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Fire Fairy

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Latest Celiac Disease News & Research:

Everything posted by Fire Fairy

  1. Fire Fairy
    I'm a Chattanooga girl. I wish I could help. I mean I really really wish I could give you an answer. Only thing I can help with is Access Family Pharmacy does compounding. 4062 Hixson Pike (423)-877-3568. They might even be able to help. My mom had a great GI Doc but he is semi-retired and doesn't take any new patients. (He never tested her for Celiac...
  2. Fire Fairy
    When I went a McD's they told me the fries were not safe and they didn't know of anything safe so I asked if they had the salad pre-packed with nothing but the veggies in it, and was told yes. I had a plain salad and no dressing. Not much energy but it least it made it look like I was enjoying lunch with everyone.
  3. Fire Fairy

    ARCHIVED Chickfila?

    Fire Fairy replied to eblue's topic in Gluten-Free Restaurants

    This is my only support group. Three years in and I have only met one person who is actually a gluten free Celiac. I've met several people who say they are gluten intolerant and one diagnosed Celiac all of whom still eat gluten. We have a local meet-up for Celiacs but there is usually only the guy who runs it listed as attending. I hope you have a more active...
  4. Fire Fairy
    I worked in restaurants as a hostess, and I can tell you waitstaff really don't like it if you bring your own food. That isn't what they get paid for, they feel you are taking away their money and it makes them resent you. If you've never worked in a restaurant you don't realize this but to the staff every seat has a dollar sign attached to it and your butt...
  5. Fire Fairy
    Hugs Grodeylocks. I understand how you feel. Who knows you could win a law suit but it honestly isn't a right. They should want to make you happy in order to get your money but short of that they have no other reason, if they know you will still go to games and you wont be spending money on consessions anyway they really have nothing to lose by not accommodateing...
  6. Fire Fairy
    You know what is interesting. When I was 5 I was with my mom picking my older brother up at High School and a young woman ran her car into a tree. She opened the car door and everyone was laughing at her...she fell out dead her neck was broken. As a result I was terrified of driving and refused to learn in High School I just knew I'd die behind the wheel...
  7. Fire Fairy
    I feel much better today I think the unseen factor was there was a storm coming in. I still get Migraines sometimes when I have multiple triggers hit at once. This time being PMDD and Barometric pressure drop from the storm system. Doesn't explain the events earlier in the week but it does explain why I was feeling so terrible on the 7th. Time to breathe...
  8. Fire Fairy
    So I'm getting worried something is really not right with my health. I had gone on a great vacation and felt fine the entire time. We left town on a 14 hour drive Thursday. The drive back Sunday I was tired but that seemed normal. Got back home 4am Monday (2 weeks ago this coming Monday). Since then I have felt like something is off. Had that nausea at work...
  9. Fire Fairy
    If at all possible get a new Doctor!
  10. Fire Fairy
    I used to smell a gas smell. Actually called the gas company out twice because no one was around to tell me there was no smell.
  11. Fire Fairy

    Riddle me this friends does taking a screen shot of a comment on a public forum and posting it in the same forum fall under violating this FB policy? "On Facebook people connect using their real names and identities. We ask that you refrain from publishing the personal information of others without their consent."

  12. Fire Fairy
    I work in a Home Depot and a lot of days I'm in the Garden Center. The last few times that I'm aware it happened I was in the Garden Center and no one else was around, then suddenly there were multiple customers milling around! I was just standing there and the world around me changed. I was scared by what happen and afraid of getting fired for it. Not greeting...
  13. Fire Fairy
    Thank you Kamma. I had an MRI in 2008 and there was no calcification on my brain then.
  14. Fire Fairy
    So does this mean I mat have developed Celiac Disease in childhood?
  15. Fire Fairy
    It sounds exactly like it
  16. Fire Fairy
    thank you
  17. Fire Fairy
    She is willing to try it even after her DO told us both that "Going gluten-free when you don't have Celiac Disease can cause serious health issues." I have no idea what she was talking about but I tried not to roll my eyes. Now I just need to tear apart the kitchen and go through all her meds and lotions etc. She has a lot of prescriptions. If there any...
  18. Fire Fairy
    Thank you both! Those Petite mal seizures are scary. This is very important for me to know as I had previously thought the seizures had ended in childhood. I was not aware those other events could be seizures.
  19. Fire Fairy
    Are you still eating gluten? If you went gluten-free before the test it could be false negative.
  20. Fire Fairy

    ARCHIVED Chickfila?

    Fire Fairy replied to eblue's topic in Gluten-Free Restaurants

    First off (((hugs))). It will get better. I started thinking when I first went gluten-free that some of my random reoccurring symptoms might be were a fat cell with gluten in it got used, not sure if that is realistic or not though. You could have gotten Cross Contaminated there or else where. This early in going gluten-free it's hard to say. I stopped...
  21. Fire Fairy
    When I was an infant the Doctor told my parents I was a "seizure baby" and I probably won't live more than a couple years. When I was still a small child they decided it was inner ear trouble and put tubes in my ears. I honestly can't tell you how old I was when those seizures stopped but I do know I had gotten to the point I could tell when one was coming...
  22. Fire Fairy
    Okay I have Celiac disease and I think there is a great likleyhood my mother does as well. To be honest listing all the things that have gone wrong with her health since I've been alive (39 years) is like writing a poster for Celiac symptoms and complication. Most recently she went in to have cataract surgery in November and either during or immediately after...
  23. Fire Fairy
    I know she's not the only one she just happens to be one that has a forum that our community might be able to reach and get a little education out there. We can hope anyway. I totally know what you mean about the Dr looking at you sideways, I'm going with my mother tomorrow to try to talk her Dr into running the blood test. I suggested it before and was...
  24. Fire Fairy
    Thank you everyone! I'm glad it's not just me but sorry it happens to you too. My wonderful co-workers let me stay inside. I drank a lot of tea before I went to work and um.... I'm thinking I did something wrong there. I actually had a little bit of a panic attack. I had taken 2 Advil just before I drank the tea. The Tea was a mix of fresh Meadow Sweet...
  25. Fire Fairy
    I work outside a lot in the Summer as a Garden Center cashier. I live in TN and it gets hot and humid. Before going gluten-free the Summer almost killed me. Now I've noticed this Spring when I go on break or Lunch from garden, when I come back I'm very sick to my stomach. Right now I feel particularly ill and I'm not sure if it's PMDD, Cross Contamination...
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