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Do I even have celiac disease?


Onemoreceliac

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Onemoreceliac Apprentice

Hello, I was recently diagnosed with celiac disease by doing first an endoscopy (results: celiac disease Marsh 2) but the doctor said I should run a couple of tests  to confirm.

All the tests came back negative with some exceptions:

IgA- above levels

Endomisium IgA- negative

Endomisium IgG - negative

B12 vitamin- normal parameters

D vitamin - very low levels

Iron - very low levels

I read if a person have celiac disease, IgA levels should be low, endomisium IgA and endomisium IgG should be above levels.

I am on a gluten free diet for about two weeks now, maybe the tests came out like this because of my diet? 

 

 

 


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knitty kitty Grand Master

Hello, @Onemoreceliac

Yes, you are right!  Being on the gluten free diet can affect your test results.

Here's an interesting study done....

"Tests for Serum Transglutaminase and Endomysial Antibodies Do Not Detect Most Patients With Celiac Disease and Persistent Villous Atrophy on Gluten-free Diets: a Meta-analysis"

https://pubmed.ncbi.nlm.nih.gov/28545781/

 

Isn't it nice to know that if we remove gluten, our bodies respond so quickly.  They cease producing antibodies and inflammation subsides.

Good question!

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      It’s been 3 days so far. I think I might be on the mend, but every time I think that, I go on rewind.  Thanks for your reply, I appreciate it.    
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      How long should it take to recover after a significant cross contamination situation?
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