNAPBACK}>

Thanks everyone :D

Sue-

I will definitely be keeping an eye on it. The TSH was down pretty low for a while and then once I got on the diet it stabalized and never got worse. The TSH this time around went up but its still on the lower side of normal(just barely normal..but nevertheless it still went up :D ) so it is something to for sure keep an eye on especially since I still have minor symptoms of it.

Thanks for the advice on it...its good to know people from this board who are familiar with it and treatment.

I know it's treatable but I would much rather have it treated this way then have to get drugs or anything radioactive but hey you got to do what you got to do to keep yourself healthy so if it comes to that I will get it treated after looking at options

SueC Explorer

Hopefully things will just keep getting better on their own! :) I agree with you that I would much rather treat without drugs of any kind but it is good to know there are some treatments out there. Keep us posted! and if you need any info on the treatments I would be glad to help (hopefully you won't :) )

Sue

KaitiUSA Enthusiast
Hopefully things will just keep getting better on their own! :)  I agree with you that I would much rather treat without drugs of any kind but it is good to know there are some treatments out there. Keep us posted! and if you need any info on the treatments I would be glad to help (hopefully you won't  :) )

Sue

<{POST_SNAPBACK}>

Thanks so much Sue. I will definitely be in contact with you about that if things take that direction. :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



watkinson Apprentice

Hi Katie,

Actually I was HypOthyriod before I got diagnosed for Celiacs. It also cleared up by itself in about 6-9 months after going gluten-free. I actually lost about 25 pounds effortlessly. My doctor explained that because I was so nutrient deffient that my body thought I was starving, so it shut down and treid to hang onto all the fat it could. I ended up at the same weight I was before I started getting sick about 120-125.

It's funny...it seems like a reasonable expaination, but then why do celiacs also go hypErthyroid?

Our bodies are amazing, God has his way of challenging each one of us in our own way. I am thankful also to not have to have gone on meds, and am thankful you are off of them.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Aretaeus Cappadocia replied to Jmartes71's topic in Dermatitis Herpetiformis
      2

      Skin issues

    2. - nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

    3. - trents replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

    4. - nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

    5. - Russ H replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,046
    • Most Online (within 30 mins)
      10,442

    Urquhart
    Newest Member
    Urquhart
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
    • nancydrewandtheceliacclue
      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
    • trents
      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
    • nancydrewandtheceliacclue
      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
    • Russ H
      The sensitivity of people with coeliac disease varies greatly between individuals. The generally accepted as safe limit for most people is 10 milligrams per day. This equates to a piece of bread the size of a small pea. Some people report that they are more sensitive than this, but others can very occasionally eat a normal gluten containing meal without reacting. I don't think that touching or throwing bread around would lead to you ingesting enough to cause a reaction. There are case reports of farmers with coeliac disease reacting to the dust from gluten-containing animal feed but they were inhaling large amounts of dust over a long period of time in barns. Perhaps you episodes are caused by a reaction to something other than gluten? Have you had your antibody levels checked to see whether you are still being exposed to gluten?
×
×
  • Create New...