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nasalady

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nasalady last won the day on November 18 2016

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About nasalady

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    http://autoimmunediseasesgfliving.blogspot.com/
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    Central Coast of CA

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About Me

Scientist by profession (astronomer); love music!; family keeps me busy....we have two four-year-olds at the moment!

I have multiple autoimmune diseases, including Hashimoto's thyroiditis, psoriasis, asthma, and now (recently diagnosed) autoimmune hepatitis, rheumatoid arthritis, lupus, and fibromyalgia. The last four were likely triggered by Lyme disease (I was dx with Lyme Jan 2010).

There are many other serious autoimmune issues in my family, including lupus, Graves disease, and celiac disease.

In August 2008 I decided to try going gluten free to see if it would help (it did; I felt MUCH better)....but then went back on gluten for a few months to prepare for bloodwork and biopsy for celiac disease and experienced MAJOR symptoms including canker sores all over my mouth, migraines, and lots of gastric problems.

Bloodwork negative

Biopsy negative

HLA DQ8

Doctor believes my test results are negative because of the high dosages of prednisone and Imuran taken for autoimmune hepatitis. Diagnosed by dietary response, genetics, predisposition to developing autoimmune diseases, and family history of celiac disease.

Gluten free since 25 Nov 2008

  1. I agree that ZPizza's pizza is pretty blah.... However....I'm lucky enough to live near a Garlic Jim's Pizza that offers gluten free pizza, and WOW, is it good! Also, they have very good protocols in place to prevent cross-contamination; my husband and I are both extremely sensitive and we...
  2. Happy birthday and may God bless you today!

  3. McCormick's Chili Powder is safe....I use it all the time. McCormick's Chili Seasoning is different, and I've heard it may be problematic.
  4. Hi Tiff, First it was smart of you to realize that your body needs help fighting Lyme Disease; you need to be on antibiotics! I have not been diagnosed with Lyme disease, but you're definitely at the right place. I know of at least two (former) members of this board who were diagnosed with...
  5. P.S. I have celiac, and both of my pinkies end well below the final joint of the fourth finger.
  6. There was a poll on this topic (short pinky fingers) which was started a couple of years back: https://www.celiac.com/gluten-free/index.php?showtopic=38402 If you've never voted in it, please do so to improve the statistics!!
  7. Hi and welcome! Sorry about the circumstances that bring you here, though. Yes, it's very common to have thyroid issues with celiac disease. Please be aware that if you do have celiac disease, you're far more likely to have or develop other autoimmune diseases as well. Lots of us have...
  8. P.S. Everyone is descended from the same group of hunter-gatherers, and that likely means everyone will do best on the "paleo diet". Which means meat, veggies, and fruit. Period. No grains.
  9. From a post by Mother of Jibril in an earlier thread: "....according the American Red Cross, here's the prevalence of each blood type in the US population: O pos - 38% O neg - 7% A pos - 34% A neg - 6% B pos - 9% B neg - 2% AB pos - 3% AB neg -1%" O+ is the most common type. Please...
  10. My husband and I shop at Trader Joe's and Whole Foods a lot. TJ's is very good at marking their gluten free foods (including potato and corn chips) with a little "g" for gluten free. They literally have dozens if not hundreds of foods on their gluten free food list which you can download from their...
  11. Hi Laura, My husband gets the skin rash (dermatitis herpetiformis - blisters, severe itching) when he's glutened, and it takes literally WEEKS (more than a month for sure) to go away. If you have dermatitis herpetiformis (DH for short), you have celiac disease, whether or not you tested negative...
  12. Ptkds's story is my experience in a nutshell. But I'm on prednisone for autoimmune hepatitis right now....I'm hoping that when I'm off it I will start to lose. It's possible that I will have to cut out other foods too....I know that some on this board have had to eliminate most or even all grains...
  13. My husband and I are both celiacs; I've been gluten free since November and he has since January. He has severe DH right now. I didn't believe that there could be gluten in wine until both of us were glutened by a red wine (a Pinot Noir) from one of our favorite little Central Coast wineries, Claiborne...
  14. I love you mom! You're cute!