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mom2sidkid

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mom2sidkid Newbie

Hello everyone! My 5 y.o dd was just diagnosed 2 weeks ago, and my 14 m.o. dd just had blood work done today. My 5y.o. presented with very slow weight gain (she weighs in at 37 pounds), very-very dry skin, ADD (dx'ed the same day as the blood resluts came in 2 weeks ago!) frequent mood swings, poor school preformance, and craving carbs. She also has a disorder called Sensory Intergration Dysfunction. (hense mom2SIDkid). We removed gluten at the very time of confirmed blood test. (Dr. did not do a biopsy at this time) It's been a little rough going to say the least. BUT, My dd's eye have been shining much brighter, dark circles are definatly less, and she is talking SO much!!!

Having a few problems finding good things to eat, so much of her past diet was bread type products, and most of what she will eat now is loaded with sugar. (have not found decent gluten-free bread or bread mix). Because of her sensory issues there are things that she completely avoids eating because of how it feels. (in her mouth or hands)

I am glad to meet all of you, and to know that I am not alone in helping my dd (possibly dd's!)


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lauradawn Explorer

I don't have alot of experience regarding the ADD or mood behaviors, but I love a gluten-free bread mix I get. It's from Bob's Red Mill Wonderful gluten-free bread mix. It's very easy and tastes great! It freezes well too.

Hope this helps.

There are many recipes on this site...

Welcome!

SadiesMomma Apprentice

I have tried and use daily a bread from "Food For Life"... there are several types (flavors) so find one she'd enjoy. Does she like raisins? They have a cinnimon and raisin one. I particularily like the white rice or brown rice. They are pre-made and take moments to toast and have a nice little snack or with your meal. Its not light and fluffy like normal bread but I have grown to enjoy it very much.

Or here is a recipie for some bread:

Yeast-Free Sandwich Bread

1 cup brown rice flour or garbanzo/fava bean flour

2/3 cup potato starch

1/2 cup tapioca flour

3 tablespoons honey or sugar

2 tsp. xanthan gum

2 tsp. baking powder

1 tsp. salt

1/2 tsp. unflavored gelatin

1/4 tsp. potato flour

2 large eggs, lightly beaten or 1/2 cup soft silken tofu, creamed

1 cup milk (cow, soy, or rice)

1/4 cup melted butter or vegetable oil

Grease two 5x3 inch non-stick pans, or a 9x5 inch non-stick pan.

Preheat oven to 375degrees F.

Copmobine dry ingredients in large mixing bowl. With electric mixer on low, add remaining ingredients and mix until smooth.

Spoon in prepared pans, smooth top with wet spatula (if necessairy), and bake small pans for 45-50 minutes, large pan for 50-55 minutes until top is deeply brown and loaf sounds crisp when tapped. Don't underbake. cool completely on wire rack before slicing eith electric knife. Serves 12.

NOTE: Sugar may be reduced but crust will be rougher and flavor somewhat diminished.

Yeast-Free Dill Onion Bread: Add one teaspoon dillweed, 1 1/2 tsp dillseed, and 1Tbsp dry minced onion.

Enjoy, lemme know how it turns out if anyone tries it. I just got the cookbook and havent tried it yet. Yumm cant wait though!

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    • Aretaeus Cappadocia
      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
    • nancydrewandtheceliacclue
      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
    • trents
      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
    • nancydrewandtheceliacclue
      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
    • Russ H
      The sensitivity of people with coeliac disease varies greatly between individuals. The generally accepted as safe limit for most people is 10 milligrams per day. This equates to a piece of bread the size of a small pea. Some people report that they are more sensitive than this, but others can very occasionally eat a normal gluten containing meal without reacting. I don't think that touching or throwing bread around would lead to you ingesting enough to cause a reaction. There are case reports of farmers with coeliac disease reacting to the dust from gluten-containing animal feed but they were inhaling large amounts of dust over a long period of time in barns. Perhaps you episodes are caused by a reaction to something other than gluten? Have you had your antibody levels checked to see whether you are still being exposed to gluten?
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