I have Gluten Ataxia
symptoms for me started small and progressed with time...
swetty clammy hands and feet
things felt like they were floating around me
road "moves" after the car stops
in its worse times : knees buckled, trouble walking, couldnt walk in straight line, zero balance. knee pain joint pain difficulty reading. difficulty writing my name...total brain fog. exhaustion. muscle twitches all over and constant, Blurry vision and weight gain.
learning the ways of Gluten free. Since Dec. 1st 2011
my symptoms have finally cleared! I'm now back dancing full time and feel healthier than ever!
still get mad at times for not being able to just eat whatever i want..but thats life, i'd rather walk than eat gluteN!
8 months pre-diagnosis dr says "what do you think it could be?".......ummmm if i had a clue i wouldnt be here.....6 months pre-diagnosis "hmmm I wonder if you have celiacs?" .....but didn't test me for it instead ordered a nerve conduction test & a brain mri... man if only she went with her gut and actually tested me for celiacs back then, I would've suffered a few months less and that would've been awesome!!
wow I forgot about this ..This happened to me at my peek of symptoms of gluten ataxia.. It never happened in my life before that though, but once the ataxia got to the point of wobbly knees and difficulty. reading and writing, I kept having these and I remember trying to explain it, was frightening!! ...it does sound like a sepearate sleep disorder ..but I believe ceiliacs causes all sorts of seperate conditions ..so personally I havn't had one since going Gluten-Free...to me feels like it was related.
I really started having these episodes about 1 year ago. It started for me with rushes of adrenaline and then clamminess. I really thought I was having anxiety or something ..and I ignored it. Then after eating at red lobster my "anxiety" went from tolerable to intolerable. I went to the drs thinking they were either going to say I developed and allergy to shrimp or that I had a full panic attack. She said panic attack. So I said no to the meds and tried to embrace life and drink tea and do yoga lol. Well it didn't stop happening everyday and then I started having trouble swallowing my foods
omg it sounds so familiar Im not driving yet, no way But I hope to again and i can't believe how nice... although terribly unfortunate that you all had to go through this ...it is for me to hear some stories because a lot of people around here think..or make me feel like its "all in my head" or they think I can have a little bit and be ok.. I too had the heart palp. and blurry vision. Not to be dramatic but It makes me teary to see hope that I can have my life back someday. I had to close down my dance school because i just couldnt run it anymore. balance on one leg? I had to have income so
Thanks to responding I can see how it can get to the point where you need to be aided. I was leaning up on walls mostly and gave up on using my bed up the stairs in my house. I am very happy that it is getting better. But like both of you said I still need to heal! I had a rougher start to it then I would've thought... and it was all CC that got me.(toaster,double dipped sugar bowl that had flour in it..ugh started out thinking it was easy!"no bread" bleh not quite) I'm determined to stick to whole foods. Did you ever feel like the road was moving? Sounds wierd but I've noticed that wh
Krystal K. posted a topic in Post Diagnosis, Recovery & Treatment of Celiac DiseaseHey there, I was diagnosed with a gluten intolerance called gluten ataxia this past november. I am still learning the rules and ya know changing my lifestyle around but I am curious does anyone here have this? Symptoms include: dizziness, unstable gait.. meaning trouble walking straight..things kind of "float" around you like you're in a dream world. I am much better now. But I've noticed the 3 times I have been accidently glutenized I get this Rush of adrenaline and my heart goes crazy fast my knees get trembly weak and I tend to feel like I might faint but haven't. Also the next day I'm e