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Gf In Ny?


IrishGirl71

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IrishGirl71 Rookie

I hear a lot of talk about people starting Celiac support groups, etc.

I'd just love to talk to some people regularly who are living gluten-free -

particularly people in Long Island, NYC, anywhere nearby...


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celiac3270 Collaborator

About 200 people in NYC area:

Open Original Shared Link

Or join the Westchester Celiac Sprue Support Group -- they sometimes have dinners and stuff in Manhattan, an annual picnic in Westchester somewhere, and meetings scattered.

Cory Newbie
I hear a lot of talk about people starting Celiac support groups, etc.

I'd just love to talk to some people regularly who are living gluten-free -

particularly people in Long Island, NYC, anywhere nearby...

<{POST_SNAPBACK}>

I may not have to live gluten-free, but my girlfriend does. I am in norther NY. There are support groups here. Let me know if you want me to put you in touch with any of them.

lindalr Newbie
I may not have to live gluten-free, but my girlfriend does.  I am in norther NY. There are support groups here. Let me know if you want me to put you in touch with any of them.

<{POST_SNAPBACK}>

I live in central NYS. There is a support group in Utica area, as well as, in Syracuse and other places. Some are just starting off the ground.

You can find one on the web or get in touch with a support group in existence.

There should be several groups in the NYC and LI area by this time.

GFKryptonian Newbie

Whats up guys..i just signed up for this board because my mom told me about this site ;] I am 20 years old from Long Island, NY. Although I am currently living in Providence, Rhode Island at JW University. I was diagnosed with celiac disease about 5 years ago. I never knew there was a celiac site or support groups, or that this many people had the disease!

Cory Newbie
Whats up guys..i just signed up for this board because my mom told me about this site ;]  I am 20 years old from Long Island, NY.  Although I am currently living in Providence, Rhode Island at JW University.  I was diagnosed with celiac disease about 5 years ago.  I never knew there was a celiac site or support groups, or that this many people had the disease!

<{POST_SNAPBACK}>

There are more people than most realize. Not only is this site for the ones that have Celiacs but for the families and love ones that deal with it every day. It is benificial to all of us to be able to talk out ideas. I am from NY but upstate. There are others in your area surely. Check with the local dr office or hospitals they usually have ideas on where to go to meet others that have celiacs.

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    • nancydrewandtheceliacclue
      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
    • Russ H
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