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weluvgators last won the day on March 13 2012

weluvgators had the most liked content!

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About weluvgators

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    Maintaining a "not detected" gluten free lifestyle
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  1. Please consider getting yourself tested before going gluten free or gluten free light for your nursing baby. I went gluten free for my nursing baby for similar reasons as others listed above - chiefly my sanity for caring for such a sick, fussy, miserable baby when exposed to gluten! I NEVER suspected that *I* had a gluten problem. And given your history, you may not. But I never thought that I would be unable to reintroduce gluten after going gluten free for my nursing baby. That thought just *never* occurred to me back then! I thought it was like taking a year or two off from eating apples . . . no big deal. not . . . It would have been really helpful in our family's journey for me to have had the full panel of celiac tests done *for myself* before going gluten free for my child.
  2. I found a Twizzler sub - CLIF Kid Organic Fruit Rope. It is labelled "Gluten Free".
  3. This is a "free-range" eating school district. Best we can tell, common practice in schools throughout this district is one where kids can eat anything, anywhere, anytime. Exceptions to this standard practice are few and far between (only know of one current exception, and the school has pushed hard to get that exception dismissed). This particular class activity seems to have a similar "free-range"? approach. Now, each school also has a registered nurse assigned to it (I assume, as there is a dedicated nurse at each school that we are working with). The action plans are in place, and the administrative side from a response planning perspective seems to be in good order. Best I can tell it is a "student beware" approach to allergy management. I have no clue how they manage other medical conditions. I gave up on finding other allergen free candies - we just did gluten only consideration on everything except the graham crackers and vanilla wafers so that our child would have the necessary supplies for the school project.
  4. And the history of the graham cracker, according to wiki, is intriguing! https://en.wikipedia.org/wiki/Graham_cracker
  5. And this is a great math story! So 15 boxes / class are needed, and there are four classes. I searched online to find that 20 graham crackers per box might be right . . . not like I have or will get a box to find out. Anyway, the math goes: 15 x 4 x 20 = 1,200 graham crackers. Right?
  6. weluvgators

