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Jenn2005

Testosteron Levels And Fatigue

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My husband (Shane) is now seeing a new doctor to help manage his Celiac. The local GI doctor that we had been going to was really no help except to say check the internet and the library. I had asked him to check his vitamin levels in particular the B12 because Shane was feeling so tired and the last time it was checked he was at about 240 and the normal was 200 - 1100 range. The doctor said it wasn't necessary to check it even though he was in the low normal 2 1/2 months previous and said we should see someone else he didn't want anything to do with Celiac - he said he didn't know enough about it gave us a No Charge slip and sent us on our way. I ended up calling a doctor that Shane had seen back in July when we were on vacation and the worst of this started and we went to see him (8 hours away) but it was worth the trip. He agreed that the vitamin levels needed to be checked and monitored continuously and he also said that with exteme fatigue (for men) testosterone levels should be checked in addition to vitamin B12. He said chronic illnesses and diseases can cause the testosterone level to be low and should be monitored also with the vitamins & mineral levels. Shanes testosterone levels ended up in the normal range but his B12 was very low and he is now getting the injections. Just thought I would share the testosterone information in case any of the men Celiacs are feeling fatigue and nothing else is helping.

Jennifer

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... he also said that with exteme fatigue (for men) testosterone levels should be checked in addition to vitamin B12. He said chronic illnesses and diseases can cause the testosterone level to be low and should be monitored also with the vitamins & mineral levels. Shanes testosterone levels ended up in the normal range but his B12 was very low and he is now getting the injections. Just thought I would share the testosterone information in case any of the men Celiacs are feeling fatigue and nothing else is helping.

Even the women should have this checked. Doctors don't like to believe that women (particularly younger ones) can have low testosterone, but my gyn specialist was willing to test me and found that I had next to none in my bloodstream. Supplementing (while it will be continuous for me (until pregnancy)) has definitely made a small, but important, change.


Tiffany aka "Have I Mentioned Chocolate Lately?"

Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy

G.F. - September 2003; C.F. - July 2004

Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me

Bellevue, WA

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B-12 has done wonderful things for me. When first D I was taking a shot once a week, now once a month. It really helps when I get the shakes in my hands and muscles.

At 51 and post med. I most likely could use the testotos. and would make the home life a little more cuddley. That's a question for all of us over-the-hill broads. I ha ve been on sooo much medicine in the resent past and now that I am not on soooo much...........room for thought :unsure::unsure:

Lisa B.


Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

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How long did it take for you to notice a boost from the B12 injections? Shane is only getting them once every two weeks. They wanted to do them once a week but as I said we live 8 hours from this doctor (we are in the process of moving to his area) so we are only able to fit them in every 2 weeks at this point. I wish his local dr would have done them but ..... Shane has had 2 shots so far and was accidently glutened in between them so right now he hasn't noticed much imporvement but I'm hoping once he's over the gluten mishap he'll feel something from the B12. Do you have to continue with the B12 injections long term or just until the levels come up?

Jennifer

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How long did it take for you to notice a boost from the B12 injections? Shane is only getting them once every two weeks. They wanted to do them once a week but as I said we live 8 hours from this doctor (we are in the process of moving to his area) so we are only able to fit them in every 2 weeks at this point. I wish his local dr would have done them but ..... Shane has had 2 shots so far and was accidently glutened in between them so right now he hasn't noticed much imporvement but I'm hoping once he's over the gluten mishap he'll feel something from the B12. Do you have to continue with the B12 injections long term or just until the levels come up?

Jennifer

I have been getting Vitamin B-12 shots every week for the past 5 weeks. I have a lot of improvement, but still have some symptoms from the deficiency. My best friend is an internist and said you will not see complete improvement for probably 3-6 months. So, hang in there! Also, can you have a nurse or someone in your area give you the shots? You would just need a script from the doctor and you can get it filled and have someone closer give it to you. My sister (a PharmD) gives me mine.

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My husband (Shane) is now seeing a new doctor to help manage his Celiac. The local GI doctor that we had been going to was really no help except to say check the internet and the library. I had asked him to check his vitamin levels in particular the B12 because Shane was feeling so tired and the last time it was checked he was at about 240 and the normal was 200 - 1100 range. The doctor said it wasn't necessary to check it even though he was in the low normal 2 1/2 months previous and said we should see someone else he didn't want anything to do with Celiac - he said he didn't know enough about it gave us a No Charge slip and sent us on our way. I ended up calling a doctor that Shane had seen back in July when we were on vacation and the worst of this started and we went to see him (8 hours away) but it was worth the trip. He agreed that the vitamin levels needed to be checked and monitored continuously and he also said that with exteme fatigue (for men) testosterone levels should be checked in addition to vitamin B12. He said chronic illnesses and diseases can cause the testosterone level to be low and should be monitored also with the vitamins & mineral levels. Shanes testosterone levels ended up in the normal range but his B12 was very low and he is now getting the injections. Just thought I would share the testosterone information in case any of the men Celiacs are feeling fatigue and nothing else is helping.

Jennifer

that is also true for women we need testerone for energy and mood balancing.exercising, football and listening to rock music will do the trick! I know you are laughing but it's true! :P (beer drinking will not do the trick.)

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