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celiac disease with lyme disease and anxiety?


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Hi! :) Sorry if this is a bit long, but I just want to find out a bit more about Coeliac I guess - I feel a wee bit ignorant that I don't know more..

8 years ago, I found a tick in my belly button - which caused the red bullseye rash, fatigue, joint pain, ect. All typical signs of Lyme Disease. The doctor confirmed this (after finally getting them to agree to take a blood test). The test results also showed I had coeliac disease, which was a bit of a suprise - I had never even heard of it before, and there was no family history. I had a biopsy to confirm the results, where it became clear that I did indeed have celiac disease. So I was prescribed a gluten free diet, which I stuck to as best as I could, even though I struggled at first, but my family helped me a lot. A few years later- I was coping well with the diet, and didn't have too many 'incidents' with gluten. This all changed with in a day. I started taking panic attacks, sometimes 2-3 daily. This lasted around 2 years, but with counselling I have slowly but surely recovered, even though I still have the odd one or two every month or so. I stick to the gluten free diet and I'm pretty independent in making sure everything is safe for me to eat. Having a free prescription to gluten free products in Scotland also helps!! Looking back now, I have a few of questions- and maybe some kind folks on here can answer them for me! I'm not really sure if this is the right place to ask but I'm not really sure where else I can find out..

  1. Can my Lyme Disease return? I've hear a lot about it just having remission periods, but I've also heard people say it's new bacteria that causes it to return.
  2. Did Lyme Disease cause my Coeliac? I know it can cause auto-immune diseases but I was always a pot-bellied kid with a bad stomach, so I'm not really sure- other auto-immune diseases run in the family, mainly thyroid related
  3. Did celiac disease or LD cause my anxiety? There was a spell between my diagnosis so I'm not sure if its unrelated

Thanks in advance! sorry if this isn't the right site to ask on...


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I have a friend I met here who is fighting a REALLY bad case of Lyme disease, I will inform her of your post and perhaps she can inform you more. The celiac gene can be inactive or only partially active for years as was mine. The symptoms were things I considered normal like sleeping all the time, constipation, vomiting after some meals was thought to be normal growing up til I did something stupid and the shock to my immune system changed my symptoms and pretty much made it full blown. Long story short, a shock to your immune system like lyme disease can bring about changes in celiac symptoms and even activate a dormant gene if it was previous dormant.

The anxiety comes from mixed causes, in most the damage to the intestines causes nutrient deficiency B vitamins and magnesium along with some others that cause the anxiety and panic attacks, Other cases it can be this and a combination of gluten ataxia or having a form or celiac that causes your immune system to also attack your brain and nervous system causing the confusion, fog, and anxiety. Regardless the top recommendation for dealing withe these is to supplement with a broad spectrum B-vitamin complex and a chelated Magnesium. Depending on if you have D or C bowl issues depends on the form and brand of magnesium I would suggest for this. As for B-vitamins Liquid Health Stress & Energy and Liquid Health Neurological Support 1 tbsp each twice a day is my suggestion.

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    • nancydrewandtheceliacclue
      @Aretaeus Cappadocia and @Russ H thank you both for your helpful advice and information. I haven't seen a GI in years. They never helped me aside from my inital diagnosis. All other help has come from my own research, which is why I came here. I will be even more careful in the future. 
    • Aretaeus Cappadocia
      @nancydrewandtheceliacclue, you are welcome. After looking at this thread again, I would like to suggest that some of the other comments from @Russ H are worth following up on. The bird-bread may or may not be contributing to what you are experiencing, but it seems unlikely to be the whole story. If you have access to decent healthcare, I would write down your experiences and questions in outline form and bring this to your Dr. I suggest writing it down so you don't get distracted from telling the Dr everything you want to say while you have their attention.
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      @Russ H, I partly agree and partly disagree with you. After looking at it again, I would say that the slick graphic I posted overestimates the risk. Your math is solid, although I find estimates of gluten in white bread at 10-12% rather than the 8% you use. Somewhat contradicting what I wrote before, I agree with you that it would be difficult to ingest 10 mg from flinging bread.  However, I would still suggest that @nancydrewandtheceliacclue take precautions against exposure in this activity. I'm not an expert, I could easily be wrong, but if someone is experiencing symptoms and has a known exposure route, it's possible that they are susceptible to less than 10 mg / day, or it is possible that there is/are other undetected sources of exposure that together with this one are causing problems. At any rate, I would want to eliminate any exposure until symptoms are under control before I started testing the safety of potentially risky activities. Here is another representation of what 10 mg of bread would look like. https://www.glutenfreewatchdog.org/news/wp-content/uploads/2019/10/10mgGlutenCrumbsJules.jpg Full article that image came from: https://www.glutenfreewatchdog.org/news/what-does-10-mg-of-gluten-look-like/
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