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Emily45
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Emily45 Apprentice
Emily45
Posted

I've been following a gluten free diet for a few weeks now as I suspect that I've got celiac disease and have been feeling better apart from when I eat gluten free bread it has been setting me off and I feel like crap. It hasn't been cross contaminated so I'm confused HELP! 

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Kayla89 Newbie
Kayla89
Posted

Maybe check for dairy in the ingredients of the bread? You may be allergic to both, gluten and dairy. I have several friends/family that are allergic to both. :)

Emily45 Apprentice
Emily45
Posted
  • Author

I have been staying clear of dairy as well. im so confused 

Ennis-TX Grand Master
Ennis-TX
Posted

Some celiac end up with issues with Xantham Gum intolerance or sensitivity...the way it is made can make it quite the offender.
High and large amounts of starches and sugars used in most gluten free breads can cause gas, bloating. Celiacs especially those recently diagnosed are prone to SIBO and Candida. If your have these the excess loads of starches and sugars in gluten free processed foods will give you a nightmare of bloat, gas, and other symptoms that can be almost as bad a gluten exposure.

FEW top suggestion to new celiac, whole foods only diet without dairy or oats, you know the dairy issues with damaged villi not producing the enzymes to break ti down but 10% of celiacs react to oats as well even gluten free ones.

Breads....Gluten free we suggest you give them up for months til you forget what they even taste like.

There are some lower carb options for gluten-free breads and even xantham gum free ones like Julian Bakery (DO NOT ORDER AMAZON but straight from their bakery) they are acquired and a bit drier. They toast great, the seed melody is a nice treat and I have not even tried their new sandwich one since my bakery started our own. Mikeys' Makes a heavy toasted bread you can find at walmart.

 

Emily45 Apprentice
Emily45
Posted
  • Author

thank u so much. If it's so confusing don't know what to eat these days 

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      @Aretaeus Cappadocia and @Russ H thank you both for your helpful advice and information. I haven't seen a GI in years. They never helped me aside from my inital diagnosis. All other help has come from my own research, which is why I came here. I will be even more careful in the future.
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      @nancydrewandtheceliacclue, you are welcome. After looking at this thread again, I would like to suggest that some of the other comments from @Russ H are worth following up on. The bird-bread may or may not be contributing to what you are experiencing, but it seems unlikely to be the whole story. If you have access to decent healthcare, I would write down...
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    • nancydrewandtheceliacclue
      Celiac flare years after diagnosis

      By nancydrewandtheceliacclue · Posted

      @Aretaeus Cappadocia and @Russ H thank you both for your helpful advice and information. I haven't seen a GI in years. They never helped me aside from my inital diagnosis. All other help has come from my own research, which is why I came here. I will be even more careful in the future. 
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      Celiac flare years after diagnosis

      By Aretaeus Cappadocia · Posted

      @nancydrewandtheceliacclue, you are welcome. After looking at this thread again, I would like to suggest that some of the other comments from @Russ H are worth following up on. The bird-bread may or may not be contributing to what you are experiencing, but it seems unlikely to be the whole story. If you have access to decent healthcare, I would write down your experiences and questions in outline form and bring this to your Dr. I suggest writing it down so you don't get distracted from telling the Dr everything you want to say while you have their attention.
    • Aretaeus Cappadocia
      Celiac flare years after diagnosis

      By Aretaeus Cappadocia · Posted

      @Russ H, I partly agree and partly disagree with you. After looking at it again, I would say that the slick graphic I posted overestimates the risk. Your math is solid, although I find estimates of gluten in white bread at 10-12% rather than the 8% you use. Somewhat contradicting what I wrote before, I agree with you that it would be difficult to ingest 10 mg from flinging bread.  However, I would still suggest that @nancydrewandtheceliacclue take precautions against exposure in this activity. I'm not an expert, I could easily be wrong, but if someone is experiencing symptoms and has a known exposure route, it's possible that they are susceptible to less than 10 mg / day, or it is possible that there is/are other undetected sources of exposure that together with this one are causing problems. At any rate, I would want to eliminate any exposure until symptoms are under control before I started testing the safety of potentially risky activities. Here is another representation of what 10 mg of bread would look like. https://www.glutenfreewatchdog.org/news/wp-content/uploads/2019/10/10mgGlutenCrumbsJules.jpg Full article that image came from: https://www.glutenfreewatchdog.org/news/what-does-10-mg-of-gluten-look-like/
    • nancydrewandtheceliacclue
      Celiac flare years after diagnosis

      By nancydrewandtheceliacclue · Posted

      @Aretaeus Cappadocia thank you for your reply and the link, that is very helpful to get a visual of just how small of an amount can cause a reaction. I know I am not consuming gluten or coming into contact with gluten from any other source. I will stop touching/tossing bread outside! My diet has not changed, and I do not have reactions to the things I am currently eating, which are few in number. My auto immune reaction just seems so severe. The abdominal pain is extreme. It takes a lot out of me. I guess I will be this way for the rest of my life if I ever happen to come into contact with gluten? I appreciate the help. 
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