Celiac.com Sponsor (A1):



Celiac.com Sponsor (A1):


0
nb-canada

Old Hag Syndrome / Sleep Paralysis

Rate this topic

Recommended Posts

Someone just reminded me of something that used to happen to me before going gluten-free. It would be interesting to find out if other Celiacs have experienced this. My son who is also Celiac has also experienced it. I used to get episodes of what is called "Old Hag Syndrome". I am attaching a link that explains it. It is also called "Seep Paralysis". I just had the thought that maybe it was caused by Celiac because it has not happened to me since. It is a very scary situation where you wake up and cannot move a muscle - you hear and see and smell but cannot move. It feels like something or someone is holding you down and you try to yell out but can't. It only lasts a few seconds but it is very scary. Has anyone else experienced this syndrome?

Old Hag Syndrome


Happy to be Gluten-Free!

Share this post


Link to post
Share on other sites

Join eNewsletter


Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8):


Yes, I've been plagued with "sleep paralysis" for all of my life, but--come to think of it--it got much worse when my celiac worsened 15 years ago....and, by golly, I hadn't noticed that it hasn't happened since I've gone gluten free. Imagine that! I wonder if it's yet another neurological problem caused by celiac. You bring up an interesting point.

This odd state of sleep so interested me, I actually wrote a novel based on it...and a possible reason for it (no, not supernatural). I'll be putting the finishing touches on my novel later this month. It's a good thing I didn't think there was a connection to celiac--that would have been a very boring novel!

Share this post


Link to post
Share on other sites

Join eNewsletter

I had this happen to me a couple of mornings in a row, long before I became aware of celiac. It is a totally scary experience. I was alone in the house at the time, my mom was in hospital dying of cancer, and I have never talked to anyone about it. It has never happened again. I put it down to a combination of meds I was taking, and stopped taking the recently added one... :unsure:


Neroli

"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973

Lactose free 1990

(Mis)diagnosed IBS, fibromyalgia '80's and '90's

Diagnosed psoriatic arthritis 2004

Self-diagnosed gluten intolerant, gluten-free Nov. 2007

Soy free March 2008

Nightshade free Feb 2009

Citric acid free June 2009

Potato starch free July 2009

(Totally) corn free Nov. 2009

Legume free March 2010

Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

Share this post


Link to post
Share on other sites

Join eNewsletter

I used to have that all the time. It got so bad at one point that I was afraid to go to sleep and would stay up all night. I attributed it going away to my research on the subject and trying to turn it into lucid dreams. I didn't fight it like I had been doing. It is an interesting phenomenon.

Share this post


Link to post
Share on other sites

Join eNewsletter

I have this sometimes, combined with poor sleep for pretty much my whole life. I had this last night in fact, and it lasted for about 10-30 seconds.

I am sensitive to both gluten and milk and have just started a diet, but haven't seen any change to this yet (sleep quality seems a bit better though -- I dream more the last week than I usually do in a month).

I have been speculating this could be related to gluten and/or casein sensitivity in some way as narcolepsy is associated with autoimmune reactions to the orexin system (critical component in the regulation of sleep, wakefulness and REM). Haven't seen any research investigating this though.

Share this post


Link to post
Share on other sites

Join eNewsletter

i searched and found this thread- because i had this paralysis THIS MORNING!!!!! i believe it could be gluten related-> as SOME Celiacs get Narcolepsy & Apnea-> so i ASSUME that Sleep Paralysis and other sleep disorders could be caused by gluten.

im a little nervous tho- because i only had these episodes about 5 times maybe- on and off from Mid 90s to around 2005... all pre Celiac DX and pre-gluten free. so WHY this morning???? i know its *possible* that im getting too much through <20ppm gluten free junk food or cross contamination... BUT enough to bring on symptoms that i havent felt in YEARS????


1986- Elevated Speckled ANA/no Lupus.negative Sjorgens

2008- AntiGliadin IGA/IGg~ Negative,TTG IGA/IGg~ Weak Positive, Endomysial Antibody~ Positive, IGA Deficient.

no biopsy (insurance denied)

6/2010- Enterolab Gene Test:

HLA-DQB1 Allele 1 0302

HLA-DQB1 Allele 2 0302

HLADQ 3,3 (subtype 8,8)

7/2010- 100% Gluten Free

8/2010- DH

10/2010-Hypothyroid dx-> 12/2010 Hashimoto's dx + 1/11- Graves dx :(

Share this post


Link to post
Share on other sites

Join eNewsletter

I never knew there was a name for this! I've experienced this several times in the past and I remember telling my step-dad what happened and he called me crazy. :lol: Thankfully, I haven't experienced anything like this since I went gluten-free a year ago.

