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wildones

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wildones Apprentice
wildones
Posted

My two sons and I have been gluten free (after diagnosis of celiac disease for one boy and I and gluten intolerance for my other son) for a while now and my husband just got diagnosed w/ celiac disease and so our daughter has to have it also. Anyone else have a family where both parents have been diagnosed and therefore all of your kids have it (celiac disease or gluten intolerance) too ? My husband until a few days ago has been mostly gluten free at home, but has had some while at work. My daughter has had a similar diet, we occasionally packed some foods in her lunch w/ gluten containing foods. Before my husband received his diagnosis a few days ago, my daughter had a piece of cake at church, then went to a birthday party and had pizza. She felt really crappy after the party and decided on her own to go gluten free. She knew we would know soon about her dad but didn't even want to wait, she knew it wasn't good for her to have.

The only symptom she had was reflux (still needs treatment at 7 yrs old) until going mostly gluten free. After her body started healing, she had a noticeable reaction to gluten.

I am wondering if our experience is unique (both parents) or not.

Lorraine

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gf4life Enthusiast
gf4life
Posted

I have a similar situation as yours. Myself and my three children all have different levels of gluten intolerance. Two quite sensitive with bad reactions to gluten accidents and lots of symptoms and two with very few symptoms and very little reaction to a gluten accident. I believe my husband may also be gluten intolerant, but he won't get tested right now. He doesn't want to have to give up his favorite foods! He also doesn't think he has it since he is not as sick as I was. :rolleyes: He does have some symptoms though and I am hoping to get him tested at the Stanford Celiac Conference this fall. He was interested in it when the support group leader mentioned it to him last weekend. I was so surprised, since this was the first time he actually showed interest in learning about the gluten-free diet and testing. He even took the day off work to come with us to the meeting.

Other than the foods he cooks for himself, our household is gluten-free. We are all doing well on the diet and I think my husband would be healthier if he would go on it too.

It is much easier to have the whole house gluten-free!

God bless,

Mariann

Mom22 Apprentice
Mom22
Posted

We have a 9 year old son and 4 year old daughter with celiac disease. Our son has been gluten free for 4 weeks and our daughter will be gluten free after this Wednesday. She is scheduled for her biopsy and will be gluten-free starting on Thursday. We are 99% sure she is positive too. My husband is probable celiac and is being referred to a specialist for further testing. If my husband is celiac too, then all four of us will go gluten free.

Mom 2 2 celiac children :D

gf4life Enthusiast
gf4life
Posted

Mom22, I wanted to say welcome to the message board. There is a wonderful group of supportive people here. I wouldn't know how I would have been able to make it without them! I hope your daughter's biopsy goes well. It is actually easier to have the whole family gluten-free. Trying to keep 1 or 2 members from getting contaminated by the non--gluten-free foods is a real challenge. I kept getting sick before my family also went gluten-free.

God bless,

Mariann

(mom and 3 kids gluten-free, dairy-free and two of us have problems with soy)

Mom22 Apprentice
Mom22
Posted

Mariann,

Thanks for the warm welcome. I have to say that 2004 is a year that I am not going to quickly forget. My husband and I have been to a support group and I have been doing so much research work. I have found that you can gain so much valuable information from others and encouragement, which I so desperately needed. :D

Mom 2 2 celiac children

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