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How long can symptoms last


Vincent pemberton
Go to solution Solved by Scott Adams,

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Vincent pemberton Rookie

I’ve had most of my symptoms go away and I’ve avoided a gluten as far as I know but it’s been four days since I’ve last had gluten. I’ve been struggling with gas and abdominal pain and occasionally light headed and nausea. It’s gotten better and sometimes I feel fine but now it’s back like a wave all at once. On top of all this when I was eating gluten regularly I’ve been sick and hospitalized several times but now it is feeling even worse and am worried about doing the gluten challenge after going to the doctor. 


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Vincent pemberton Rookie

I am now starting to feel better, just dealing with gas. I drank some apple cider vinegar and that helped, along with gas relief meds. I’ve cut back on milk, and soda, is there anything else I need to be weary of. 

  • Solution
Scott Adams Grand Master

It sounds like you’re going through a tough time with these lingering symptoms, but it's good to hear you’re starting to feel better. Digestive issues like gas and abdominal pain can sometimes persist even after cutting out gluten, especially if your gut is still healing. You’re doing great by avoiding milk and soda, as they can sometimes aggravate symptoms. Other things to watch out for might include high-fiber foods, certain fruits (like apples and pears), and artificial sweeteners, as they can also cause gas. Staying hydrated, eating smaller meals, and incorporating gut-friendly foods like bone broth and probiotics might help too. The gluten challenge can be rough, so make sure to communicate your concerns with your doctor. Wishing you continued improvement!

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    • Aretaeus Cappadocia
      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
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      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
    • trents
      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
    • nancydrewandtheceliacclue
      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
    • Russ H
      The sensitivity of people with coeliac disease varies greatly between individuals. The generally accepted as safe limit for most people is 10 milligrams per day. This equates to a piece of bread the size of a small pea. Some people report that they are more sensitive than this, but others can very occasionally eat a normal gluten containing meal without reacting. I don't think that touching or throwing bread around would lead to you ingesting enough to cause a reaction. There are case reports of farmers with coeliac disease reacting to the dust from gluten-containing animal feed but they were inhaling large amounts of dust over a long period of time in barns. Perhaps you episodes are caused by a reaction to something other than gluten? Have you had your antibody levels checked to see whether you are still being exposed to gluten?
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