Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Other Food Allergies Or Something Else


Clarise49

Recommended Posts

Clarise49 Rookie

Hi everyone. I have been gluten free for a little over two years and casein free for about let's say a year and half. I still get sick all the time and I'm careful of what I eat and am specific when I go places about how my food should be. I still get diarrhea all the time and so I am wondering if I could have some other food allergy or if it's something else. If anyone has any ideas I would greatly appreciate it. Thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



LauraZ Rookie

Hi Clarise,

My daughters and I had been struggling with a wide range of symptoms and it wasn't until recently that we related them all to food. The most helpful test to us was the ELISA blood panel, which will test your blood for reactions to about 100 different foods. In addition to picking up gluten and dairy problems, it also picked up eggs, peanuts, sesame and sugar.

Here is some more information about it. Most naturopaths are aware of this test:

Open Original Shared Link

Good luck. I know how frustrating it can be...

Laura

Clarise49 Rookie

Thanks for the information. I hope it will some of it.

tarnalberry Community Regular

You say "when you go somewhere"; does that mean you eat out fairly often? Even if you are very specific, you may be getting cross-contamination. Do your symptoms coincide with eating out, or do you eat out (or anywhere where you have not prepared your own foods) too frequently to tell?

Clarise49 Rookie
You say "when you go somewhere"; does that mean you eat out fairly often?  Even if you are very specific, you may be getting cross-contamination.  Do your symptoms coincide with eating out, or do you eat out (or anywhere where you have not prepared your own foods) too frequently to tell?

<{POST_SNAPBACK}>

No not very often, but just when I have anything even if I fix it myself I still get sick. No I hardly ever eat out. But I've just started college two weeks ago and every day I have been sick to my stomach. It is no fun. I don't know. Maybe I'll just need to talk someone at school about preparing the food.

bluelotus Contributor
Hi everyone. I have been gluten free for a little over two years and casein free for about let's say a year and half. I still get sick all the time and I'm careful of what I eat and am specific when I go places about how my food should be. I still get diarrhea all the time and so I am wondering if I could have some other food allergy or if it's something else. If anyone has any ideas I would greatly appreciate it. Thanks

<{POST_SNAPBACK}>

Have you ever tried eliminating corn? Sorry for those of you that have read my recent posts - a bit redundant. I eliminated it this week and it seems to have helped me (that is, until this afternoon when I made a mistake and accidently ate some). Most of my gluten-free cereals and snacks had corn in them, and, of course, corn syrup and starch are so ubiquitous. Its very hard to avoid. And yet, with the frequent exposure, I am not suprised that so many develop allergies to it. With corn, I was having the typical bathroom/stomach issues and fatigue. The stomach issues seemed to clear, though not the fatigue - who knows though, this symptom may take longer to dissipate. Also, check out some other postings that address potato and Nightshad allergies. These two (corn and potato) seem to be very common problems (aside from the dairy and eggs, that is). Good luck!

Carriefaith Enthusiast
But I've just started college two weeks ago and every day I have been sick to my stomach.
Do you have roommates? or share a kitchen with others?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Aretaeus Cappadocia replied to Jmartes71's topic in Dermatitis Herpetiformis
      2

      Skin issues

    2. - nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

    3. - trents replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

    4. - nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

    5. - Russ H replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,046
    • Most Online (within 30 mins)
      10,442

    Urquhart
    Newest Member
    Urquhart
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
    • nancydrewandtheceliacclue
      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
    • trents
      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
    • nancydrewandtheceliacclue
      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
    • Russ H
      The sensitivity of people with coeliac disease varies greatly between individuals. The generally accepted as safe limit for most people is 10 milligrams per day. This equates to a piece of bread the size of a small pea. Some people report that they are more sensitive than this, but others can very occasionally eat a normal gluten containing meal without reacting. I don't think that touching or throwing bread around would lead to you ingesting enough to cause a reaction. There are case reports of farmers with coeliac disease reacting to the dust from gluten-containing animal feed but they were inhaling large amounts of dust over a long period of time in barns. Perhaps you episodes are caused by a reaction to something other than gluten? Have you had your antibody levels checked to see whether you are still being exposed to gluten?
×
×
  • Create New...