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Study/Research - Did it take five years (or more) following the onset of symptoms before you received your diagnosis of celiac disease?

Scott Adams

By Scott Adams
in Related Issues & Disorders

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Scott Adams Grand Master
Scott Adams
Posted

Heidi Maxwell has asked me to post this on her behalf:

Quote

Did it take five years (or more) following the onset of symptoms before you received your diagnosis of celiac disease????? Are you over the age of 25 and willing to share your experience?

Please contact me at 707-474-8487 or celiacstudy@outlook.com and see below for more information about this exciting opportunity.

My name is Heidi Maxwell, and I am currently seeking participants for my study about the emotional sequelae associated with the experience of severe unexplained symptoms of celiac disease over extended period of time.

Willing participants must be 25 and over with a medically confirmed diagnosis of celiac disease for which the diagnosis was not confirmed for at least 5 years following the onset of symptoms. Participants must be able and willing to participate in a 60-90 minute in-person or skype interview. Participation will contribute to the literature about the impact of misdiagnosis and delayed diagnosis on psychological well-being.

The risk of participating in this study is that it could bring up memories of experiences that are emotionally triggering. However, the benefit is that you will have an opportunity to share your experience to inform medical and mental health practice.

This study is voluntary and all information kept strictly confidential. You may withdraw at any time without penalty. There is no compensation for your participation. However, your efforts will make lasting contributions in the field of psychology.

This study has been implemented as part of the requirements for completing my doctoral degree in clinical psychology, and the study has been approved by the National University Institutional Review Board. This study is being supervised by Dr. Peter Van Oot, dissertation committee chair and a faculty member at John F. Kennedy University.

Please feel free to extend this invitation to anyone you know who may be interested.

If you have any questions, please do not hesitate to contact me at 707-474-8487 or celiacstudy@outlook.com

 

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    • Aretaeus Cappadocia
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      By Aretaeus Cappadocia · Posted

      @nancydrewandtheceliacclue, you are welcome. After looking at this thread again, I would like to suggest that some of the other comments from @Russ H are worth following up on. The bird-bread may or may not be contributing to what you are experiencing, but it seems unlikely to be the whole story. If you have access to decent healthcare, I would write down your experiences and questions in outline form and bring this to your Dr. I suggest writing it down so you don't get distracted from telling the Dr everything you want to say while you have their attention.
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