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Claire

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Claire last won the day on April 26 2019

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  1. Many people like me who have neurological damage develop swallowing problems. So far I have only the ataxia and hopefully being gluten-free will stop further progression of the problem. I will hunt up some articles that I have on the subject. Claire
  2. To lightbeam: Please do not misunderstand me. I do not mean to be rude but I question doctors as a matter of principal. I am a no longer practicing Rehab therapist so I have some experience also to back me up. You say "The FINALLY I had an MRI and the cause was found--I have MS too" The...
  3. Consider also that what is being described here by so many may well be an ataxia. Ataxia is a neurological disorder caused by damage to the cerebellum - the part of the brain that controls gait, balance, swallowing, speech, etc. . It can have many causes but is found in both celiac and gluten sensitivity...
  4. I know that feeling - especially the missing out on the whole day part. Several months ago I started taking CoQ10 - it's an enzyme. For me the difference has been amazing. I am not running any races to be sure but I am not in bed all day either. I am getting more done and not feeling the overwheilming...
  5. This is about the drug being developed for the treatment of celiac and other autoimmune diseases. Is AT1001 the Answer? (from Celiac Disease: Living Gluten Free) Alessio Fasano, MD, was recently appointed director of the new Mucosal Biology Research Center at the University of Maryland...
  6. Thanks so much for the encouragement. No, I certainly will not give up. I am frustrated and impatient - still pursuing every possible angle. Tomorrow I have my yearly appointment with my retinal specialist. I will be asking him to look for any retinal damage. This might be present if I have...
  7. For those reading this thread, I am reposting below what is already posted under a separate topic - Ironic. I am sure all you suffering as well as recovering celiacs will think I am bit 'off' to be disappointed but I definitely am. Depressed in fact. My genetic test came back from Kimball...
  8. It is posted in the New Posts for today.. Thanks for your interest. "hedge' - that's funny. Claire
  9. For those who have talked me on the subject of ataxia, I have posted a new topic dealing with the results of my genetic test - Kimball Labs. Look for title Ironic. Claire
  10. I only just saw this post. Maybe you are still tracking it. Your Naturopath is not doing so well. She should know that hair loss is frequently caused by Celiac. Also telling you that you could still eat "barley and kamut, oats, etc." is negligent. These foods are absolutely not gluten-free (except...
  11. http://brain.hastypastry.net/forums I was trained in a pilot program for OT/PT. I came to that as an undocumented Recreation Therapist - long story there. The Occupation and PhysicalTherapy training has a lot of overlap so this was a wonderful concept- one well received in the Rehab community...
  12. Hi George. Thanks for the message. What you say about Kimball is true of course. I must admit to trying to do this 'on the cheap' I can get insurance coverage for Kimball and not for Enterolab. I know I have a gluten problem. The grain issue was found a long time ago. If this test does not show...
  13. I said I would tell you about the neurological testing experience at NIH. I had the great NIH excursion yesterday. It was, as I expected, the medical version of the Inquisition. Initially you read and sign all the paperwork that acknowledges that you are now a research subject. I was questioned...
  14. So true. That stuff is everywhere! I think you will find, as time goes on, that the temptation diminishes. If you give in to the temptation you may find that the forbidden food doesn't taste nearly as good as you anticipated. It is like being on a restricted salt diet. You get something that...
  15. Glad to hear another voice for gluten-free - not just a little bit gluten free. It must be a total withdrawal from this poison. It is that you know - for those whose are sensitive to it. Those numbers will continue to grow as technology messes with the basic nature of foods and as we move to a diet...