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silk

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silk last won the day on July 23 2016

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About silk

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    Female
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    Nebraska

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  1. My daughter, who is almost 21 and has celiac disease, was diagnosed with Epilepsy a year ago. Hindsight being 20/20, we realized she had been having seizure since she was a teenager but the random passing out and feelings of being 'out of it' were attributed to dehydration or poor nutrition and sleep...
  2. I have also reacted to various Planters products, believing them to be safe because gluten is not listed in the allergens but have had almost identical reactions to yours. It did not occur to me that I might be getting zapped from them until just recently when I ate some of their Salt and Vinegar...
  3. I laughed out loud at the 'little notebook' comment!? It has been interesting to see how much progress has actually been made over the past 10 years that there is even a notebook to be offered or a restaurant to eat in that will accommodate our 'allergy'. 10 years ago I feared that I would never...
  4. As I stated, my children were accommodated at school and have also been accommodated in the hospital without requiring proof from a doctor to do so but I understand that requirements may be different elsewhere.
  5. I have never had endoscopy or blood work done but was told by my doctor, after several other tests (been so long ago that I can't remember what all they did) that based on my symptoms and the fact that they ended when I discontinued eating gluten and other conditions that I have (one being early...
  6. I have celiac disease and have been gluten-free for almost 10 years.  I am extremely sensitive to gluten, noting that I react within 15 minutes of contact and in fact the doctor suspects that there may also be an actual wheat allergy at play but have never bothered to be tested since I avoid it like the plague!  I am curious to know if anyone else reacts to flax or inulin?  My symptoms with those two are almost identical to gluten so I have to really watch for that in gluten-free breads and baking and recently discovered after the fact that flax was in the juice I was drinking. I know that people with gluten issues can have other problems as well and in fact I also avoid milk products.  Even after 10 years, and although it has become a way of life, it's still frustrating to have to read every ingredient on every label.?

    1. cyclinglady

      cyclinglady

      Ugh!  I, too, still have unresolved intolerances.  Xanthan Gum (added to gluten-free breads) is a biggie.  So, I have to avoid many gluten-free processed foods.  

      I think we all can relate to the bother of reading labels every single time!  ?

    2. silk

      silk

      Xanthum gum!  Yeesh!  I'm so sorry.  Knowing that is huge in gluten-free products must make your live-it (don't like the word die-it because it makes it sound as though those with celiac or gluten sensitivities eat as we do as a means of losing weight or as part of a fad!) very challenging.  I thank God that the labeling laws have progressed to requiring that allergens are clearly list.  That at least makes the label reading a bit easier. Now all we need is for the manufacturers to add a little light sex and a car chase or embezzlement intrigue into the ingredients, we could at least enjoy the 'light' reading we do while shopping!?

  7. My husband was in the military when we were married 33 years ago tomorrow. Having only been diagnosed with this 4 years ago, I did not consider how difficult this issue would be for 'our kind " as he left the service more than 20 years ago. My heart goes out to all of you. I have dined on the...
  8. Will add my two cents worth. I was also told by my pharmacist, who checked for me, that Lipitor is indeed gluten-free. I have taken it for many years and it causes me no problems. Thanks to those responsible for the heads up on gluten-free pizza crust. I think pizza is probably right up there...
  9. I have this too only the belching starts as soon as I put anything in my stomach including water. Seems to be more of a problem when I'm sitting and is even worse and more persistent after I've been glutened. I bought some papaya enzyme (gluten free) today and some gas x to try. Hope this works...