Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Celiac Disease: An elusive diagnosis - Grand Forks Herald


Scott Adams

Recommended Posts

Scott Adams Grand Master

Open Original Shared Link

Grand Forks Herald

Celiac disease is on the rise, according to Dr. Alberto Rubio-Tapia, assistant professor of medicine at the Mayo Clinic in Rochester, Minn., who has been involved in studies on the disease. “Unfortunately, most people with celiac disease remain ...

Open Original Shared Link

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mom of Boys Rookie

"In the past, celiac disease may have been misdiagnosed as irritable bowel syndrome, or anxiety and depression."

This is partially true. In the past, but yeah, most doctors are still living in the past. It took a great deal of insistence to force my docs to test me and they found nothing. However since going gluten free, my symptoms have improved. That is, until I developed debilitating vertigo. I am guessing this is due to the fact that I no longer need the high dosages of thyroid meds and that I'm actually hyperthyroid now because of my diet restrictions. We will see as time goes on.

Another think that caught me as kind of funny is that they said that this way of eating is more expensive. Well, yes and no. I'm certainly spending more money on flour, bread, and pasta. But I'm NOT spending nearly the same amounts of money on otc medications for ailments that continued to pop up when I was eating gluten. And I've learned to adapt the things I eat so that I don't need the special flours, breads, and what-not. AND since I'm eating fresher foods that are not prepackaged, I'm eating healthier too. A savvy person with celiacs or gluten intolerance can save money by purchasing better foods while they are on sale, and simply consuming less of the pricey substitutes. Skip the sandwich. Instead, have a salad with some chicken and maybe a few Marys gone crackers. Have a steak and potato while your collegues are stuffing their faces with glutenous appetizers. Bake a small gluten free cake and carry it with you to the next birthday party. after caking your own plate, offer to share - let the guests taste your yummy cake - they are very good!

Instead of teaching people to be wary of the diagnosis, more articles should be written about the aloofness of the disease. It is hard to catch, even in someone with true celiacs, false negatives can and are being diagnosed. And the diagnosis does NOTHING. It cannot allow for special meds, offer new methods of treatment, or help patients understand the condition more thoroughly. Whether diagnosed or not, if you have a gluten intolerance, your health is truly in your hands.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - akebog posted a topic in Gluten-Free Restaurants
      0

      Fusilli Pizzeria, Miller Place, NY

    2. - nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Super Sensitive People
      12

      Celiac flare years after diagnosis

    3. - Aretaeus Cappadocia replied to nancydrewandtheceliacclue's topic in Super Sensitive People
      12

      Celiac flare years after diagnosis

    4. - Aretaeus Cappadocia replied to nancydrewandtheceliacclue's topic in Super Sensitive People
      12

      Celiac flare years after diagnosis

    5. - Peace lily commented on Scott Adams's article in Latest Research
      2

      New Study Reveals How the Immune System Learns Which Foods Are Safe to Eat

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,061
    • Most Online (within 30 mins)
      10,442

    Francisco1007
    Newest Member
    Francisco1007
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • akebog
      Very good pizzeria with small dining room in back of the restaurant. The owner's daughter has celiac & they have gluten free pizza & a gluten free menu. Some items from the regular menu can be made gluten free also. They have a lunch menu which we ordered from & my chicken with spinach & mozzarella over gluten-free penne was delicious. They also have Tuesday night pasta specials & Thursday night chicken pasta specials. We plan on going back for dinner soon.
    • nancydrewandtheceliacclue
      @Aretaeus Cappadocia and @Russ H thank you both for your helpful advice and information. I haven't seen a GI in years. They never helped me aside from my inital diagnosis. All other help has come from my own research, which is why I came here. I will be even more careful in the future. 
    • Aretaeus Cappadocia
      @nancydrewandtheceliacclue, you are welcome. After looking at this thread again, I would like to suggest that some of the other comments from @Russ H are worth following up on. The bird-bread may or may not be contributing to what you are experiencing, but it seems unlikely to be the whole story. If you have access to decent healthcare, I would write down your experiences and questions in outline form and bring this to your Dr. I suggest writing it down so you don't get distracted from telling the Dr everything you want to say while you have their attention.
    • Aretaeus Cappadocia
      @Russ H, I partly agree and partly disagree with you. After looking at it again, I would say that the slick graphic I posted overestimates the risk. Your math is solid, although I find estimates of gluten in white bread at 10-12% rather than the 8% you use. Somewhat contradicting what I wrote before, I agree with you that it would be difficult to ingest 10 mg from flinging bread.  However, I would still suggest that @nancydrewandtheceliacclue take precautions against exposure in this activity. I'm not an expert, I could easily be wrong, but if someone is experiencing symptoms and has a known exposure route, it's possible that they are susceptible to less than 10 mg / day, or it is possible that there is/are other undetected sources of exposure that together with this one are causing problems. At any rate, I would want to eliminate any exposure until symptoms are under control before I started testing the safety of potentially risky activities. Here is another representation of what 10 mg of bread would look like. https://www.glutenfreewatchdog.org/news/wp-content/uploads/2019/10/10mgGlutenCrumbsJules.jpg Full article that image came from: https://www.glutenfreewatchdog.org/news/what-does-10-mg-of-gluten-look-like/
    • nancydrewandtheceliacclue
      @Aretaeus Cappadocia thank you for your reply and the link, that is very helpful to get a visual of just how small of an amount can cause a reaction. I know I am not consuming gluten or coming into contact with gluten from any other source. I will stop touching/tossing bread outside! My diet has not changed, and I do not have reactions to the things I am currently eating, which are few in number. My auto immune reaction just seems so severe. The abdominal pain is extreme. It takes a lot out of me. I guess I will be this way for the rest of my life if I ever happen to come into contact with gluten? I appreciate the help. 
×
×
  • Create New...