Entrolab Results

[christa]

I just got my results back from entrolab. they were:

Gluten sensitivity testing

fecal antigliadin IgA 31 units (normal range <10 units)

fecal antitissue transglutaminase IgA 26 units (normal range <10 units)

microscopic fecal fat score: 141 units (normal range <300 units)

HLA-DQ Gene molecular analysis: HLA-DQB1*0302,0301

Fecal anti-casein IgA antibody 20 units (Normal range <10)

I am going to bring these results to my medical doctor and I was wondering what other people's doctors responses were to this testing. Do they think it is a big haux or so they actually take it seriously. Also since I have gluten sensitivity and not celiacs shouldn't a gluten free diet solve everything immediatly since there is no intestinal damage? Also does that mean once a gluten free diet is followed then the casein intolerance should improve or is that only with celiacs? I am confused and just wondering what other people have experienced?

[tiffjake]

I just got mine too, very simular to yours!! LOL.

Gluten Sensitivity was 34 with normal being less than 10

Fecal Antitissue transglutaminase 12 with normal beint less than 10

Casien IgA was 14 with normal being less than 10

And my genes were HLA-DQB1*0201, 0301 which is DQ2 and DQ3 subtype DQ7

I have no idea what that means, but my doctors appointment with my primary doctor is on the 30th, so I will ask him about it then. If anyone else knows, I would love to hear what the gene stuff means! I am going to try to call Enterolab in the a.m. and ask them.

Good luck! I hope your results help your doc to figure things out!!!!!!!

Tiffany

[DonnaD]

I just got mine too, very simular to yours!! LOL.

Me too!

mine are: Gluten Sensitivity Testing

Fecal Antigliadin IgA 38 Units (Normal Range <10 Units)

Fecal Antitissue Transglutaminase IgA 10 Units (Normal Range <10 Units)

Microscopic Fecal Fat Score: 406 Units (Normal Range < 300 Units)

HLA-DQ Gene Molecular analysis: HLA-DQB1*0501, 0501 (Intolerant not celiac but a bit unsure about this bit)

Food Sensitivity Testing

Fecal anti-casein (cow's milk) IgA antibody 12 Units (Normal Range

<10 Units)

[Guest barbara3675]

To answer your question about the casein sensitivity......quite certainly it will go away after some time. That has been my experience. I have a gluten intolerance and when I got my results from Enterolab it showed a casein problem too. I didn't eat dairy for awhile and after about six month, then I could eat it without any problem. It is a healing issue. This is common. As far as the doctor goes, I sure wouldn't count on much understanding. It would be rare. Most regular doctors are pretty clueless about a gluten intolerance even if they are a little bit knowlegable about celiac disease. It is just amazing. It would be nice if all the doctors could be rounded up and clued in somehow!!!!! Barbara

[DQ1Squared]

Christa—My E-lab results were similar to yours--positive for antigliadin IgA, tTG and casein. My GP recently diagnosed me with celiac disease based primarily on my medical history and diminishing gastro, joint, and other symptoms on the gluten-free diet. I gave him my Enterolab results and he certainly wasn’t rude although he was more interested in specific symptoms along with the marked improvement from the diet. (I had already tested negative for Crohn’s, colitis, etc.) Based on the reports of others in this forum, your mileage will probably vary considerably! If your doctor is rude or dismissive, you might want to find some celiacs in your area and ask them for the names of their doctors.

Also, don’t assume that you absolutely aren’t celiac based on the genes. A small percentage of biopsy diagnosed celiacs have genes other than the main celiac genes.

Best of luck with your doc. If you’ve done enough research to understand your test results, you know more about celiac disease/gluten sensitivity than most of the physicians out there. Please let us know how it goes.

DQ1Squared

[DonnaD]

Christa—My E-lab results were similar to yours--positive for antigliadin IgA, tTG and casein. My GP recently diagnosed me with celiac disease based primarily on my medical history and diminishing gastro, joint, and other symptoms on the gluten-free diet. I gave him my Enterolab results and he certainly wasn’t rude although he was more interested in specific symptoms along with the marked improvement from the diet. (I had already tested negative for Crohn’s, colitis, etc.) Based on the reports of others in this forum, your mileage will probably vary considerably! If your doctor is rude or dismissive, you might want to find some celiacs in your area and ask them for the names of their doctors.

Also, don’t assume that you absolutely aren’t celiac based on the genes. A small percentage of biopsy diagnosed celiacs have genes other than the main celiac genes.

Best of luck with your doc. If you’ve done enough research to understand your test results, you know more about celiac disease/gluten sensitivity than most of the physicians out there. Please let us know how it goes.

