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I was diagnosed with celiac in 2011 with a blood test but when I had two upper GI and colonoscopy by two different doctors  the other day, the doctors said there were no signs of celiac. I don't understand because I know what happens when I have gluten or or even cross contamination. It's not gluten sensitivity, I have all the symptoms but when he told me that I don't have it, I was devastated. I have a laundry list of illnesses that I contributed to celiac but I'm now confused. 

Has this happened to anyone or have you heard of this before?!?!?

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Celiac.com Sponsor (A8):

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Have you been gluten free since diagnosis? If you have then your tests should be negative.  You do still have celiac you have just healed.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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You should be celebrating!  A healed intestine!  Yippee!  

Now the downer.....get a new GI who knows about celiac disease.  This doctor does not even keep up on celiac disease (he just needs to read GI journals).  Remember too that you need to wait for the pathologist's report.  Villi damage is microscopic.  Your GI would not be able to see that type of damage.  

You should be receiving follow-up care:

http://www.cureceliacdisease.org/faq/how-often-should-follow-up-testing-occur/


Non-functioning Gall bladder Removal Surgery 2005

Diagnosed via Blood Test and Endoscopy: March 2013

Hashimoto's Thyroiditis -- Stable 2014

Anemia -- Resolved

Fractures (vertebrae): June 2013

Osteopenia/osteoporosis -- June 2013

Allergies and Food Intolerances

Diabetes -- January 2014

Celiac.com - Celiac Disease Board Moderator

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