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researchmomma

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Latest Celiac Disease News & Research:

Everything posted by researchmomma

  1. researchmomma
    Hi MumOf2, hang in there. Just know that many times the blood tests come out negative in children. My neighbor's 18 month was negative but his biopsy was very positive. As the other poster stated, keep her on gluten diet. Funny, I could have written your post regarding the breastfeeding to milk. It caused constipation in my daughter and horrible moods...
  2. researchmomma
    We have tried every rice noodle as well. We finally landed on Schaar corn pasta and it holds up well in the thermos (I make pesto chicken pasta for my daughter with these). I also buy the tincy tiny ones to make "chicken and star soup". It is called Anneli or something like that. We find Schaar to be the best but the brown rice Tinkyada pasta with the...
  3. researchmomma
    Did you know that KRAFT mac and cheese packet is gluten free? Here's what works best for us. We take out the packet, throw out the gluten pasta. I make penne from Schaar (or brown rice spirals). While they drain I whisk together the milk, cheese packet and butter. This way it is all smooth and doesn't stick to the gluten-free pasta. Then toss...
  4. researchmomma
    The things people say are really amazing. Like Irish, we have had more than a few people say "oh, you are on that fad diet". Then there are the friends who go out of their way to accommodate and have you over for a really nice gluten free dinner (all the while asking questions to make sure they don't accidentally gluten my daughter). I have...
  5. researchmomma
    That is good!
  6. researchmomma
    The fad diet thing kills me. I heard that today "oh you are doing that too?"
  7. researchmomma
    That is funny Irish. Hey, our Priest made a point to get gluten-free host because so many of his parish are gluten free!
  8. researchmomma
    This is so funny. Go to Open Original Shared Link and scroll down to the video. It is a quick watch and super funny. I will add to the ridiculous questions and statements: My mother said to me "well she can eat white bread cuz it has less gluten, right?".
  9. researchmomma
    you showed amazing restraint. I think you need a new doctor. You should post in the Doctor thread so you can find one.
  10. researchmomma
    One thing you may want to try is calling the GI office and telling them how sick your son is and see if there are cancellations. Let them know he can't sleep and he is having trouble eating. It's worth a shot. My friend's son had to wait 7 weeks after very positive blood work to get their biopsy. There is just something wrong with that picture. Good...
  11. researchmomma
    not the Natural. That is gluten free via my research. Things change so always read the labels. But it is gluten free.
  12. researchmomma
    Welcome to the Board. Mostly, welcome to gaining your health back. I also lurked for about a month. When I posted my daughter's symptoms and how many different drugs the "ologists" wanted to put her on, the posters above and a few more jumped in and rescued my sanity (more than once I might add). I am also grateful. Sometimes I read a post by someone...
  13. researchmomma
    This is no wrench, just another example in my opinion. I know someone with this and she is being checked for Celiac. Is there a direct cause and effect with gluten and EE? Sorry for my ignorance.
  14. researchmomma
    I make a gluten-free version of Annie's Naturals Shiitake Sesame. It is really good. Why Annie couldn't use Tamari instead of Soy Sauce is really beyond me! I saute two cut up shiitake mushrooms in olive oil (small pieces). I toast about 1/4 tsp (maybe 1/2 tsp of sesame seeds) Then I mix them with: Vegetable Oil Apple Cider Vinegar (2oz) Tamari...
  15. researchmomma
    Just curious, did you get a biopsy? If you did, and that is what they told you, you need a copy of that report asap. If you have a positive biopsy then blood tests aren't even really necessary. My guess is that your transfusion probably won't effect it since it was not whole blood but I am not certain. There are others on here who probably know more...
  16. researchmomma
    Your GI may diagnose you based on symptoms alone. At least Non-Celiac Gluten Intolerant. Here are the reasons I would want a diagnosis. If these don't seem important, I would just stick to the diet and enjoy your new health: 1) Will you stick to the gluten-free diet if you don't have a Celiac diagnosis? If you eat gluten and you are Celiac, you...
  17. researchmomma
    15 inches in one year! holy smokes. I bet your pediatrician was thrilled too. Congrats.
  18. researchmomma
    ROCK may help. Also, you could have her interview Danna Korn who is the Celiac Mom guru so to speak. She lives in my hometown. PM me if you are interested.
  19. researchmomma
    Hopefully I didn't come off too strong. It is my own issue to be honest. I have a hard time getting people to understand my daughter's very strong reaction to gluten because she isn't Celiac. NCGI doesn't cause autoimmune's as far as they know. My daughter has two of them: eczema and asthma. So who knows! I do understand that Celiac is considered more...
  20. researchmomma
    I respectively disagree with you and I think over time medical doctors will find through research that NCGI causes damage or maybe some are not diagnosed correctly. My daughter has gluten related seizures, malabsorption (which has led to broken bones, short stature, delay in puberty and zero percentile for weight), anxiety and major GI issues. It is not...
  21. researchmomma
    Agree with other posters. Until the medical community understands that there isn't an official "face of Celiac", there will always be misconceptions. Does your nutritionist know that there can be silent Celiacs? In addition, is she disagreeing with your blood work? That is interesting. That is like saying, "well, you aren't as sick as the typical cancer...
  22. researchmomma
    Shrimp Scampi, creamy polenta and green beans with shallots. A nice cabernet as well. I need it after this crazy day. I found a noodle that holds up in the thermos thanks to all of you. Schaar. Grazie. Ciao!
  23. researchmomma
    Argh, now I am drooling again. Seriously, your posts kill me! Rum cake with salted caramel frosting? Now THAT sounds delicious.
  24. researchmomma
    I agree with Ada. I would eat gluten and get tested. Good luck.
  25. researchmomma
    I have to agree with this. I hate to pry but why are you having this? Is it a total hysto? I have Stage IV endometriosis and my doc did an ablation (which is off label use for endometriosis) and it really helped. The other thing recommended for endometriosis is a gluten free diet. Hmmm, how coincidental!
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