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Everything posted by rosetapper23

  1. I would strongly suggest avoiding iodine--eating iodine with gluten can cause DH.
  2. I experienced this on my right side for MANY years until I found out I had celiac disease. It took a number of months for it to resolve, though, on a gluten-free diet. I always thought that it was caused by celiac because it corresponded with the beginning of the small intestine, where I assumed the most damage had occurred.
  3. I had three miscarriages but still gave birth to two healthy children.
  4. Yes, I used to suffer terribly from migraines on almost a daily basis; however, after going gluten free, I never had another one. Yay!
  5. rosetapper23

    Celiac Disease And Pregnancy

    This is very interesting information! It's believed that my mother's celiac was triggered when she was five months' pregnant with me after having an emergency appendectomy. She became extremely anemic, and I was born with Rickets. My three siblings clocked in at over nine pounds, but I weighed only 7 pounds 7 oz. As a child and adult, I suffered from MANY symptoms of nutritional deficiency and miscarried three times. I did give birth to two healthy children. One has confirmed celiac, and I suspect the other one has it, too (but she refuses to be tested). This can definitely be a scary disease!
  6. rosetapper23


    If it's generic, I ALWAYS call the manufacturer.
  7. If your dentist is unaware of celiac, there are informational handouts available through various resources. I know that the Gluten Intolerance Group of North Americas has such a handout. Their website is
  8. I've heard all three doctors speak numerous times at conferences and workshops, and I believe that the specialist who may be able to help you the most is Dr. Murray, because he specializes in identifying other foods and factors that may be causing your distress. He believes in cross-reactivity (which, I know, a number of people on this forum do not believe in), but he has convinced me that this can be a real concern when a person is unable to heal properly after strictly following a gluten-free diet. Try contacting him first to see if he can help--he's very approachable and compassionate.
  9. What a wonderfully planned day for you! Happy Birthday! And I'm so happy that it turned out the way that you had hoped!
  10. rosetapper23

    A Year, A Novel, A Thank You

    Adelaide, Yes, I hope you're open to taking the parent essential oils. They have to be taken in the correct ratio, though, which is why I provided the measurements. You should start feeling better immediately. Muscle pain and weakness were part of my life for 50 years before I learned about this apparent deficiency that I had. Other celiacs have been helped immensely....and it's a very simple solution. Also, your skin and hair will look great! It also clears all plaque from your arterial system. A recent echocardiogram I had showed that I have ZERO plaque in my veins and arteries, and the technician told me that this is extremely rare. Believe me, the ratio of oils truly works miracles!
  11. Are you saying that it relieves BOTH belching gas AND flatulence?
  12. rosetapper23

    Ct Scans And Iodine

    I always say I can't have iodine in the contrast. So far, they've used some other type of contrast with me. I'm allergic to iodine both topically and internally, so there is no other option for me. As long as the technician is willing to use an alternative contrast, I would recommend that you keep refusing the iodine.
  13. I would suspect that it might be the soy. I get a LOT of digestive pain from eating even the smallest amount....and lots of D.
  14. rosetapper23

    Celiac Vaccine? Not For Me

    Yes, I fear that this vaccine won't protect me against I'm uncertain whether I'd be interested in having the vaccine. On the other hand, my Sean can't wait to get it. Even if GOT the vaccine, I would continue to eat a gluten-free diet....and would rely on the vaccine's effect to protect me against accidental cross-contamination at restaurants, etc. I wouldn't knowingly eat gluten, though.
  15. rosetapper23

    A Year, A Novel, A Thank You

    Sweet Adalaide, I believe we've all walked in your shoes--the tears, the frustrations, the comfort we wish we could get back again.....but it gets so much better, as you know. This next year will be MUCH easier for you--I guarantee! I'm a bit worried that you're still having muscle cramps, though. Have you tried mixing 1/2 teaspoon of organic flaxseed oil and 3/4 teaspoon of organic safflower oil into a smoothie or glass of juice on a daily basis? It really does work to make your muscles "normal" again. Cramping and muscle weakness used to be one of my biggest complaints, and going gluten free didn't take care of it. However, I read about mixing these parent essential oils after reading Brian Peskin's book, "The HIdden Story of Cancer," where he explained how they can help people's muscles recover from exercise more quickly. My muscles have felt great ever since, and others on this forum who have tried this solution have told me that it has helped them, too. Also, muscle weakness and cramping can be an indication that you're low in manganese and/or silicon. I take chelated manganese and BioSil on a result basis so that my tendons, ligaments, and muscles remain healthy. Just suggestions, honey..... May 2013 bring you happiness and great gluten-free fare!
  16. You may be sensitive to iodine. Do you take a thyroid medication (which would, of course, contain iodine). It took me years to stop itching, but, unfortunately, I'm sensitive to iodine because of the celiac disease....and the itch was incessant, since I couldn't stop taking my medication.
  17. Looks as though you may be suffering from a few nutritional deficiencies. A good start is to take Country Life Natural Vitamin D (it also contains Vitamin A, which I believe some of your symptoms indicate that you may be in low in) as well as medium-chain triglycerides, which will help your body absorb them. Also, you may wish to supplement with chelated manganese for your muscles. If your muscle issues don't resolve, please let me know, because I have a suggestion that involves parent essential oils (Omega 3s and 6s) that works great....but I thought you might wish to try these other, easier things first.
  18. rosetapper23

    Dh Rash Bleeding Now

    You might want to test for staph--sometimes it invades the DH. If this is the problem, antibiotics will help resolve the rash. (Sorry about the bleeding--ouch!)
  19. Blue Wilderness is grain free and all four of my cats love it. There are other brands that are also gluten free, but my cats didn't favor them. I feel so much safer serving them Blue Wilderness--now I don't have to wash my hands after serving them their food. I find Blue Wilderness at Petco, but I think PetSmart also sells it.
  20. Ha ha! IH, you'll always have my heart! Happy Holidays to you! And I would LOVE to have a healthy 2013--my previous alternative therapies failed me so that the cancer has spread. However, I just started taking a new alternative therapy (Protocel) that has a great track record for sending metastasized cancer into remission 80% of the time. After six days, the tumor on my back I'm hopeful that it's working. I'm trying to be strong....and am hoping that 2013 will be the turnaround year for me with this awful disease. Thanks for thinking of me!
  21. This has probably happened to all of us at one time or another. I remember once at a picnic, I accidentally picked up my husband's cup of beer rather than my cup of wine (they were both in those red picnic cups and looked pretty identical in color). I nearly panicked....and I couldn't believe being so inept and careless...but it happens. Hopefully, you'll start feeling better soon....
  22. If you don't care about a DX, I'd just continue eating gluten free. You'll have your answer if you ever accidentally slip up in the future--if gluten's a problem, you'll know it! Not all celiacs have nutritional deficiencies, and I suspect because you've been "gluten light" for years, you probably don't have any. You might just want to get your iron, B-12, and D3 tested occasionally to be on the safe side. Otherwise, simply enjoy the gluten-free lifestyle....and stay well, my friend.
  23. rosetapper23

    Do I Have Celiac?

    Even if the bloodwork comes back negative, you might wish to try the gluten-free diet. Hopefully, you'll start feeling better soon!
  24. I ALWAYS call the lab where it was manufactured, just in case.
  25. When it comes to processed foods, if "gluten-free" isn't stated on the package, I call the company if I truly want to eat it. It's just not worth getting glutened.