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Abdominal Pain

Momma Bear

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Momma Bear Rookie
Momma Bear
Posted

I realize that with celiac comes lots of abdominal discomfort but I was curious if anyone has areas that always hurt, not just occasionally. I have two sore spots that always ache and if you put pressure on them, it's painful! My first one is near my belly button on my right side (I have a long, thin stomach according to a tech who did a barium swallow years ago, so I assume this would be near the beginning of my small intestines). The other is my lower right abdomen, near my ovary. I assumed it could be an ovarian cyst, though I've never had one, but now I wonder if it's from the celiac I've had for my entire life without knowing until recently! Does this sound typical? Anyone else here have any aches and pains that never go away? Also, did you get any answers as to what they were? I go for my scope in a few weeks, so hopefully I can start to get some answers but I know it's not going to help with the sore spot on my lower abdomen. FYI, I was diagnosed via blood test (really high anti gliadin and anti endomysial antibody levels, low vitamin D and B12... I also have DH on my scalp). II have no idea what to expect with the scope!

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kristenloeh Community Regular
kristenloeh
Posted

I've been gluten free since April and I am still getting the pains in my side that feel like kidney stones sometimes. I know it can take YEARS to completely heal, so I just know I have to take it a day at a time and be thankful for those few, occasional days of not feeling like total crap. lol.

Rainis Newbie
Rainis
Posted

I get those pains. I thought it was from trucking , that's what I do. Then I went gluten free, and felt energetic. Now I'm taking the gluten challenge, 30 plus days of daily gluten. So I can be tested. Now my pain is more noticeable, I am fatigued, and this is a new one on me, blood in the stool. Little did I know 50% of celiacs sufferers have blood in their stool. I want to end this challenge. I went to the lab today but the it was closed..

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    • akebog
      Fusilli Pizzeria, Miller Place, NY

      By akebog · Posted

      Very good pizzeria with small dining room in back of the restaurant. The owner's daughter has celiac & they have gluten free pizza & a gluten free menu. Some items from the regular menu can be made gluten free also. They have a lunch menu which we ordered from & my chicken with spinach & mozzarella over gluten-free penne was delicious. They also have Tuesday night pasta specials & Thursday night chicken pasta specials. We plan on going back for dinner soon.
    • nancydrewandtheceliacclue
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      @Aretaeus Cappadocia and @Russ H thank you both for your helpful advice and information. I haven't seen a GI in years. They never helped me aside from my inital diagnosis. All other help has come from my own research, which is why I came here. I will be even more careful in the future. 
    • Aretaeus Cappadocia
      Celiac flare years after diagnosis

      By Aretaeus Cappadocia · Posted

      @nancydrewandtheceliacclue, you are welcome. After looking at this thread again, I would like to suggest that some of the other comments from @Russ H are worth following up on. The bird-bread may or may not be contributing to what you are experiencing, but it seems unlikely to be the whole story. If you have access to decent healthcare, I would write down your experiences and questions in outline form and bring this to your Dr. I suggest writing it down so you don't get distracted from telling the Dr everything you want to say while you have their attention.
    • Aretaeus Cappadocia
      Celiac flare years after diagnosis

      By Aretaeus Cappadocia · Posted

      @Russ H, I partly agree and partly disagree with you. After looking at it again, I would say that the slick graphic I posted overestimates the risk. Your math is solid, although I find estimates of gluten in white bread at 10-12% rather than the 8% you use. Somewhat contradicting what I wrote before, I agree with you that it would be difficult to ingest 10 mg from flinging bread.  However, I would still suggest that @nancydrewandtheceliacclue take precautions against exposure in this activity. I'm not an expert, I could easily be wrong, but if someone is experiencing symptoms and has a known exposure route, it's possible that they are susceptible to less than 10 mg / day, or it is possible that there is/are other undetected sources of exposure that together with this one are causing problems. At any rate, I would want to eliminate any exposure until symptoms are under control before I started testing the safety of potentially risky activities. Here is another representation of what 10 mg of bread would look like. https://www.glutenfreewatchdog.org/news/wp-content/uploads/2019/10/10mgGlutenCrumbsJules.jpg Full article that image came from: https://www.glutenfreewatchdog.org/news/what-does-10-mg-of-gluten-look-like/
    • nancydrewandtheceliacclue
      Celiac flare years after diagnosis

      By nancydrewandtheceliacclue · Posted

      @Aretaeus Cappadocia thank you for your reply and the link, that is very helpful to get a visual of just how small of an amount can cause a reaction. I know I am not consuming gluten or coming into contact with gluten from any other source. I will stop touching/tossing bread outside! My diet has not changed, and I do not have reactions to the things I am currently eating, which are few in number. My auto immune reaction just seems so severe. The abdominal pain is extreme. It takes a lot out of me. I guess I will be this way for the rest of my life if I ever happen to come into contact with gluten? I appreciate the help. 
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