Personally don't think there is a connection to Coeliac disease but it is interesting.


24 years old from England.

Pernicious Anaemia - July 2007

Coeliac Disease - March 2011

Gluten-free - March 2011

Share this post


Link to post
Share on other sites

Join eNewsletter

I had this happen as a child and totally forgot about until it happened once about a month ago. Sure hope it doesn't happen again, very disturbing.


-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)

Share this post


Link to post
Share on other sites

Join eNewsletter

I'm currently 21, and during the ages of 13-16, this syndrome plagued me. I just found out about my gluten sensitivity/ possible celiac about 1 month ago. I suspect Ice had it for several years, by looking back at all of my symptoms. I don't know how they'd be connected, but I know eating gluten can cause neurological symptoms. Sleep paralysis is easily the most terrifying think that's ever happened to me- I'm sorry for anyone that has to go through that.

Share this post


Link to post
Share on other sites

Join eNewsletter

Omg! The same thing happened to me since I was around twelve. My doctor thought it may be linked to my bladder condition, interstitial cystitis (which was caused by my food sensitivities i was unaware of). According to my doctor, it is more common with those who have insomnia, wake excessively or fail to go through normal stages of sleep. I woke sometimes sixteen times a night to go to the bathroom. It's kinda a chicken and egg kinda thing for me, idk which came first but they are definitely related.


Gluten and Oat Free 6/'12

Dairy, Corn and Yeast free 7/'12

Nightshade Free, Candida diet & low salicylates 8/'12

Nightshades and carbs and sugars limitedly reintroduced, most salicylates now tolerated 9/'12

No longer Reacting to yeasty breads 10/'12

Test confirmed yeast overgrowth, back on Candida diet 11/'12

You only get one life so make it count.

Share this post


Link to post
Share on other sites

Join eNewsletter

I'm pretty sure this has happened to me, but I wake so slowly that it's never frightened me, as I don't wake and immediately try to move. I have never had it happen on a day where an alarm is waking me, so not sure really.

I'm pretty sure it's related to the hormones that regulate sleep. The body releases mild paralytic hormones that are designed to keep you from sleepwalking, it's theorized that a deficiency in these contributes to somnambulism. Too much and you get temporary waking paralysis.


If you're going through hell, keep going. ~Winston Churchill

Share this post


Link to post
Share on other sites

Join eNewsletter

wow I forgot about this ..This happened to me at my peek of symptoms of gluten ataxia.. It never happened in my life before that though, but once the ataxia got to the point of wobbly knees and difficulty. reading and writing, I kept having these and I remember trying to explain it, was frightening!! ...it does sound like a sepearate sleep disorder ..but I believe ceiliacs causes all sorts of seperate conditions ..so personally I havn't had one since going Gluten-Free...to me feels like it was related.


feels good to be free

Share this post


Link to post
Share on other sites

Join eNewsletter

Sorry Shadow :(

 

Hope you have a restful night tonight - scary stuff.


-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)

Share this post


Link to post
Share on other sites

Join eNewsletter

I've never had this happen to me until my recent hospital visits related to celiac disease. It is now a recurring thing despite being gluten-free for nearly two weeks. It's very scary and I'm finding that I'm totally sleep disturbed since this has all been going on. I've been awake the majority of nights for days on end after gluten attacks. I feel like I'm in a nightmare sequence. I'm awake with panic and shortness of breath truly afraid that if I fall asleep that I will die. When I finally start to dose, the paralysis sets in while I'm still awake. it's very scary.

Share this post


Link to post
Share on other sites

Join eNewsletter

Yes, I have had this happen a number of times in my life. It is terrifying!

 

I didn't read the link you posted, but one thing I have read in the past (and that has helped me avoid this) is that it occurs more frequently when you sleep on your back. I have no idea why this is the case, but changing your sleep position might help. I'm not a back sleeper usually, but every time it has happened to me that I can recall, I was sleeping on my back at the time.

Share this post


Link to post
Share on other sites

Join eNewsletter

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

0


Join eNewsletter