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False positive?

Hollywood

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Hollywood Newbie
Hollywood
Posted

I was diagnosed with celiac in 2011 with a blood test but when I had two upper GI and colonoscopy by two different doctors  the other day, the doctors said there were no signs of celiac. I don't understand because I know what happens when I have gluten or or even cross contamination. It's not gluten sensitivity, I have all the symptoms but when he told me that I don't have it, I was devastated. I have a laundry list of illnesses that I contributed to celiac but I'm now confused. 

Has this happened to anyone or have you heard of this before?!?!?

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ravenwoodglass Mentor
ravenwoodglass
Posted

Have you been gluten free since diagnosis? If you have then your tests should be negative.  You do still have celiac you have just healed.

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ironictruth Proficient
ironictruth
Posted

Huh? Yes, you need to be on gluten for the scope. Not even sure why they would say that to you. 

What blood tests were positive? 

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cyclinglady Grand Master
cyclinglady
Posted

You should be celebrating!  A healed intestine!  Yippee!  

Now the downer.....get a new GI who knows about celiac disease.  This doctor does not even keep up on celiac disease (he just needs to read GI journals).  Remember too that you need to wait for the pathologist's report.  Villi damage is microscopic.  Your GI would not be able to see that type of damage.  

You should be receiving follow-up care:

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    • Bayb
      Trying to read my lab results

      By Bayb · Posted

      Hi Scott, yes I have had symptoms for years and this is the second GI I have seen and he could not believe I have never been tested. He called later today and I am scheduled for an endoscopy. Is there a way to tell how severe my potential celiac is from the results above? What are the chances I will have the biopsy and come back negative and we have to keep searching for a cause? 
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      Constant low back, abdominal and pelvic pain!

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      I agree christina, there is definitely many contributing factors! I have the pain today, my pelvis, hips and thighs ache! No idea why. But i have been sitting at work for 3 days so im thinking its my back. This disease is very mysterious (and frustrating) but not always to blame for every pain. 
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      "her stool study showed she had extreme reactions to everything achievement on it long course of microbials to treat that." The wording of this part of the sentence does not make any sense at all. I don't mean to insult you, but is English your first language? This part of the sentence sounds like it was generated by translation software.
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      Why?

      By trents · Posted

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      Why?

      By mishyj · Posted

      Perhaps I should also have said that in addition to showing a very high response to gluten, her stool study showed that she had extreme reactions to everything achievement on it long course of microbials to treat that.
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