Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Do I likely have celiac?


temp8665

Recommended Posts

temp8665 Apprentice

1. It runs in my family.  My dad's cousin has it.  My nephew has it.

2. About five years ago, I would buy three medium pizzas via delivery and eat them over a few days.  Suddenly, doing so, made me not be able to pee for an entire day.  I started just buying one pizza and it was OK.  But then a few months later even that one pizza would make me not be able to pee for an entire day.  I tried several companies and they all had the same result.  I tried Pizza Hut and it was OK.  I would get one pizza hut pizza.  But then, even doing that, would make me not be able to pee.  I stopped getting pizza delivery.  I still get store bought pizza but I only eat 1/2 of it.  I get diarrhea when I eat store bought pizza too many days in a row.

3. About the same time - five years ago - I was diagnosed with eczema on my inner legs and in my ear.

4. I had a blood test this year and it showed I was very low on Vitamin D and Vitamin B12.

5. I do not eat much gluten as it is.  The only gluten I eat is that 1/2 store bought pizza.  I bought bread this week for the first time in forever and I was eating it a lot.  I've had diarrhea for three days now.

6. I have had issues with numb pinky fingers usually associated with using a computer too much.

 

So, do these things warrant a blood test do you think?!  Is there anything I listed that doesn't really fit with celiac?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master
(edited)

Abolutely! You need to get tested for celiac disease. Ask the physician to run a full celiac panel and not just the tTG-IGA. The tTG-IGA is the most specific antibody test but not the most sensitive. It can miss those who truly have celiac disease. https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/

For the testing to be valid you need to be eating a substantial amount of gluten for 6-8 weeks leading up to the test. Substantial amount guidelines are 2 slices of wheat bread daily or the equivalent.

Edited by trents
Scott Adams Grand Master

Good advice @trents, you should definitely get tested, and a couple of slices of pizza a day would also be enough gluten before getting the test.

Let us know how it turns out, and keep in mind that if the results are negative, you could still have non-celiac gluten sensitivity, for which there currently isn't a test.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      361

      Terrible Neurological Symptoms

    2. - Aretaeus Cappadocia replied to HectorConvector's topic in Related Issues & Disorders
      361

      Terrible Neurological Symptoms

    3. - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      361

      Terrible Neurological Symptoms

    4. - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      361

      Terrible Neurological Symptoms

    5. - AutomatedGlutenEjector commented on Scott Adams's article in Latest Research
      71

      COVID-19 a Possible Trigger for Celiac Disease in Those with Genetic Risk

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,063
    • Most Online (within 30 mins)
      10,442

    Juls9503
    Newest Member
    Juls9503
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
    • Aretaeus Cappadocia
      You have an odd story there. To me, the mechanical trigger suggests a mechanical problem and lower leg pain is a classic sciatica symptom. The fact that the clear mechanical linkage is no longer there does not take away from the fact that it was - maybe something shifted and the simple alignment is no longer there. There's also a good chance I am wrong and it's something else entirely. @Scott Adams's mention of shingles is interesting. It seems possible but unlikely to me, but who knows. However, I am writing here to reinforce the idea of getting the shingles vaccine. Ask anyone who has ever had shingles and they will bend your ear telling you how bad it is. I watched my wife go through it and it scared the bejeebers out of me. Even if you had the chicken pox vaccine, you really want to get the shingles vaccine.
    • HectorConvector
      Oddly this effect has gone now, just happened yesterday evening, the nerve pain is now back to its usual "unpredictable" random self again - but that was the only time I ever had some mechanical trigger for it, don't know why! There's no (or wasn't) actual pain in my neck - it was inside the leg, but when I looked down, now though, the leg pain just comes and goes randomly as before again.
    • HectorConvector
      I had MRI scan a few years ago showing everything normal, and now it's no longer triggering the nerve pain when I bow my head today - it only seemed to happen yesterday, and that was the only time it happened! Just seemed weird as no movement has caused my usual nerve pain before. It's normally just random.
    • akebog
      Very good pizzeria with small dining room in back of the restaurant. The owner's daughter has celiac & they have gluten free pizza & a gluten free menu. Some items from the regular menu can be made gluten free also. They have a lunch menu which we ordered from & my chicken with spinach & mozzarella over gluten-free penne was delicious. They also have Tuesday night pasta specials & Thursday night chicken pasta specials. We plan on going back for dinner soon.
×
×
  • Create New...