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Celiac And Seizures


Guest maybird85

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Guest maybird85

i have been doing some research on celiac and saw that there may be some sort of connection between seizure disorders and celiac. i was diagnosed with epilepsy when i was six but my doctors have never been able to pinpoint the cause or exactly what type of seizures they are. i was just wondering if anyone here has seizures and if there is any information out there on this.


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Carriefaith Enthusiast

I have read that seizures are a complication of celiac disease:

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Claire Collaborator

I was just about to log out when I saw your post. Yes, here is a celiac/seizure connection. There is a lot of information on the internet and in books and neurological papers on the subject. If you write a good search you should find plenty of information.

I am in limbo on diagnosis as the moment - after many years of battling symptoms and doctors. I do have what is believed to be 'partial seizures' - no visible symptoms, no lose of consciousness. I have these 'spells' infrequently for almost twenty years. I respond negatively to florescents, strobe lights, fast moving video/film etc. - much the same as epileptics.

I have a diagnosis of spinocerebellar ataxia but type and cause is not known - yet. It is either genetic itself or is secondary to celiac. The drama continues.

Let me know how you make out with your investigation of this. Claire

Guest nini

After having a CT scan and other tests, when I was 14, I was dx with "non specific seizure disorder", prior to my dx of celiac, my seizures started to get bad again. They would happen when I was asleep OR awake, and usually only lasted a few seconds, but I would completely forget what was happening right before the seizure, what I was saying, what other's were saying, etc... I was on Dilantin for several years as a teenager, but it didn't really help. When I went gluten-free, the seizures STOPPED! My dad was dx with Epilepsy when he was a teen and he is also doing well on the gluten-free diet.

tammy Community Regular

There can be a connection between hormones too. Natural progesterone can be a wonderful tool for females with seizures and celiac. :D

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    • Aretaeus Cappadocia
      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
    • nancydrewandtheceliacclue
      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
    • trents
      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
    • nancydrewandtheceliacclue
      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
    • Russ H
      The sensitivity of people with coeliac disease varies greatly between individuals. The generally accepted as safe limit for most people is 10 milligrams per day. This equates to a piece of bread the size of a small pea. Some people report that they are more sensitive than this, but others can very occasionally eat a normal gluten containing meal without reacting. I don't think that touching or throwing bread around would lead to you ingesting enough to cause a reaction. There are case reports of farmers with coeliac disease reacting to the dust from gluten-containing animal feed but they were inhaling large amounts of dust over a long period of time in barns. Perhaps you episodes are caused by a reaction to something other than gluten? Have you had your antibody levels checked to see whether you are still being exposed to gluten?
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