    Apparently I need support

    You are not alone! Gluten intolerance and celiac disease can affect us each in different ways, but there are many similarities amongst groups of us - maybe genetic similarities? The fact that it is known to attack organs, and many have been implicated in different people, is just astounding to me - yet getting people to relate to its severity can be so difficult. It seems that it can be hard to comprehend when you haven't suffered personally. I was not bedridden when we figured things out, but there are several (and many that I have met along the way) that were bedridden at times due to this condition. Hopefully as awareness of gluten issues grows, fewer will have to be bedridden before the gluten free recommendation and support are provided. Sometimes the social cutoff seemed the hardest part of it all. Just when you find yourself in need of help and support, you find it difficult to explain to others how to best help you . . . and not make you worse! It can be very hard. I found really wonderful help from the Super Sensitive crowd and those that have adopted a Gluten Contamination Elimination Diet - I think that is similar/same as the "Fasano" diet. We are managing gluten issues in our family of five, so we have the benefit of having each other. But it is hard. There is a lot of medical stuff to sort through, and food sourcing and processing is a demanding task. We have been at this for over 9 years, and we continually learn more. Reaching out to others in the celiac and gluten free communities is really helpful. I really enjoyed when I was able to meet with other gluten free people in my community too. Look for a local support group, or find someone in your community that wants to start one! When we lived in Illinois, we found a chiropractor and a group of her patients that was able to start a support group. It was such a blessing! Good luck in your journey, and thanks for reaching out to us. My family enjoys meeting and hearing from others that can relate to our struggles!!
  7. King Soopers / aka Kroger was able to be an easy stop to knock out gluten free icing (not certified gluten-free - boo!) and candies (not certified, but varying degrees of gluten free certainty). The candy canes we found are from a dedicated facility free of several allergens. They are manufactured on dedicated equipment free from peanuts, tree nuts, milk, eggs, fish, shellfish, wheat or gluten. It is an unusually long statement. I just realized the "equipment" denotation vs "facility". I need a primer for identifying all of the different denotations for gluten freeness. The guy at Sprouts told me that a customer came in for his gluten hypersensitive child and had a UPC scanning app. Anyone know what is available? Did I miss a thread discussing this? My kids used some website that had a rating system for figuring out their Halloween candy. If anyone remembers discussions about gluten free rating websites and apps, links would be appreciated. as for, "Does she really understand what gluten does to your kid and what a hassle this is for you?" No. How could she? It is hard to read and hear another's history and understand their reality when it is starkly different from your own. She assured us that she would never jeopardize my daughter's safety, as she stroked my daughter's face with her hands at the end of the day of school. And my insistence at protecting my daughter's health and safety is not "going with the flow" at this school. Never mind the fact that I think there are at least three other classrooms that may be doing this exact same school project on the same day. So, even if I get her class activity gluten free, there will be a high influx of gluten contamination into her daily environment. Back to ice cream cone trees . . . do you just cover them with frosting / icing . . . only from the other thread I learned that I guess I need to learn the difference between frosting and icing. cover these things with frosting and candies? And I assume that the kids would want to eat those (done as an activity at home, not school)? I am not the decorating or baking kind . . . and honestly don't want to be, but my kids really love the stuff! And still searching for ideas on *selling* the cardboard graham cracker idea. The history of the graham cracker must be interesting . . . there is a wiki page on it. I am feeling uncertain on who to approach with the graham cracker from cardboard idea . . . the teacher? Probably, but how? Should I volunteer to make cardboard graham crackers? Of course, then I think I should do the same for all 4 classes - that is SUCH a realistic solution - but I would do it. I could probably even make some "graham style" on a stiff paperboard. Seems a bit excessive and unrealistic as a conventional solution, but anything that sells health and safety works for me! Ideas for mass production of cardboard "graham crackers" would also be appreciated! How many would I need? I can't decide if this is a realistic or ridiculous idea. I hate arts and crafts too!!
  8. Please find gluten free graham crackers that are the same size and shape that are needed because this is an actual math activity that deals with surface area, volume, perimeter, fractions (graham crackers can be divided into fourths). After looking at graham cracker options (Kinnikinnik and Pamela's), the cardboard idea for a graham cracker sounds PERFECT. Please help me sell it! Not sure if the Kinnikinnik vanilla wafers meet the specifications required. Kinnikinnik has the bonus of being nut free, so that is our leader . . . is there any "mathematical" difference between the Kinnikinnik and Pamela's graham "style" cracker? And I am also in search of icing - preferably certified gluten free. I got lost on what traditional gingerbread icing was, but it sounds like a great idea. I sourced Sprouts coconut - any opinions? There is no disclosure statement on the bag regarding gluten. Since she doesn't plan to eat it, I figured it was safe enough. But if anyone can recommend a certified gluten free brand, it would be nice to know.
  9. Thank you! All of the information has been so helpful for both myself and my daughter. There is a nut allergy in the class, so that will now shape how we move forward. We have no idea what other allergies are managed in the classroom, as they have not discussed or disclosed that information. In general, allergies are not managed at a classroom and school level through food restriction, and there are currently no restrictions on foods that can be in the school/classroom. This USA school district's allergy management plan is typically more of a student beware philosophy with a registered nurse generally present at the school.
  10. Assume there are no other allergy or medical issues to accommodate. Last I checked we were only aware of another gluten free child in her class. I have confirmation that bartfull is correct in that wafer cookie interpretation. Saw Kinnikinnik has those - any opinions or other options? Thank you!
  11. I would appreciate help identifying appropriate gluten free ingredients for the following gingerbread house school project items. In particular, I need a great gluten free graham cracker that everyone will not complain about . . . lack of stability/rigidity is my assumption of a suspected difference between "regular" and gluten free graham crackers, but please share your experiences on that. I understand that the class is using a Kleenex box base for the project, but I do not have a lot of details on the activity. We last tried Pamela's, and they were appropriate for smores, although there were several broken ones in our boxes - BUT we had travelled a lot with them, so that could have been a handling issue. I was planning to get extra boxes to accommodate some breakage. I also see the Kinnikinnick "graham style" cracker - how will that compare to traditional graham crackers? This is a "geometry" project, so I wonder if there is a traditional size for graham cracker expectation. Any other gluten free graham crackers? I didn't see any in my first search. And "Wafer Cookies - small round ones" - what are those? Not even sure that I understand what I am aiming for with that one. Nothing comes to my mind when I try to think of that in gluten free . . . OK, full list of items for the project below - your comments as to the other items that will certainly have gluten in them would also be appreciated. I also need to find something similar and gluten free for those items. Brand names for gluten free versions of questionable items would also be appreciated. Thanks so much for any help you can provide! Gingerbread House School Project Box of graham crackers Sprinkles Gumdrops M & M's red hots jelly bean Bag of Coconut (snow) Bag of Chocolate Kisses Wafer Cookies-small round ones Twizzlers-Thin pull and peel Peppermints-red and white Small candy canes
  12. weluvgators

    Ritz Crackers

    In Australia Schar has a "Salti" cracker that reminded me of what I remember about Ritz crackers. I don't understand why this cracker is not sold in USA. Please let me know if anyone can find a source in USA. Packaging looks updated from when we were last in Australia, but I assume this is still the same cracker. http://www.vivehealth.com.au/Schar-Gluten-Free-Salti-Crackers-175g.html
  13. weluvgators

    Visiting family

    We find a cutting board important too. We also travel with a small kid type plate (non-breakable) for each of us and find a fork for each of us is helpful. We travelled a lot this summer and really missed having non-disposable forks! I also travel with cleaning stuff, including a couple of dish towels and dish cloths.
  14. Yes, the CDC guidelines specify their exclusion of celiac disease. But should immediately life threatening medical conditions be treated substantially different from chronically life threatening ones?
  15. I just wanted to say that I appreciate your posts and sharing your experiences. Thank you! We have found rheumatology to be one of the more helpful disciplines when sorting through some of our more complex issues. And the rheumatologists for us were not all bad news, but they have seemed better able to understand and help us cope with some of our symptoms. I hope you are able to find doctors to help you. Sorry if I missed this, but has anyone checked your vitamin B12 status (this one can be a bit tricky, as it was for us)? Do you have a primary doctor managing your celiac diagnosis and recovery? It would be good to have a standard panel to check for any nutritional deficiencies that could be supplemented to help you recover more quickly. I understand what a long, hard, and painfully slow, bumpy road a celiac diagnosis can be! I hope you are feeling better and a bit less defeated soon. I hope your latest doctor appointment had some positives come of it.