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Latest Celiac Disease News & Research:
Everything posted by Fire Fairy
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ARCHIVED Pretty Sure Im Slowing Dying. - Past Gluten Free
Fire Fairy replied to Renegade's topic in Coping with Celiac Disease
I'm nearly 3 years gluten-free, I can tell you the first year was the hardest. It took 6 months to figure out I was intolerant to dairy, egg and soy. Now I can have all three again. I finally starting feeling alive again. It was and still is amazing. This past year has been harder for me but I think that is nothing to do with anything you might be going through... -
ARCHIVED Celiac And Perimenopause
Fire Fairy replied to alesusy's topic in Coping with Celiac Disease
I've had that too but the worrisome thing is when it happens at work when I'm standing.- 24 replies
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ARCHIVED Celiac And Perimenopause
Fire Fairy replied to alesusy's topic in Coping with Celiac Disease
Drat so that sounds like I should probably go to an doctor ASAP.- 24 replies
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ARCHIVED Celiac And Perimenopause
Fire Fairy replied to alesusy's topic in Coping with Celiac Disease
Hi I'm chiming in as a Celiac and Migraine sufferer. 90% of my Migraines disappeared after going gluten-free. Migraines require two triggers I spent over a decade knowing that and avoiding all the known triggers I possibly could but I did not realize gluten was a trigger. Two of my triggers are my hormones fluctuating during PMS (or PMDD) and barometric pressure...- 24 replies
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ARCHIVED I Need A Gluten Free Hug!
Fire Fairy replied to mamatrois's topic in Coping with Celiac Disease
I need a gluten-free hug for a different reason but I totally sympathize with yours. (((((HUGS))))) -
ARCHIVED Have You Been Told It Is All In Your Head?
Fire Fairy replied to lovechild's topic in Coping with Celiac Disease
My BFF thought my migraines were all stress! And that I was depressed. Yes great way to deal with stress and depression curling up into a ball and not moving for 13 hours. I was depressed and anytime someone said anything I was like "You try living with chronic migraine and see if you get depressed!" I have a migraine now, even gluten free I still occasionally... -
ARCHIVED What Is Your Worst Symptom When Glutened?
Fire Fairy replied to Googles's topic in Coping with Celiac Disease
I have re-occurring nightmares like that. (((hugs))) Now, never do that again. -
ARCHIVED Family Of Celiacs In Denial
Fire Fairy replied to Olive Oil's topic in Coping with Celiac Disease
My mom got the blood panel and it was negative but I think it was wrong. Show me a list of symptoms and complications from Celiac and my mom can check off over half. My brother as well. But now mom tested Negative that is likely subject closed. She's 76 this month and rapidly declining which is more upsetting because we have pretty good longevity in this... -
ARCHIVED What Is Your Worst Symptom When Glutened?
Fire Fairy replied to Googles's topic in Coping with Celiac Disease
Migraine, fatigue and a feeling of defeat. -
Okay I work retail and have actually worked as a grocery store cashier in years past. Now my first fear for you would be brain fog when dealing with money. Especially because the thieves will know you are "new" as a cashier and try to get you to make change. It's a very common scam. They trick you into giving them back more money than you actually owe them...
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ARCHIVED I'm An Idiot.......i Also Need To Speak Up!
Fire Fairy replied to MissyBB's topic in Coping with Celiac Disease
November 2nd will mark my three years of being gluten free. Last November I went to my boyfriend's parent's home for Thanksgiving. I didn't eat much as my first gluten-free Thanksgiving had been an epic fail. I did eat though as 1) I really wanted to be polite and make a good impression as this was my 1st meeting with his parents. 2) As various family members... -
ARCHIVED Dunkin Donuts gluten-free?!
