Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bloating And Pain


Norris

Recommended Posts

Norris Rookie

My 9-year-old daughter has been on the gluten-free diet for over three weeks now and has only minimally improved. The sharp stabbing pain near her navel has decreased but she constantly complains of bloating and dizziness. She is in too much pain to return to school (7 weeks missed, now).

For those of you who have been through this before...

Is this normal? He biopsy showed "substantial damage to the villi" and her blood levels were high, so do I assume that her recovery may be slow?

Any tips for helping her with the pain and bloating?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest Robbin

I would take her off dairy for awhile if you haven't already. Dairy is a big cause of bloating and pain with my son. I sure hope she gets better soon. I know how heartbreaking it is for you to see her so ill, too. Keep us posted. God bless :)

Guest BERNESES

Norris- i'm so sorry that your daughter is so ill. It's so hard to watch a child suffer. But if the damage to the villi was significant, it's not surprising. It may take quite awhile for her to feel really good again. I know when I first went gluten-free (and supposedly had no villi damage) I was still in pretty rough shape. I definitely saw improvements right away but if I was a child in school, it would probably have been some time before I was back on my feet again.

Maybe you can work it out with her school (or depending on your schedule) that she can go back half days for a bit and then full days when she starts to feel better (fourth grade?).

I would definitely keep away the lactose too- they say the first six months you shouldn't have any. (((Hugs))), Beverly

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Dawn Meyers replied to Dawn Meyers's topic in Related Issues & Disorders
      16

      Vaccines

    2. - Scott Adams replied to Dawn Meyers's topic in Related Issues & Disorders
      16

      Vaccines

    3. - Dawn Meyers replied to Dawn Meyers's topic in Related Issues & Disorders
      16

      Vaccines

    4. - pdm1981 replied to Dawn Meyers's topic in Related Issues & Disorders
      16

      Vaccines

    5. - Dawn Meyers replied to Dawn Meyers's topic in Related Issues & Disorders
      16

      Vaccines


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,850
    • Most Online (within 30 mins)
      7,748

    Roselle
    Newest Member
    Roselle
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Dawn Meyers
      I did some research and found out that vaccines put preservatives, sugar alcohols and metals in them. Which I have a intolerance too.  I was supposed to do testing to find out metal's I was allergic to because I can't  wear jewelry of any kind. Mayo felt I had other allergies also.
    • Scott Adams
      For individuals who have experienced negative reactions to the flu vaccine, there are alternative formulations that may reduce the risk of allergic responses. Traditional flu vaccines are typically produced using egg-based methods, which can pose issues for those with egg allergies. However, there are now several egg-free options available, such as cell-based and recombinant flu vaccines. Recombinant Vaccines (e.g., Flublok Quadrivalent): These are produced without the use of eggs and are grown in insect cells, making them a suitable option for individuals with egg allergies. Cell-Based Vaccines (e.g., Flucelvax Quadrivalent): These vaccines are also egg-free and are produced using mammalian cell cultures, which can be a safer alternative for those with egg allergies. Other Considerations: If you have had a reaction to a specific component of the flu vaccine (e.g., gelatin, preservatives, or antibiotics), discussing your medical history with a healthcare provider is crucial. They can help identify vaccines that exclude these ingredients. It's important to consult with an allergist or healthcare provider to determine the safest option based on your specific allergies and medical history. They can also provide guidance on pre-vaccination testing or desensitization protocols if necessary. Also, at @trents mentioned, could you be getting hidden gluten in your diet? Do you eat in restaurants? If so, this could be why you still have high gluten antibodies.
    • Dawn Meyers
      Mayo is great and yes I had the same experience.  They take you seriously and they check everything.  I to wish other Dr's cared that much. I sure hope it's not refractory celiac also.  
    • pdm1981
      When I went to the Mayo Clinic back in 21' it was pretty amazing. The doctor sat and went over everything with me for a couple hours. I finally had to ask him if he had other patient to see. He said that not until he was done with me. I went back to my hotel room that day after some blood work and then got an itinerary of tests to be done over the next 5 days. It was unbelievable. I had what would've been 4 years of testing back home done in 5 days. I went home at the end of 5 days and got my results a week later on a zoom call. EPI and rapid gastric emptying syndrome. I do have celiac disease but that wasn't the cause of my continued symptoms. Those people up there are great. Wouldn't that be amazing if all medical care was like that?  That's weird that the antibodies are that high. Hopefully it's not refractory celiac disease. Good luck.
    • Dawn Meyers
      Antibodies my number is in 500's. COVID hit and I was  layed off from my job so no insurance (was in Arizona) so couldn't complete all the other testing they wanted to do. Back home and contacted Minnesota Mayo and they take my new insurance so considering going back in spring. 
×
×
  • Create New...