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rosetapper23

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Latest Celiac Disease News & Research:

Everything posted by rosetapper23

  1. rosetapper23
    This is very interesting information! It's believed that my mother's celiac was triggered when she was five months' pregnant with me after having an emergency appendectomy. She became extremely anemic, and I was born with Rickets. My three siblings clocked in at over nine pounds, but I weighed only 7 pounds 7 oz. As a child and adult,...
  2. rosetapper23
    This is exactly how DH presents on the fingers of my left hand! It hasn't occurred in a number of years, but, boy, that is just how it looked!
  3. rosetapper23
    Okay...Dani helped me with a link that I can share with you. This photo is not for the weak of heart--it might even scare small children. My photo shows many scars from a glutening on my face and neck that occurred more than four months ago, but which have continued to re-erupt due to the iodine in my thyroid medication. I think the episode is reaching...
  4. rosetapper23
    Dani, I sent you a private e-mail (hope that was okay!), and in it I explained that I'm officially diagnosed with celiac, and my gastroenterologist told me that if he had seen my lesions even before diagnosing me with celiac, he would have told me that I had DH and was most certainly a celiac. My son gets these same lesions in the same locations when...
  5. rosetapper23
    I'd like to upload a photo of my current (and severe) DH outbreak on my face and neck to show what the scarring can look like, but I don't know how to upload photos. How is this done? The photo is on my iPhone and filed in my download file on my computer. Any help?
  6. rosetapper23
    Sorry, no transdermal iron--and don't try pulverizing the tablets and taking them sublingually. I tried that, and my teeth turned black! It took years for the teeth to turn gray and eventually turn a dingy cream color. If you seriously cannot take oral iron, you can request intravenous iron infusions. Many of us who are iron deficient and can't absorb...
  7. rosetapper23
    Yes, I've been plagued with "sleep paralysis" for all of my life, but--come to think of it--it got much worse when my celiac worsened 15 years ago....and, by golly, I hadn't noticed that it hasn't happened since I've gone gluten free. Imagine that! I wonder if it's yet another neurological problem caused by celiac. You bring up an interesting point. ...
  8. rosetapper23
    I would also recommend thyroid testing--when I read your post, that was the first thing to come to mind. Hashimoto's Thyroiditis is very common in people with celiac....and one of its principal features is fatigue and sleepiness.
  9. rosetapper23
    I don't think there have been very many--if any--studies on how celiac affects the tendons, ligaments, and muscles. However, I know that a LOT of people with celiac have problems with these body parts. I had to have physical therapy in my early 20's for both my knees and hips. Have you seen a doctor about a referral to a physical therapist? If you don...
  10. rosetapper23
    Mushroom, Was the type of zinc you were taking the chelated form? I had taken regular zinc for months after my foot fractures because I had numerous symptoms of zinc deficiency, but the symptoms didn't improve. Then I read that I should be taking chelated zinc and chelated manganese--and my feet stopped hurting after only a couple of days. The silicon...
  11. rosetapper23
    Mushroom, Your dad's description fits perfectly with my "floppy tendon syndrome" from deficiencies of zinc, manganese, and silicon. I kept telling people that it felt like the bones were floating in gelatin, and I kept getting stress fractures as a result. It took me way too long to put the pieces together. Sounds as though your dad was suffering from...
  12. rosetapper23
    Yes, to maintain tendon and ligament health, you have to be able to absorb certain minerals; hence, pain in the feet and/or joints.
  13. rosetapper23
    You've received excellent information and advice above, and I also believe that it's in your best interest to go gluten free. At first, you'll grieve for some favorite foods, but then you'll begin to enjoy the diet (which is very healthful) and find it easy. I no longer miss any particular food, especially since gluten-free versions are available. I...
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