Fire Fairy replied to Pegleg84's topic in Gluten-Free Restaurants
Used to have one in walking distance, closet ones now would be a special trip but still as soon as possible I'll give it a try and post my report. Just called they said they will not have them for at least another month. -
ARCHIVED Unexpected Hospital Stay And Dietary Nightmare
Fire Fairy replied to cahill's topic in Coping with Celiac Disease
The The RN should be in deep trouble as well as the "Dietitian" or whoever was supposed to give your chart to the dietitian. -
I'm almost 3 years gluten-free. We have a 6am store meeting today where a buffet of gluten foods will be provided.This is what I just dreamed in the short time I slept knowing I had to get up at 4am. Sometime after 3:05, after I feel asleep, I dreamed about big thick fresh baking biscuits. We were making tons of them and some other pastry because it...
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I used to Nair (or was it Neet) my legs. One day after many years of using it I put the stuff on, all over my legs up to about mid thigh and it started burning. I ran into the shower to wash it off and I pulled the knob out of the wall. Then I had to run to my mother's bathroom, get her out of it, and wash the Nair off. (I was not at this time or for ten...
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ARCHIVED Affordable Care Act ?
Fire Fairy replied to Fire Fairy's topic in Coping with Celiac Disease
I've heard so much from so many sources I can't keep any of it straight. My BFF being the loudest source. She went to a lecture on the affordable care act and apparently it is the best thing ever, with absolutely no draw backs. (which I think is impossible especially since things are already changing at my work as a result of the act) She thinks that I am... -
ARCHIVED Celiac Equals A Lonely Life
Fire Fairy replied to BZBee's topic in Coping with Celiac Disease
(((HUGS))) Before I was diagnosed I suspected I was dying. My best guess was a brain tumor. (the only symptoms I cared about were the neurological ones I had others but they didn't terrify me) My best friend and I met for lunch twice both times I wanted to tell her how scared I was, get her support, her thoughts on what I should do, and tell her what to do... -
ARCHIVED Affordable Care Act ?
Fire Fairy replied to Fire Fairy's topic in Coping with Celiac Disease
I have no insurance and have not been back to the Dr in 2 years. I totally don't want any invasive tests unless they are 100% necessary and as I feel certain I have Celiac I see no need for the tests. I was just worried as it seems like at one point I had read that women over a certain age would be required to have mammograms and if they can/could force us... -
Does anyone know what the Affordable Care Act will mean for un-diagnosed Celiacs like me? I am a bit afraid the Affordable Care Act will require that I go to a Dr. And when I tell him/her I'm a Celiac (without a diagnoses) what will he/she do? Will they make me be tested? If they do I'll have to go back on gluten? I've been gluten free 2 and half years and...
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I-pod at the dentist! That is awesome! Why have I never thought of that! I used to always get the happy gas but I stopped because 1) I heard one nurse at my old dentist telling the other nurse "Be sure he drills the right tooth this time." I was wishing I was a lot less loopey when I heard her say that. I then got really sick from the gas afterwards,...
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ARCHIVED The Stuff Doctors Tell Their People...sad
Fire Fairy replied to Lisa's topic in Coping with Celiac Disease
I've always wondered when the Hippocratic Oath became the hypocritical oath. -
Results from my mom's blood tests came back and the nurse read to me over the phone "No signs of Celiac disease". Now I'm sure there was more in the report, maybe that was what the Doctor wrote down to tell me. Point is when my mom had the test run she sent my dad out to buy all the gluten filled treats she loves, presumably so she could have them one last...
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ARCHIVED Second Guessing My Gluten Problem...
Fire Fairy replied to taynichaf's topic in Coping with Celiac Disease
I was already depressed prior to the first month so my MD put me on an anti-depressant the same day he told me to go gluten free once it managed to get absorbed I was a lot better. It still sucked though because I was diagnosed at the start of November and had to deal with telling the family at family get togethers, which in my family revolve around food... -
ARCHIVED The Stuff Doctors Tell Their People...sad
Fire Fairy replied to Lisa's topic in Coping with Celiac Disease
Ever want to grab a Doctor and shake him? Maybe make his brain rattle back into place. -
ARCHIVED How Do You Know It Was Gluten?
Fire Fairy replied to Ksee's topic in Coping with Celiac Disease
Wooden Spoons! If you have any old wooden spoons that were used on gluten foods wood is great about holding onto gluten. I actually had some wooden spoons made by my great uncle so I had to hand them down to another family member. ((((Hugs))))- 12 replies
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