Jump to content
  • Sign Up


Advanced Members
  • Content Count

  • Joined

  • Last visited

  • Days Won


cassP last won the day on July 29 2014

cassP had the most liked content!

Community Reputation

175 Excellent


About cassP

  • Rank
    Star Contributor

Contact Methods

  • Website URL

Profile Information

  • Gender
  • Interests
    health, gluten-free, movies, dance, and love :)
  • Location

Recent Profile Visitors

22,164 profile views
  1. my advice is: you have a dq2 & a dq8, you have SO MANY of the Gluten intolerant & Celiac symptoms, you've been on 2months now of heavy gluten eating.... ! Get a full Celiac panel NOW, and then GO OFF Gluten forever.. having 2 Celiac specific genes, PLUS having all the symptoms, and already having Anklosing Spondolitis.. i would assume if i was u, that continuing to eat gluten is a sure route to developing celiac (if you dont already have it)... many times- our antibodies dont show up on blood panels, and the damage to our S.I. doesnt show up on biopsies- untill the damage is already substantial... just my personal opinion.. good luck to u, i hope u get a panel done now, since u have a better chance of getting an accurate reading since uve been eating it... also get the Total Iga Serum to see if you're Iga deficient, cause then all your Celiac panels could be false readings
  2. what are u eating? is there a type of diet you're trying?? do u have any thyroid issues?? i have been on every diet in the world, and ive been dancing & dieting my whole life, even had a bout with anorexia.. i can say with all my experience- yes, exercise is great for your immune system, mental state, & quality of sleep- & great for your musculoskeletal system- but the foods that i eat and the amount have the BIGGEST influence on my figure- way more than exercise i truly exercise now to stay sane, to help tone down my autoimmune diseases, and also- exercise really helps with posture & chronic pain... and studies have shown that women who exercise (regardless of their weight)- tend to feel happier with their bodies than those who don't
  3. YES- i ALSO recommend SILVER.. i totally forgot i put it on my rash too... calmed it down a little bit while i healed and detoxified of gluten
  4. hey that's so interesting that your doc was concerned about Parathyroid with low D, ihad never heard of that before. what about a full thyroid check up? have u had that??? so many of us have both Celiac & thyroid disease, and many that are Gluten intolerant or gluten sensitive also have thyroid disease. Thyroid disease ALSO screws up your digestion- cause you make less of everything-> including stomach acid, pancreatic enzymes, motility , etc my opinion is that a Vitamin D deficiency often points to Autoimmune Activity... your immune system needs D3 to work properly-> and when you're autoimmune you use it all up. also- your B12 is TOO LOW.. you should strive to get it above 500 or 600... alot of our "ranges" in the U.S. are way too big and are more interested in Disease Management instead of Healthcare
  5. sorry, i hate to give bad info... it was only what i had read before while researching :/ but in original posters post of what doc wrote- the EMA DOES reach up to 100%, more than the others if im not mistaken
  6. i did genetic testing thru enterolab .. it was about 150$ im happy i spent the money!
  7. i never had the endoscopy- and wouldnt know how to read it- BUT maybe others on here could for you most doctors and medical journals in the US are just behind on this disease- they think it's only from DQ2 and DQ8-> but overseas they are diagnosing Celiacs with different DQ#s. believe me, it wont be the first or last time your doctors dont know anything... sorry im bitter and frustrated :/
  8. the Endomysial antibodies were not tested on you. it's 100% specific to Celiac. im also curious which vitamin levels were tested on you and what was low! there are certain ones and more that are so common in those with Celiac, Gluten intolerance, Thyroid Disease, or anyone with digestive issues and some autoimmune disease. ie: D3, iron & ferritin, B12, etc, etc,... Folate, Magnesium..
  9. did u have ALL the antibodies tested???? this is such a hard disease to diagnose- you really need ALL antibodies tested- not just the ttg for example. PLUS if you are LOW in IGA serum, then your iga antibodies will be innacurately low. please consider going GLUTEN FREE even if you don't get a 100% dx.... i felt like i needed the dx as well, but now i know that the damage gluten can do to your body & mind is EXTENSIVE and not just localized to Celiac. i had no idea till after my Celiac self diagnosis-> just HOW MUCH Gluten had EXACERBATed my Graves it could do all kinds of things like lead to Crohns, colitis, diverticulitis, cancer, thyroid disease, ataxia, etc etc etc educate yourself- and dont rely soley on doctors- my Gi actually told me to get online- he said that they just dont know enough- and that i would find others online who would know more! both my Gi AND my Integrative Doctor believe that Celiac is more of a spectrum, and that quite possibly (far enough into the future)- 30% of the population (with the dq genes) might all develop Celiac. also- you dont have to have the classic celiac genes (dq2 and dq8) to have it.. others on here have been diagnosed with DQs with different #s like DQ9, DQ1, etc
  10. found this on a google search... gotta go to bed.. anyone still there??? ive been having a lot of bladder issues past year since my last UTI... off and on feeling like i have another UTI and often it happens after i eat yogurt or bananas... which is extemely weird!! didnt happen before... i DID notice in the past 4 years as i went gluten free- the bladder fullness & inflammation would happen when i had gluten or when i had too much Frucotse... then i also adapted a modified Low Fodmap diet - and i would only eat a 1/2 very ripe banana to avoid the high fructose- was always fine... but now bananas mess my bladder up BIG TIME also when i was a child- i was a VERY FREQUENT Bed Wetter - even having a few episodes as an adult-> also as a kid & teen (& 20s)- i could NEVER hold my bladder EVER when i laughed... at least i know im not alone :/
  11. it's a very basic start to looking at your health- but with the celiac portion being only the TTG, and the thyroid portion only being the TSH... you're very likely to be UNdiagnosed when there could actually be something to diagnose... my Endomysial Antibody (part of a Celiac panel) was my only solid positive... and my TSH didnt go above 5 untill i was 34 or 35 years old- when my thyroid had actually started to fail when i was a child. good luck to you and continue to research especially on here... know your ranges because the doctors rarely do...
  12. mine took 4 months of being gluten free to disappear.. but i also only had a small patch on my stomach and random bumps on my forearms
  13. cassP