DQ1Squared

I have just got back from my appointment with a newish younger female doctor at my practice. I have given up on my usual GP of 30 years. I explained that while looking for cooking tips for my D I had come across lots and lots of parents of coeliac children on this forum with the exact same pattern of illnesses and progression as me and my sisters, Ibs, fibro, neuro, freezing hands and feet, brain fog, etc so I had spent some time researching gluten and coeliac. She listened to me, read the results from Enterolab accepted my reasoning that as I am off wheat and 95 gluten-free bloods would be false negative like my daughter's. I had printed out some studies regarding genetics, celiac, and gluten-free neuro problems quoted from 'the Lancet' She said it was significant that while on 'Atkins' (essentially gluten-free) I had been 3 stone lighter and healthy with no IBS for a year or so until my decline into the Fibro twilight zone 2 years ago She is sending me for a bone density scan, (dowagers hump getting worse) thyroid function, glucose, folate, b12. Liver function, FBC and ESR. Interestingly she talked about the 'iceberg' theory regarding coeliac diagnosis (before I had a chance to mention it to her ) and was quite willing to accept that I demonstrated 'gluten sensitivity' (as I have an auto immune reaction to gluten, with a genetic link,) she even wrote that on the clinical details box of the lab test form. ! I was expecting to have to argue my case for testing so was very surprised that she actually knew that most coeliacs stay undiagnosed, coeliacs can be overweight and not have the 'classic' symptoms.

All in all I came away feeling very postive about the whole appointment.

[dlp252]

Donna, that is fantastic! Congratulations on finding a doctor who is willing to listen. I went to a new ENT a few weeks ago, who was also willing to listen and it felt great! I hadn't had my testing done yet, but will show it to her next time I see her.

[DonnaD]

Donna, that is fantastic! Congratulations on finding a doctor who is willing to listen. I went to a new ENT a few weeks ago, who was also willing to listen and it felt great! I hadn't had my testing done yet, but will show it to her next time I see her.

I am still in shock! it feels like christmas came early! I am sure that most people on here HATE going to the Docs!

I was also being 'filmed for training purposes' so hope that in my small way I will help to educate a newbie doctor not to dismiss dietary illness or make waste basket diagnosis.

[dlp252]

I was also being 'filmed for training purposes' so hope that in my small way I will help to educate a newbie doctor not to dismiss dietary illness or make waste basket diagnosis.

Even better!!!!

[puppasita]

I just got my results back from entrolab. they were:

Gluten sensitivity testing

fecal antigliadin IgA 31 units (normal range <10 units)

fecal antitissue transglutaminase IgA 26 units (normal range <10 units)

microscopic fecal fat score: 141 units (normal range <300 units)

HLA-DQ Gene molecular analysis: HLA-DQB1*0302,0301

Fecal anti-casein IgA antibody 20 units (Normal range <10)

I am going to bring these results to my medical doctor and I was wondering what other people's doctors responses were to this testing. Do they think it is a big haux or so they actually take it seriously. Also since I have gluten sensitivity and not celiacs shouldn't a gluten free diet solve everything immediatly since there is no intestinal damage? Also does that mean once a gluten free diet is followed then the casein intolerance should improve or is that only with celiacs? I am confused and just wondering what other people have experienced?

I just got my results back from entrolab. they were:

Gluten sensitivity testing

fecal antigliadin IgA 31 units (normal range <10 units)

fecal antitissue transglutaminase IgA 26 units (normal range <10 units)

microscopic fecal fat score: 141 units (normal range <300 units)

HLA-DQ Gene molecular analysis: HLA-DQB1*0302,0301

Fecal anti-casein IgA antibody 20 units (Normal range <10)

I am going to bring these results to my medical doctor and I was wondering what other people's doctors responses were to this testing. Do they think it is a big haux or so they actually take it seriously. Also since I have gluten sensitivity and not celiacs shouldn't a gluten free diet solve everything immediatly since there is no intestinal damage? Also does that mean once a gluten free diet is followed then the casein intolerance should improve or is that only with celiacs? I am confused and just wondering what other people have experienced?

Wow, it is as if I wrote this myself. I was tested positive by Enterolab. I have "the gene" too and a mother who has serious stomach problems but is stubborn about getting tested. My GI said I did not have celiac based on the biopsy. That is of course good news but I am still struggling with the whole gluten thing. I need a supportive doctor, one who I will listen and will look me in the eye and say, "just because you don't have celiac, you can't eat/tolerate gluten." This is such a struggle for me.

[JasonJayhawk]

Has anyone using EnteroLab's testing service actually been diagnosed as NOT having a gluten sensitivity?

My wife is considering the test, but thus far, everything we read, seems to indicate that people are reporting positive or borderline results.

I'd like to hear from someone having abdominal pains or celiac-like symptoms who has results falling in the normal (non-positive) ranges -- has anyone come across such results from EnteroLab?

$349 is a lot to spend on a test if we have a sure chance of it coming back positive/borderline. :-(

[Nancym]

Yes, I've seen people posting here and also at Open Original Shared Link who have gotten cleared of it, or their family member. Its sort of a self-selecting group here, ones that post here tend to be folks that actually do have a problem with gluten.