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Irene Joanne

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Irene Joanne

  1. Irene Joanne
    Have you had a biopsy as well to get a positive diagnose? If you still need one- don't go gluten free yet
  2. Irene Joanne
    I have a salicylate sensitivity, yet I'm cautious about cutting this out too much because my diet is restricted enough and I've heard too often by drastically cutting salicylates out- when introducing again it can cause anaphylaxis reactions.
  3. Irene Joanne
    Often I read through and even though I can relate- when I read though the comments I realize others have given good answers already so then I don't add to them. It's been over a year since I was diagnosed- I'm still feeling unwell most of the time. This Christmas was harder than last year so I can really understand where you're coming from. I brought my own...
  4. Irene Joanne
    I would highly recommend you cut out oats- even dairy. I was diagnosed just over a year ago- I can't eat any kind of gluten free oats and have recently cut out dairy and noticed improvement. Mostly I try to eat grain free since I feel better that way. Lots of veggies, fruits, meat and eggs.
  5. Irene Joanne
    I can understand what you're saying about dairy. Although I rarely ever drank milk- I really was addicted to other milk products after diagnose. I wonder if being low on calcium can cause that? I do need calcium supplements. Its been a year now since being diagnosed with celiac and I'm finally at a point where I'm really able to avoid dairy. I'm noticing...
  6. Irene Joanne
    I still tested really high on my celiac test after six months. I'm getting it done again at the end of the month- that will be a year then. I'm not optimistic since I feel awful most of the time still. I do know that some of the problem is food sensitivities other than gluten - also fibromyalgia. It's so depressing though- because honestly- I feel worse in...
  7. Irene Joanne
    I don't have a lot of faith in the allergy testing naturalpaths do. I had them done, but really it wasn't very helpful. Foods that were okay on the blood work- I was still having obvious reactions to. Skin testing through an allergist didn't show up food allergies either. I agree the food elimination diet is a better way to go and doesn't cost a bunch of...
  8. Irene Joanne
    You should never have cut out gluten until you had the biopsy done. It's much worse to have to go back on after you've been off gluten for a while. There's no way I could ever do the gluten challenge after being off gluten for even a month because my reactions got so dramatically worse. Stress definately can trigger celiac- before I was diagnosed -...
  9. Irene Joanne
    For me it was better after a week. It's not fun! Get lots of rest. I don't have a lot of advice- I was diagnosed almost a year ago. For me, I'm vomiting also for the first day. I'm getting to a point where I rarely eat out- it's too stressful even if I don't get sick. It took me almost 3 months before I really felt better.
  10. Irene Joanne
    Don't believe everything you read- I wouldn't know why freezing rice flour would be a problem. I freeze all my gluten free flours- they last much longer
  11. Irene Joanne
    That's a really unhelpful article!!
  12. Irene Joanne
    I did go gluten free after the scope because the doc said it looked like celiac just from what he could see and it was okay to go gluten free. Some people recommend you wait just in case the results get lost or the test was done improperly and needs to be redone. Maybe call the doctors office and ask their advice?
  13. Irene Joanne
    I guess I thought rice flour was healthier than corn flour anyways. i haven't worked much with sorghum flour but I do have a bag in the freezer- I'll try something with it.
  14. Irene Joanne
    Lately I'm having really obvious reactions to anything I bake with a flour mix that uses brown and white rice flour. It feels so much like my reactions to gluten- that I just assumed somehow it got contaminated with gluten and I stopped eating anything with this flour mixture. Yesterday, I baked with a different blend that also has white and brown rice...
  15. Irene Joanne
    I was diagnosed almost a year ago- I still find myself almost doing the same thing you did with the beaters. It does help that I no longer have regular flour in the house- but the rest of the household still eats gluten and at times I almost lick my finger when I'm baking with their gluten peanut butters or oatmeal for example. My husband and kids have a...
  16. Irene Joanne
    Do be cautious about trusting a Google search to find out if a food is gluten free. I got glutened a few times by making that mistake. "Google" told me a few things were gluten free- yet after getting ill- I realized that although these items may be gluten free in the USA- they definitely were not in Canada. plus- a lot of Google searches bring up really...
  17. Irene Joanne
    I'm from Canada and whenever I see a doctor I'm asked if I had the biopsy. It seems it's not believed a person really has celiac with just blood work. It makes me thankful I had the biopsy- but every situation is different. Long term with all the other health problems I've been having and the specialists I've had to see- I'm grateful my diagnose isn...
  18. Irene Joanne
    I don't dare eat them. I live in Canada and have heard too many people get sick from them
  19. Irene Joanne
    You need to be eating gluten every day for the biopsy to be accurate. For blood work it's 3 months and for biopsy two weeks is enough according to some docs.
  20. Irene Joanne
    I would suggest avoiding eating out for sure until you see more healing. You got rid of all your non stick pans? Cast iron pans can't be used either if they've had gluten. Kids usually heal faster- it's been almost a year for me and I'm far from feeling well
  21. Irene Joanne
    I'd have a really hard time finding a doctor willing to do another scope. Mostly once diagnosed they don't seem to think it's necessary- at least where I'm from
  22. Irene Joanne
    I'm from Canada
  23. Irene Joanne
    One thing I do know is that EVERY specialist/Doctor I have seen has questioned my celiac diagnose and only accepted it when I said I had the biopsy. I've had to see a lot of doctors this past year and every time I'm questioned- I'm glad I can say I had the biopsy so I'm believed and taken seriously. My celiac blood tests were in the very high numbers too...
  24. Irene Joanne
    I didn't have obvious severe reactions to gluten before diagnose- I did feel ill a lot though and had bloating and some diarrhea. It wasn't until I was gluten free for a month and then accidentally had a trace of gluten that I got a severe reaction. Reactions tend to be more severe and obvious after someone's been off gluten for a while
  25. Irene Joanne
    Do you take digestive enzymes and probiotics? That may help. Have you met with a dietician for help figuring out how you're getting glutened?
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