    Old Hag Syndrome / Sleep Paralysis

    i searched and found this thread- because i had this paralysis THIS MORNING!!!!! i believe it could be gluten related-> as SOME Celiacs get Narcolepsy & Apnea-> so i ASSUME that Sleep Paralysis and other sleep disorders could be caused by gluten. im a little nervous tho- because i only had these episodes about 5 times maybe- on and off from Mid 90s to around 2005... all pre Celiac DX and pre-gluten free. so WHY this morning???? i know its *possible* that im getting too much through <20ppm gluten free junk food or cross contamination... BUT enough to bring on symptoms that i havent felt in YEARS????
  14. cassP

    Restaurants In Cape Cod, Ma?

    oh i am SO SO SO happy i found this thread!!! im going to Cape Cod in August for the first time ever, and i really need to know my gluten free options!!! especially since most of our eating will be out :/ we're staying at my bf's grandmothers- and he says her fridge is always STUFFED im worried, i need SOME room, and i really need daily veggies for regularity :/ oy....
  15. cassP

    Airport Security And Supplements?

    not a silly question.. i was wondering the same thing.. i havent flown in almost 2 years.. and im going to be flying in August... now that ive been dx w/thyroid crap- and i now have my Armour & Cytomel ... im starting to think i need to buy 1 supplement that has all the rest in one capsule.. cause i take A LOT of stuff... and i cant just carry my L-Glutamine Powder in a baggie... so i was wondering if i should buy something like Celiact ?? funny too- im watching Jane Fonda on tv now- explaining how when she was arrested for "smuggling drugs thru Canada"- all she had was her daily compartments of vitamins :/ ya, annoying- cause i depend on SO many different supplements: vit d, l-glutamine, b12, selenium, blah blah blah... then my Armour & Cytomel which i CANNOT LIVE WITHOUT.... plus u got all the things we need for emergency- like Gas-x, and Zantac, Digestive Enzymes, Xanax, Advil, Advil pm.. OY VEY